Trisha Greenhalgh on ME/CFS and Long Covid

[MSEsperanza]

Update, the forum account is now definitely blocked but not my personal one (so far).

Seems it always can get much worse than I initially tend to think -- so she now says she "had to" mass-block several thousand people.

"If you or someone you know has been blocked in error, please contact me and ask for them to be reinstated. Happy (indeed, keen) to be followed by people who disagree with me. Zero tolerance for personal abuse."

I guess it's several thousands that have been blocked in error.

 

[Milo]

I have never interacted with her and i am blocked. Wow. Talk about being militant! My twitter account is not used to target people.

 

[adambeyoncelowe]

I'm blocked too. I've never even spoken to her.

She must've blocked all the people who are friends with someone (or several someones) who are high profile in the ME world.

Maybe all the followers of the various charities, for instance.

 

[Trish]

I'm beginning to feel excluded. I'm not blocked yet.
I really don't care. I use twitter very little and have given up any hope of changing anyone's mind about anything with a tweet. They tend to just dig their heels in if they get lots of disagreement.

 

[Joeblow604]

I'm blocked from both my personal and art page. I've never commented nor do I follow her. My personal page I've barely used the last few years and my art page is for showing mine and others art, not ME advocacy.....How bizarre.

 

[Saz94]

Sounds like she did it sadly.

DISAGREEING ISN'T PERSONAL ABUSE FFS.

"Sadly I had to block several thousand people today because they all disagree with me."

Fixed it for you.

 

[Saz94]

So, yikes, she's implying that several thousand people have been sending her personal abuse! When really most of the pepole that she blocked haven't even interacted with her at all.

 

[rvallee]

My emphasis...



She appears to have changed her mind on "not blocking critics". She's now blocked thousands of people on Twitter, including many who have never heard of her and many who have never interacted with her or referred to her in any way. So, her Twitter account will be an absolutely perfect example of an echo chamber from now on. How sweet - and pointless.

On 2nd thought it's possible I mixed Greenhalgh here with, I think, Fiona Godlee. I really should stop relying on my memory.

But she did publish an article gushing about a patient-led research institute and how important it is to listen to patients, a point she makes loudly with LC, so frankly the point still stands.

 

[Milo]

I suspect that Greenhalgh may have simply looked up certain hashtags and moved on to block all using the hashtag, not unlike the previous guy who did that too, i can’t remember who it was. I also suspect that she may have been recommended to do so by other ME- or SMC related researchers.

 

[NelliePledge]

I was actually following her because she was doing some good posts about masks in the spring and I followed her then. I’ve unfollowed her now.

 

[Andy]

Dr Todd Davenport, from Workwell, has been blocked by her.

https://twitter.com/sunsopeningband/status/1354156398230179840

 

[dave30th]

She suggests contacting her if you've been blocked by accident. How would I contact her when she's blocked me? She also suggests having an unblocked friend let her know and she'll unblock you if you're not really implicated. How would I find such a person, since everyone involved (except @Trish, for unknown reasons) is blocked?

 

[Leila]

I suspect that Greenhalgh may have simply looked up certain hashtags and moved on to block all using the hashtag, not unlike the previous guy who did that too, i can’t remember who it was. I also suspect that she may have been recommended to do so by other ME- or SMC related researchers.

Must be. I was also blocked today, never had anything to do with her or P Garner or anyone

 

[cassava7]

Truly the Wessely school -- throwing people with ME under the bus while passing off scientific criticism as personal abuse.

I suspect that Greenhalgh may have simply looked up certain hashtags and moved on to block all using the hashtag, not unlike the previous guy who did that too, i can’t remember who it was. I also suspect that she may have been recommended to do so by other ME- or SMC related researchers.

She probably blocked everyone who uses #pwME, #MECFS, #MyalgicE etc.

 

[Snow Leopard]

I mentioned this study several times:
https://academic.oup.com/bmb/article/69/1/197/523356

I guess that was enough to get on the list.

 

[Saz94]

She is collectively gaslighting us all.

But I guess I'm being "personally abusive" by just saying that.

 

[Saz94]

And I'm sure she fucking knows what she's doing.

She *is* behaving in a way that is anti science.

She must know that. She knows enough about evidence based medicine to know that what she says about ME and LC is NOT evidence based.

So yes, she *is* behaving in an up-herself way, too.

I wouldn't presume to say that she hates us all, but she certainly doesn't appear to care about the great harm that she's causing us.

 

[Saz94]

But we will not be silent. We will not be scared by false accusations being made about us. We think, oh we have to be nice and gracious, otherwise they'll just treat us worse. Well that's a thought that abuse victims everywhere experience. But these people will try to abuse us whatever we do. We shouldn't have to be scared of speaking out in strong terms against what they're doing. We shouldn't have to be scared of calling a spade a spade.

They, collectively, are abusing the patient community, and I shan't be afraid to say that any longer.

 

[Sean]

So I am on a hit list.

Unwise and repeated use of provocative inflammatory fraudulent narrative being the traditional way to avoid being on a "hit list".

 

[chrisb]

Don't be too harsh on Greenhalgh. She's merely complying with Covid restrictions and forming her own "bubble".