1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Trisha Greenhalgh on ME/CFS and Long Covid

Discussion in 'UK clinics and doctors' started by Helene, Jan 13, 2021.

  1. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
    2,857
    Location:
    betwixt and between
    Seems it always can get much worse than I initially tend to think -- so she now says she "had to" mass-block several thousand people.

    "If you or someone you know has been blocked in error, please contact me and ask for them to be reinstated. Happy (indeed, keen) to be followed by people who disagree with me. Zero tolerance for personal abuse."

    I guess it's several thousands that have been blocked in error.
     
    Last edited: Jan 26, 2021
    sebaaa, FMMM1, DokaGirl and 5 others like this.
  2. Milo

    Milo Senior Member (Voting Rights)

    Messages:
    2,108
    I have never interacted with her and i am blocked. Wow. Talk about being militant! My twitter account is not used to target people.
     
    sebaaa, Mithriel, DokaGirl and 16 others like this.
  3. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

    Messages:
    2,732
    I'm blocked too. I've never even spoken to her.

    She must've blocked all the people who are friends with someone (or several someones) who are high profile in the ME world.

    Maybe all the followers of the various charities, for instance.
     
    sebaaa, Mithriel, DokaGirl and 16 others like this.
  4. Trish

    Trish Moderator Staff Member

    Messages:
    52,310
    Location:
    UK
    I'm beginning to feel excluded. I'm not blocked yet. ;)
    I really don't care. I use twitter very little and have given up any hope of changing anyone's mind about anything with a tweet. They tend to just dig their heels in if they get lots of disagreement.
     
    sebaaa, Mithriel, FMMM1 and 14 others like this.
  5. Joeblow604

    Joeblow604 Established Member (Voting Rights)

    Messages:
    37
    Location:
    Canada
    I'm blocked from both my personal and art page. I've never commented nor do I follow her. My personal page I've barely used the last few years and my art page is for showing mine and others art, not ME advocacy.....How bizarre.
     
    sebaaa, Mithriel, DokaGirl and 14 others like this.
  6. Sarah94

    Sarah94 Senior Member (Voting Rights)

    Messages:
    3,601
    Location:
    UK
    Joh, sebaaa, Mithriel and 17 others like this.
  7. Sarah94

    Sarah94 Senior Member (Voting Rights)

    Messages:
    3,601
    Location:
    UK
    So, yikes, she's implying that several thousand people have been sending her personal abuse! When really most of the pepole that she blocked haven't even interacted with her at all.
     
    sebaaa, DokaGirl, Simbindi and 10 others like this.
  8. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,461
    Location:
    Canada
    On 2nd thought it's possible I mixed Greenhalgh here with, I think, Fiona Godlee. I really should stop relying on my memory.

    But she did publish an article gushing about a patient-led research institute and how important it is to listen to patients, a point she makes loudly with LC, so frankly the point still stands.
     
    Ariel, sebaaa, DokaGirl and 6 others like this.
  9. Milo

    Milo Senior Member (Voting Rights)

    Messages:
    2,108
    I suspect that Greenhalgh may have simply looked up certain hashtags and moved on to block all using the hashtag, not unlike the previous guy who did that too, i can’t remember who it was. I also suspect that she may have been recommended to do so by other ME- or SMC related researchers.
     
    Joh, hinterland, sebaaa and 9 others like this.
  10. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,277
    Location:
    UK West Midlands
    I was actually following her because she was doing some good posts about masks in the spring and I followed her then. I’ve unfollowed her now.
     
    sebaaa, Mithriel, DokaGirl and 6 others like this.
  11. Andy

    Andy Committee Member

    Messages:
    21,947
    Location:
    Hampshire, UK
    ahimsa, hinterland, sebaaa and 20 others like this.
  12. dave30th

    dave30th Senior Member (Voting Rights)

    Messages:
    2,246
    She suggests contacting her if you've been blocked by accident. How would I contact her when she's blocked me? She also suggests having an unblocked friend let her know and she'll unblock you if you're not really implicated. How would I find such a person, since everyone involved (except @Trish, for unknown reasons) is blocked?
     
    Hutan, ahimsa, sebaaa and 25 others like this.
  13. Leila

    Leila Senior Member (Voting Rights)

    Messages:
    1,157
    Must be. I was also blocked today, never had anything to do with her or P Garner or anyone
     
    sebaaa, FMMM1, Sly Saint and 12 others like this.
  14. cassava7

    cassava7 Senior Member (Voting Rights)

    Messages:
    985
    https://twitter.com/user/status/1354110116837150723


    https://twitter.com/user/status/1354110545339809792


    Truly the Wessely school -- throwing people with ME under the bus while passing off scientific criticism as personal abuse.
    She probably blocked everyone who uses #pwME, #MECFS, #MyalgicE etc.
     
    Ariel, sebaaa, Mithriel and 17 others like this.
  15. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

    Messages:
    3,827
    Location:
    Australia
    MEMarge, sebaaa, cfsandmore and 16 others like this.
  16. Sarah94

    Sarah94 Senior Member (Voting Rights)

    Messages:
    3,601
    Location:
    UK
    She is collectively gaslighting us all.

    But I guess I'm being "personally abusive" by just saying that. :emoji_rolling_eyes:
     
    Joh, JoanneS, JemPD and 14 others like this.
  17. Sarah94

    Sarah94 Senior Member (Voting Rights)

    Messages:
    3,601
    Location:
    UK
    And I'm sure she fucking knows what she's doing.

    She *is* behaving in a way that is anti science.

    She must know that. She knows enough about evidence based medicine to know that what she says about ME and LC is NOT evidence based.

    So yes, she *is* behaving in an up-herself way, too.

    I wouldn't presume to say that she hates us all, but she certainly doesn't appear to care about the great harm that she's causing us.
     
    Ariel, lycaena, sebaaa and 10 others like this.
  18. Sarah94

    Sarah94 Senior Member (Voting Rights)

    Messages:
    3,601
    Location:
    UK
    But we will not be silent. We will not be scared by false accusations being made about us. We think, oh we have to be nice and gracious, otherwise they'll just treat us worse. Well that's a thought that abuse victims everywhere experience. But these people will try to abuse us whatever we do. We shouldn't have to be scared of speaking out in strong terms against what they're doing. We shouldn't have to be scared of calling a spade a spade.

    They, collectively, are abusing the patient community, and I shan't be afraid to say that any longer.
     
    Ariel, JemPD, sebaaa and 10 others like this.
  19. Sean

    Sean Moderator Staff Member

    Messages:
    7,207
    Location:
    Australia
    So I am on a hit list.

    Unwise and repeated use of provocative inflammatory fraudulent narrative being the traditional way to avoid being on a "hit list".
     
    JoanneS, MEMarge, sebaaa and 9 others like this.
  20. chrisb

    chrisb Senior Member (Voting Rights)

    Messages:
    4,602
    Don't be too harsh on Greenhalgh. She's merely complying with Covid restrictions and forming her own "bubble".
     
    MEMarge, sebaaa, StefanE and 11 others like this.

Share This Page