Trisha Greenhalgh on ME/CFS and Long Covid

Adrian said:
I was concerned about a tweet where she said something about death threats being reported. This seems intended to feed into a narative of ME patients being dangerous and violent - and aimed at a group of patients. Which I think is appauling.
Click to expand...
To be fair that may well be from anti lockdown or anti mask idiots. Wouldn't surprise me at all sadly.
 
MSEsperanza said:
Did she really block individual accounts or did she just apply a function that enables only comments by people followed by the owner of the account / people mentioned in a Tweet?
Click to expand...
Actually, looking more closely, it looks like the later, at least for the forum's and my own account. I obviously can't speak for anybody else.
 
strategist said:
Click to expand...

From another thread:
MSEsperanza said:
Did she really block individual accounts or did she just apply a function that enables only comments by people followed by the owner of the account / people mentioned in a Tweet?
Click to expand...
Andy said:
Actually, looking more closely, it looks like the later, at least for the forum's and my own account. I obviously can't speak for anybody else.
Click to expand...

Edited to add: Agree though that the main point still is that she mutes erveyone likely to disagree with her.

Edited to add 2: It's even worse -- she now says she "had to" mass-block people.
 
Last edited:
I think it's a relatively moot point whether she blocks accounts completely, or just blocks anybody else other than her approved audience from a particular thread, she's still shutting out views that she doesn't agree with, no matter if they are accurate or not.
 
MSEsperanza said:
Did she really block individual accounts or did she just apply a function that enables only comments by people followed by the owner of the account / people mentioned in a Tweet?
Click to expand...
Both.
Andy said:
Actually, looking more closely, it looks like the later, at least for the forum's and my own account. I obviously can't speak for anybody else.
Click to expand...
She's been blocking individual accounts, including ME patients who haven't interacted with her.
 
Sarah94 said:
To be fair that may well be from anti lockdown or anti mask idiots. Wouldn't surprise me at all sadly.
Click to expand...
Yes, I saw on a TV news report a few days ago, where doctors and nurses are striving so hard against tremendous odds to look after so many Covid patients, and trying to keep themselves together under the strain of it all. And then at the end of their shift, as they walk out of the hospital, they have to go past protesters with banners and shouting that covid is all a hoax, and there is no threat from it. People are weird.
 
Andy said:
Just discovered that both the forum Twitter account and my, very rarely used, personal Twitter account, have been blocked by Greenhalgh. So, as has been said by others, it's obviously "Listen to the patients, but only the right type of patients".
Click to expand...
If there's one good thing that could come out of this is pushing Greenhalgh out of the LC picture. She's coming off very poorly, mass-blocking (so much for patient engagement) and tweeting with replies disabled. It's revealing how unserious these people are, so-called experts in medical evidence pushing an anecdotal case even as they dismiss hundreds of thousands of consistent complaints and basic common sense. Doesn't help to continue to deny PEM, which the LC community knows very well.

It's going to be used to push CBT/GET onto LC, I'm pretty sure of that. Lots of people will embarrass themselves very publicly. Some people will have reached the recovery point and will be OK, many will be permanently hurt and will speak out. It's a blow but ultimately it's a self-goal, it reveals the rot at the center of EBM, how biased and incompetent the entire field really is.

Frankly it's not as if the UK was ever going to contribute to the solution. If anything it may expedite the demise of the BPS model, they are clearly escalating commitment with disregard for consequences.
 
Robert 1973 said:
I didn’t want to draw attention to PG’s nonsense but I decided to quote share TG’s tweet because I think it’s important that people with long covid (quite a few of whom follow me on Twitter) know her views.

Now that there are some excellent replies under Garner’s blog I hope that will mitigate the damage he’s done. Remember you can upvote the best ones so they go to the top – I’ve upvoted Trish’s and will upvote Hutan’s excellent response when it appears.



[Edit to add that I’ve now been blocked by TG along with just about everybody else with ME/CFS it seems.]
Click to expand...


Sounds like she did it sadly.



 
Copied post

A bunch of single-issue campaigners. The irony is, I sympathise with their issue but I don't agree with *everything* they say. So I am on a hit list.

That sounds a bit unconvincing.
That isn't why she is on the hit list I think.


Has Garner's piece been edited? There seems to be a bit about people who did not get better missing, or am I imagining that?
 
Last edited by a moderator:
Esther12 said:
Sounds like she did it sadly.



Click to expand...

"Single-issue campaigners".

Let's... shut down all cancer-related stuff because it's a single issue... issue?

Why are cancer activists always talking about cancer cancer cancer?!

When you don't have a real argument...

And if her insulting indifference is being sympathetic... oof. She has been insulting to us for years, that's the exact opposite of being sympathetic. Whatever...
 
My emphasis...

rvallee said:
She just recently published an article telling people that you shouldn't block your critics and instead engage with them...

She has not clarified any of the claims. Merely said "look at other things I wrote", which all confirm this is what she believes. She has praised Wessely and Gerada for those very claims many times in the past and took the exact same swipes at us, disparaging us as rowdy and unworthy of being listened to.

So much for patient engagement and listening to patients.
Click to expand...

She appears to have changed her mind on "not blocking critics". She's now blocked thousands of people on Twitter, including many who have never heard of her and many who have never interacted with her or referred to her in any way. So, her Twitter account will be an absolutely perfect example of an echo chamber from now on. How sweet - and pointless.
 
You must log in or register to reply here.
Back
Top Bottom