livinglighter
Senior Member (Voting Rights)
Thread split from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion
For those who want to share personal experiences on this topic less publicly there is a thread in the members only area here.
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I used to think it was unique. But I am starting to think it's only the term PEM that is different. PEM could be the same constellation of symptoms that everyone with exertion intolerance suffers when they exceed their energy/exertion threshold.
Dr Gabrielle Murphy's fatigue clinic has put it in writing that ME/CFS causes exertion intolerance rather than PEM.
For those who want to share personal experiences on this topic less publicly there is a thread in the members only area here.
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Finally, I'm undecided about how unique PEM is. I think the problem is that lots of things can look like PEM, but that may not be the same thing.
I used to think it was unique. But I am starting to think it's only the term PEM that is different. PEM could be the same constellation of symptoms that everyone with exertion intolerance suffers when they exceed their energy/exertion threshold.
Dr Gabrielle Murphy's fatigue clinic has put it in writing that ME/CFS causes exertion intolerance rather than PEM.
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