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UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

Discussion in '2020 UK NICE ME/CFS Guideline' started by Science For ME, Oct 28, 2021.

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Page 46 of 52
  1. FMMM1

    FMMM1 Senior Member (Voting Rights)

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    2,652
    I'm not sure - I have no direct experience.

    However, it may be:
    • a way to generate useful views from constructive elements/participants re translating the guideline into practice;
    • a useful way to moderate the behaviours of the destructors (weirdly the medical professional bodies) - let them have another opportunity to complain and thus calm everything down a bit.
     
    FMMM1, Mar 13, 2022
    #901
    adambeyoncelowe, alktipping, Ariel and 1 other person like this.
  2. Midnattsol

    Midnattsol Moderator Staff Member

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    Midnattsol, Mar 14, 2022
    #902
    adambeyoncelowe, livinglighter, Hutan and 2 others like this.
  3. Andy

    Andy Committee Member

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    21,969
    Location:
    Hampshire, UK
    Video is now available
    Code:
    https://youtu.be/D8ayxBSsk_M

    https://www.youtube.com/watch?v=D8ayxBSsk_M






    This webinar now has its own thread:
    2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS
     
    Last edited by a moderator: Mar 19, 2022
    Andy, Mar 18, 2022
    #903
    adambeyoncelowe, EzzieD, MeSci and 14 others like this.
  4. Hutan

    Hutan Moderator Staff Member

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    Hutan, Mar 19, 2022
    #904
    mango, Mithriel, Wits_End and 3 others like this.
  5. Ravn

    Ravn Senior Member (Voting Rights)

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    Does anyone know of a concise summary of the whole loooong NICE guideline saga?
    A little history and context, plus the key changes.
    Similar to Brian Hughes' excellent video posted above but in written form?
     
    Ravn, Mar 22, 2022
    #905
    adambeyoncelowe, alktipping, Hutan and 3 others like this.
  6. Hutan

    Hutan Moderator Staff Member

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    Hutan, Mar 22, 2022
    #906
    Amw66, Snow Leopard, MEMarge and 6 others like this.
  7. Ravn

    Ravn Senior Member (Voting Rights)

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    While this blog is excellent (as always @Michiel Tack :)), my guess is it's a bit too basic for the purpose in question but I'll pass it on.
    I'm asking on behalf of someone looking for material that can be used directly or that can be easily adapted without too much work to educate some psychologists.
     
    Ravn, Mar 23, 2022
    #907
    MEMarge, MeSci and Hutan like this.
  8. Hutan

    Hutan Moderator Staff Member

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    Hutan, Mar 23, 2022
    #908
    Trish likes this.
  9. FMMM1

    FMMM1 Senior Member (Voting Rights)

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    Awesome presentation, just listened to it - calm, coherent, informed --- thanks to the Norwegian ME Association & Brian Hughes
     
    FMMM1, Mar 27, 2022
    #909
    MeSci, SNT Gatchaman, mango and 8 others like this.
  10. Sean

    Sean Moderator Staff Member

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    Is this going to put on Youtube or Vimeo?
     
    Sean, Mar 28, 2022
    #910
  11. Andy

    Andy Committee Member

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    21,969
    Location:
    Hampshire, UK
    Andy, Mar 28, 2022
    #911
    MEMarge and Sean like this.
  12. Sean

    Sean Moderator Staff Member

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    Ah, yes. Seen it. Excellent presentation.

    So many threads and videos to keep up with. :rolleyes:
     
    Sean, Mar 28, 2022
    #912
    MEMarge, Trish and Andy like this.
  13. rvallee

    rvallee Senior Member (Voting Rights)

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    rvallee, Apr 5, 2022
    #913
    bobbler, Barry, nick2155 and 3 others like this.
  14. MEMarge

    MEMarge Senior Member (Voting Rights)

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    The Stockport Service actually gets very good feedback and support from the local ME group.
     
    MEMarge, Apr 5, 2022
    #914
    adambeyoncelowe, nick2155, CRG and 5 others like this.
  15. Keela Too

    Keela Too Senior Member (Voting Rights)

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    Sad that they choose to say CFS/ME. Perhaps it is a recycled ad, but even so. :(
     
    Keela Too, Apr 5, 2022
    #915
    adambeyoncelowe, bobbler, Barry and 6 others like this.
  16. Keela Too

    Keela Too Senior Member (Voting Rights)

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    That’s good to hear.
     
    Keela Too, Apr 5, 2022
    #916
    MEMarge, adambeyoncelowe, Barry and 2 others like this.
  17. Trish

    Trish Moderator Staff Member

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    Trish, Apr 8, 2022
    #917
    MSEsperanza and Andy like this.
  18. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Jonathan Edwards, Apr 10, 2022
    #918
    MEMarge, adambeyoncelowe, bobbler and 12 others like this.
  19. JemPD

    JemPD Senior Member (Voting Rights)

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    JemPD, Apr 10, 2022
    #919
    Barry likes this.
  20. Trish

    Trish Moderator Staff Member

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    Location:
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    The link seems to have changed to more recent updates on Ukraine. The article Jonathan linked is no longer there at that link.
     
    Trish, Apr 10, 2022
    #920
    adambeyoncelowe, JemPD and Barry like this.
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