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nice guideline

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  1. Andy
    Thread

    2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS

    Copied post The Norwegian ME Association is organising a webinar with prof. Brian Hughes on the NICE guidelines. Anyone can register on zoom for...
    Thread by: Andy, Mar 18, 2022, 7 replies, in forum: Resources
  2. Jonathan Edwards
    Thread

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread. Dear Jonathan Further to the email...
    Thread by: Jonathan Edwards, Mar 14, 2022, 69 replies, in forum: 2020 UK NICE ME/CFS Guideline
  3. Amw66
    Thread

    MEAction Scotland - Stakeholder review of NICE 2021 ME/CFS Guideline to prepare for Scottish implementation - deadline 1 March 2022

    Copied from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion From what I know about MEAction Scotland, they...
    Thread by: Amw66, Feb 23, 2022, 1 replies, in forum: Advocacy Projects and Campaigns
  4. Kalliope
    Thread

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    The Lancet New NICE guideline on chronic fatigue syndrome: more ideology than science? Signe A. Flottorp, Kjetil Brurberg, Per Fink, Hans Knoop,...
    Thread by: Kalliope, Feb 11, 2022, 145 replies, in forum: 2020 UK NICE ME/CFS Guideline
  5. Noir
    Thread

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    The Danish Health Authorities rejects the new NICE guidelines and keep clinging to CBT and GET. Please sign and share this petition to help put...
    Thread by: Noir, Jan 25, 2022, 32 replies, in forum: Petitions
  6. Barry
    Thread

    Doctors with ME: Putting it into Practice: What NICE ME/CFS means for GPs

    This post has been copied and following posts moved from this thread: News from Doctors with ME _________________________...
    Thread by: Barry, Jan 15, 2022, 33 replies, in forum: Resources
  7. Andy
    Thread

    David Tuller interviews Adam Lowe about his experience as a lay member of the NICE ME/CFS guideline committee

    Split from this thread: UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion _____________ @dave30th talks to...
    Thread by: Andy, Nov 26, 2021, 45 replies, in forum: 2020 UK NICE ME/CFS Guideline
  8. Simbindi
    Thread

    UK Autism NICE guidelines

    Copied from this thread and following posts moved Is there generally any acknowledgement that autistic people might respond differently to CBT...
    Thread by: Simbindi, Nov 20, 2021, 8 replies, in forum: Other health news and research
  9. Sly Saint
    Thread

    UK RCPCH: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS) - Member briefing on new NICE guideline

    The RCPCH raised a number of issues in the consultation on the draft guideline (RCPCH’s response is on pages 742-775), including safeguarding of...
    Thread by: Sly Saint, Nov 17, 2021, 3 replies, in forum: 2020 UK NICE ME/CFS Guideline
  10. Wits_End
    Thread

    The new NICE guidelines - do they affect benefits at all?

    Just wondering whether the new NICE ME/CFS guidelines can be beneficial at all in relation to all the various UK benefit applications? Haven't...
    Thread by: Wits_End, Nov 6, 2021, 79 replies, in forum: Work, Finances and Disability Insurance
  11. Hutan
    Thread

    ME/CFS services in the United Kingdom

    (Note - this post was actually made on 4 Jul 2022) Note from the moderation team: This thread is for posts about ME/CFS services in the United...
    Thread by: Hutan, Nov 2, 2017, 503 replies, in forum: UK clinics and doctors
  12. Hutan
    Thread

    The trial endpoint issue (135 weeks)

    I thought it might be useful for us to get to grips with this issue. The GET defenders have said that NICE chose the trial endpoints it looked at...
    Thread by: Hutan, Nov 2, 2021, 12 replies, in forum: 2020 UK NICE ME/CFS Guideline
  13. ProudActivist
    Thread

    NHS England web pages on ME/CFS updated 29th October 2021 (NICE publication date)

    I was looking at the MS page in the NHS website yesterday and noticed that it has a clear link to a guide for accessing care services at the...
    Thread by: ProudActivist, Feb 29, 2020, 74 replies, in forum: UK clinics and doctors
  14. Science For ME
    Thread

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS...
    Thread by: Science For ME, Oct 28, 2021, 232 replies, in forum: 2020 UK NICE ME/CFS Guideline
  15. Science For ME
    Thread

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    This public thread is for general discussion of the much anticipated NICE 2021 ME/CFS Guideline including media and social media responses and...
    Thread by: Science For ME, Oct 28, 2021, 996 replies, in forum: 2020 UK NICE ME/CFS Guideline
  16. Sly Saint
    Thread

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic...
    Thread by: Sly Saint, Oct 20, 2021, 387 replies, in forum: 2020 UK NICE ME/CFS Guideline
  17. Adam pwme
    Thread

    New Video: NICE pause ME/CFS guideline

    [MEDIA]
    Thread by: Adam pwme, Oct 18, 2021, 13 replies, in forum: General Advocacy Discussions
  18. Sly Saint
    Thread

    Trial By Error: More Science-as-Promotion from the GET Campaigners

    David Tuller Sept 14 2021 Professor Trudie Chalder, Professor Peter White and like-minded members of the CBT/GET ideological brigades have...
    Thread by: Sly Saint, Sep 15, 2021, 9 replies, in forum: General ME/CFS news
  19. Science For ME
    Thread

    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    The following letter was sent by email by the S4ME management committee to NICE to express our concerns and ask for clarifications about the...
    Thread by: Science For ME, Aug 31, 2021, 46 replies, in forum: 2020 UK NICE ME/CFS Guideline
  20. Dx Revision Watch
    Thread

    United Kingdom: Bath paediatric CFS clinic (Dr Phil Hammond)

    This post is copied and following posts moved from this thread: NICE pauses publication of updated ME/CFS guideline hours before publication was...
    Thread by: Dx Revision Watch, Aug 22, 2021, 228 replies, in forum: UK clinics and doctors
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