1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Towards an institute for patient-led research - Trish Greenhalgh, BMJ blog November 12, 2019

Discussion in 'Research methodology news and research' started by Sly Saint, Nov 13, 2019.

Tags:
Page 3 of 3
  1. Caroline Struthers

    Caroline Struthers Senior Member (Voting Rights)

    Messages:
    834
    Location:
    Oxford UK
    OK. Well I posted a comment in agreement the one that questioned whether lack of equipoise was only a problem with patients, and it didn't get through the approval stage (presumably because I mentioned PACE), so I posted another one saying I was keen to join the discussion, but having trouble! I expect that will not be posted either!
     
    Caroline Struthers, Nov 18, 2019
    #41
    Peter Trewhitt, rvallee and Andy like this.
  2. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,469
    Location:
    Canada
    I'll give it another day and re-submit tomorrow. Still pending. Weird how one of the comments is timestamped as 3 days ago yet only appeared today.
     
    rvallee, Nov 18, 2019
    #42
    Lucibee, Peter Trewhitt and Caroline Struthers like this.
  3. Caroline Struthers

    Caroline Struthers Senior Member (Voting Rights)

    Messages:
    834
    Location:
    Oxford UK
    Sure enough - it's not been posted. So much for free speech eh?!
     
    Caroline Struthers, Nov 19, 2019
    #43
    Joh, rvallee, NelliePledge and 1 other person like this.
  4. Hoopoe

    Hoopoe Senior Member (Voting Rights)

    Messages:
    5,255
    "patient involvement" that does not include dissenting voices is just a way to let researchers deflect criticism of insufficient patient involvement while continuing to do exactly what patients don't want.
     
    Hoopoe, Nov 19, 2019
    #44
    Joh, ScottTriGuy, Sean and 12 others like this.
  5. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

    Messages:
    3,511
    Location:
    Belgium
    Well said.
     
    ME/CFS Skeptic, Nov 19, 2019
    #45
    Caroline Struthers and rvallee like this.
  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,588
    Location:
    UK
    Sly Saint, Nov 20, 2019
    #46
    Sean, rvallee, JohnM and 1 other person like this.
  7. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    12,469
    Location:
    Canada
    Re-submitted 3 days ago. Both still left at "pending". Oh, well.
     
    rvallee, Nov 22, 2019
    #47
    Esther12 likes this.
Page 3 of 3

Share This Page