Solve ME and #MEAction announce Advocacy Week 2026, March 23 - 27 (USA)

[ahimsa]

Solve ME and #MEAction are working together on a medical education initiative for Advocacy Week 2026. This is scheduled for March 23 - 27.

I've posted about it on this thread but I'm crossposting here in the Advocacy Projects forum.

Details here:

Registration Open for ME/CFS Advocacy Week 2026 - Solve ME/CFS Initiative

This year, we'll foster relationships with state-level patient safety and medical boards to encourage them to push for inclusion of ME/CFS in medical school curriculum and on national qualifying medical exams.

solvecfs.org

They need volunteers to help with this project, sign up here:

ME/CFS Advocacy Week 2026 Participant Sign-up Form

This year, Solve M.E. and #MEAction are partnering together to move ME/CFS from “optional knowledge” to “standardized knowledge” in clinical care. Dates: March 23-27, 2026 We will be engaging state-level patient safety, regulatory, and public health officials about the lack of standardized...

docs.google.com

I've signed up myself - if another forum member signs up please feel free to contact me.

 

[Dolphin]

MEAction’s Facebook:

Advocacy Week 2026 starts on Monday - March 23rd! This year, Solve MECFS Initiative and The #MEAction Network are partnering on a medical education initiative. We're working with the systems that shape what medical providers in America learn!

Register here: https://ow.ly/miky50YvzGf

Check out our NEW Participant Toolkit: https://ow.ly/XYsh50YvzGm

We’ll be engaging with patient safety agencies, State Medical Boards, and Chief Medical Officers and asking them to use their institutional authority to champion ME/CFS.

Our ultimate goal is to ensure ME/CFS appears on national medical licensing exams, but this Advocacy week we are focusing on building the relationships that will get us there.

The week is built around writing letters, collecting signatures for community sign-on letters, and personal storytelling - things you can do at your own pace, from home, with templates provided and ready to go.

Your participation makes all the difference! Thank you!

#pwME #MyalgicEncephalomyelitis #MECFS #Advocacy

 

[ahimsa]

FYI, there are two versions of the Advocacy Week participant toolkit available.

Participant toolkit, online version (Canva)​

​

Participant toolkit, printable version (PDF)​

Sometimes it's easier for me to view the PDF version and print out certain sections on paper.

 

[ahimsa]

In case any of our forum members are on social media and want to help spread the word about Advocacy Week:

Bluesky post from #MEAction

Older Bluesky post (March 11) from SolveME

Facebook post from #MEAction

Mastodon post from me

 

[ahimsa]

Another update from Solve ME that gives an overview of Advocacy Week this year:

Advocacy Week Starts Monday and This Year is Different - Solve ME/CFS Initiative

For Advocacy Week 2026, we're working with the systems that shape what medical providers in America learn.

solvecfs.org

Advocacy Week 2026 starts this Monday, March 23rd, and this year we’re doing something different.

Instead of meeting with legislators, we’re working with the systems that shape what medical providers in America learn.

We’ll be engaging with patient safety agencies, State Medical Boards, and Chief Medical Officers and asking them to use their institutional authority to champion ME/CFS. Our ultimate goal is to ensure ME/CFS appears on national medical licensing exams, but this week we are focusing on building the relationships that will get us there.

The week is built around writing letters, collecting signatures for community sign-on letters, and personal storytelling – things you can do at your own pace, from home, with templates provided and ready to go.

The Participant Toolkit (scroll up to see links in earlier posts on this thread) has more details.

Reminder: Volunteers must register to get a link to the online kickoff session scheduled for Monday, March 23, noon Pacific / 3 PM Eastern.

Use this link to register:

ME/CFS Advocacy Week 2026 Participant Sign-up Form

This year, Solve M.E. and #MEAction are partnering together to move ME/CFS from “optional knowledge” to “standardized knowledge” in clinical care. Dates: March 23-27, 2026 We will be engaging state-level patient safety, regulatory, and public health officials about the lack of standardized...

docs.google.com

This session will be recorded for later viewing.