1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th July 2024 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Searching for papers about online ME/CFS patient communities

Discussion in 'General ME/CFS discussion' started by Kalliope, Sep 24, 2022.

Tags:
  1. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,402
    Location:
    Norway
    Does anyone know of papers exploring online ME patient communities? Don't know quite where to start..
     
    Kalliope, Sep 24, 2022
    #1
    Snow Leopard, rainy, Andy and 5 others like this.
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,656
    Location:
    UK
    Sly Saint, Sep 24, 2022
    #2
    Wilhelmina Jenkins, Andy, RedFox and 3 others like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,402
    Location:
    Norway
    Kalliope, Sep 24, 2022
    #3
    Andy, Hutan, Peter Trewhitt and 1 other person like this.
  4. Lou B Lou

    Lou B Lou Senior Member (Voting Rights)

    Messages:
    569
    Thank You @Sly Saint - just what I was looking for too.
     
    Lou B Lou, Sep 24, 2022
    #4
    Peter Trewhitt, Hutan and Kalliope like this.
  5. Hutan

    Hutan Moderator Staff Member

    Messages:
    28,031
    Location:
    Aotearoa New Zealand
    Hutan, Sep 24, 2022
    #5
    Andy, Kalliope, Lou B Lou and 2 others like this.
  6. Hutan

    Hutan Moderator Staff Member

    Messages:
    28,031
    Location:
    Aotearoa New Zealand
    Hutan, Sep 24, 2022
    #6
    Andy, Kalliope, Lou B Lou and 2 others like this.
  7. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,402
    Location:
    Norway
    Thank you so much, @Hutan
    The more papers, the better :)
     
    Kalliope, Sep 25, 2022
    #7
    Peter Trewhitt, Andy and Hutan like this.
  8. Andy

    Andy Committee Member

    Messages:
    22,428
    Location:
    Hampshire, UK
    Not that I have any suggestions to give at this moment, but do you specifically need papers about ME/CFS communities or would papers about other communities be helpful as well?
     
    Andy, Sep 25, 2022
    #8
    Peter Trewhitt and Kalliope like this.
  9. Hutan

    Hutan Moderator Staff Member

    Messages:
    28,031
    Location:
    Aotearoa New Zealand
    Hutan, Sep 25, 2022
    #9
    Peter Trewhitt, Andy and Kalliope like this.
  10. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,402
    Location:
    Norway
    I was thinking primarily of ME/CFS communities, but other papers on patient online communities could be helpful too
     
    Kalliope, Sep 25, 2022
    #10
    Peter Trewhitt and Andy like this.

Share This Page