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peer support

  1. Andy
    Thread

    Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review 2023 Mullard, Greenhalgh et al

    Highlights • Co-produced peer support can help people living with Long COVID. • Increasing the use of effective peer support may reduce health...
    Thread by: Andy, Jan 30, 2023, 24 replies, in forum: Long Covid research
  2. Milo
    Thread

    "My Fibro Family!" A qualitative analysis of facebook fibromyalgia support groups' discussion content (2022) Crump and LaChapelle

    ABSTRACT Background Fibromyalgia (FM) is a diagnostically controversial syndrome characterized by chronic widespread pain, fatigue, sleep...
    Thread by: Milo, Dec 13, 2022, 7 replies, in forum: 'Conditions related to ME/CFS' news and research
  3. Andy
    Thread

    Digital peer-supported self-management, co-designed by people living with Long COVID: a mixed methods proof-of-concept study 2022 Wright et al

    ABSTRACT Background: There are around 1.3million people in the UK living with the devastating psychological, physical and cognitive consequences...
    Thread by: Andy, Sep 28, 2022, 2 replies, in forum: Long Covid research
  4. Kalliope
    Thread

    Searching for papers about online ME/CFS patient communities

    Does anyone know of papers exploring online ME patient communities? Don't know quite where to start..
    Thread by: Kalliope, Sep 24, 2022, 9 replies, in forum: General ME/CFS discussion
  5. Andy
    Thread

    Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study, 2022, Day

    ABSTRACT Background: Long COVID is an emerging public health concern. A growing number of individuals are experiencing prolonged multifaceted...
    Thread by: Andy, Apr 26, 2022, 2 replies, in forum: Long Covid research
  6. Andy
    Thread

    Using Communities of Practice Theory to Understand the Crisis of Identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), 2021, Murray

    Abstract Objective To explore the crisis of identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) through the lens of...
    Thread by: Andy, Dec 7, 2021, 22 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Andy
    Thread

    Impacts of online support groups on quality of life, and perceived anxiety and depression in those with ME/CFS: a survey, 2021, Morehouse et al

    ABSTRACT Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition that can negatively affect physical...
    Thread by: Andy, Jul 11, 2021, 1 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Andy
    Thread

    Making sense of symptoms, clinicians & systems: a qualitative evaluation of a facilitated support group for patients with [MUS], 2021, Marcinow et al

    Abstract Objectives Health services to date have inadequately addressed the physical and mental health needs of patients with medically...
    Thread by: Andy, Jul 3, 2021, 3 replies, in forum: Other psychosomatic news and research
  9. Sly Saint
    Thread

    Podcast: Finding My People - Online Communities with Jenny McGibbon and Stefanie Grant

    Having a chronic illness as a young adult can be isolating. Healthy peers don’t understand and the medical world feels designed for older people....
    Thread by: Sly Saint, May 1, 2021, 0 replies, in forum: General disability topics and advocacy
  10. ME/CFS Skeptic
    Thread

    Comparison of chronic fatigue syndrome/myalgic encephalopathy with other disorders: an observational study by Knudsen et al. 2012

    Abstract Objectives To examine the level of activity in online discussion forums for chronic fatigue syndrome/myalgic encephalopathy (CFS/ME)...
    Thread by: ME/CFS Skeptic, Mar 16, 2021, 25 replies, in forum: ME/CFS research
  11. Tom Kindlon
    Thread

    Using the internet to cope with chronic fatigue syndrome/myalgic encephalomyelitis in adolescence: a qualitative study (Brigden et al., 2018)

    Free full text: https://bmjpaedsopen.bmj.com/content/2/1/e000299 Original article Using the internet to cope with chronic fatigue...
    Thread by: Tom Kindlon, Sep 3, 2018, 40 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Woolie
    Thread

    2008: Electronic Support Groups, Patient-Consumers, and Medicalization: The Case of Contested Illness, Barker

    One for those who enjoy being wound up by this stuff. The main example they discuss is fibro, not ME, but that's unlikely to reduce your outrage....
    Thread by: Woolie, Jan 13, 2018, 15 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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