Highlights • Co-produced peer support can help people living with Long COVID. • Increasing the use of effective peer support may reduce health...
ABSTRACT Background Fibromyalgia (FM) is a diagnostically controversial syndrome characterized by chronic widespread pain, fatigue, sleep...
ABSTRACT Background: There are around 1.3million people in the UK living with the devastating psychological, physical and cognitive consequences...
Does anyone know of papers exploring online ME patient communities? Don't know quite where to start..
ABSTRACT Background: Long COVID is an emerging public health concern. A growing number of individuals are experiencing prolonged multifaceted...
Abstract Objective To explore the crisis of identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) through the lens of...
ABSTRACT Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition that can negatively affect physical...
Abstract Objectives Health services to date have inadequately addressed the physical and mental health needs of patients with medically...
Having a chronic illness as a young adult can be isolating. Healthy peers don’t understand and the medical world feels designed for older people....
Abstract Objectives To examine the level of activity in online discussion forums for chronic fatigue syndrome/myalgic encephalopathy (CFS/ME)...
Free full text: https://bmjpaedsopen.bmj.com/content/2/1/e000299 Original article Using the internet to cope with chronic fatigue...
One for those who enjoy being wound up by this stuff. The main example they discuss is fibro, not ME, but that's unlikely to reduce your outrage....
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