1. Guest, read the 'News in Brief' post for w/c 17th June by clicking this link.
    Dismiss Notice

2008: Electronic Support Groups, Patient-Consumers, and Medicalization: The Case of Contested Illness

Discussion in 'PsychoSocial ME/CFS Research' started by Woolie, Jan 13, 2018.

Tags:
  1. Woolie

    Woolie Committee member

    Messages:
    2,168
    Likes Received:
    13,467
    One for those who enjoy being wound up by this stuff. The main example they discuss is fibro, not ME, but that's unlikely to reduce your outrage.

    It is interesting that this sociologist is unquestioningly buying into the assumption that those with contested illness are not really ill at all, just medicalising their completely normal symptoms. Its not just the psyc's and doctors then.

    The paper is alarming widely cited (+200 citations).

    Electronic Support Groups, Patient-Consumers, and Medicalization: The Case of Contested Illness*
    KRISTIN K. BARKER
    Journal of Health and Social Behavior 2008, Vol 49 (March):20–36

    http://www.aleciashepherd.com/writings/articles/other/Electronic Support Groups.pdf

    Some excerpts:
     
    Last edited: Jan 13, 2018
    Woolie, Jan 13, 2018
    #1
    Dolphin, Valentijn, Andy and 4 others like this.
  2. Samuel

    Samuel Senior Member (Voting Rights)

    Messages:
    288
    Likes Received:
    1,388
    tsdr but same name as:

    http://ojs-seed.neagen.it/index.php/rhc/article/view/280/html

    Reviews in Health Care 2012; 3(4): 257-270
    Diseases
    Narrative review

    Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
    Leonard A. Jason 1, Kristen Barker 1, Abigail Brown 1
    1 Center for Community Research, DePaul University, Chicago, IL, USA

    Corresponding author
    Leonard A. Jason, Ph.D. Director, Center for Community Research,
    DePaul University, 990 W. Fullerton Ave., Chicago, IL 60614
     
    Samuel, Jan 13, 2018
    #2
    Woolie likes this.
  3. Woolie

    Woolie Committee member

    Messages:
    2,168
    Likes Received:
    13,467
    Interesting find. I'm hoping the slightly different spelling means its not the same person:
    I suppose if it is, then she changed her mind. That's encouraging.
     
    Woolie, Jan 13, 2018
    #3
    Trish and Samuel like this.
  4. Samuel

    Samuel Senior Member (Voting Rights)

    Messages:
    288
    Likes Received:
    1,388
    my bad for not noticing the name difference.
     
    Samuel, Jan 13, 2018
    #4
    Trish and Woolie like this.
  5. petrichor

    petrichor Senior Member (Voting Rights)

    Messages:
    106
    Likes Received:
    401
    Well, sociologists don't know anything about medicine, and there's loads of questionable theories that float around sociology. Sociologists really get off on any theories they make that sound mildly plausible, and really have a thing for trying to make themselves relevant.
     
    petrichor, Jan 13, 2018
    #5
    Dolphin, Solstice, Trish and 2 others like this.
  6. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    1,728
    Likes Received:
    10,045
    Sounds similar to some psychiatrists
     
    Amw66, Jan 13, 2018
    #6
    Solstice, Trish, Cheshire and 1 other person like this.
  7. TiredSam

    TiredSam Moderator Staff Member

    Messages:
    5,688
    Likes Received:
    27,817
    Location:
    Germany
    That'll be me.

    When I was a university student, in the law library toilet someone had written on the toilet paper dispenser "Sociology degrees, please take one". After three years of wiping my arse on sociology degrees (I've since switched to the Guardian), I tried to give it a second chance later in life by listening to podcasts of radio 4's "Thinking Allowed" on my drive to work, but every time they interviewed a sociologist it seemed to be a woman with a speech impediment trying to use as many long words as possible and it was getting so pythonesque that I had to stop listening before I crashed my car laughing.

    From this esteemed text we have:

    Passing over the fact that sociologists seem to believe that all they have to do is frequently quote each other for some authoritative body of knowledge to magically come into existence, I look forward to the day when the above can be rewritten as:

     
    TiredSam, Jan 13, 2018
    #7
    Dolphin, Solstice, Subtropical Island and 6 others like this.
  8. Luther Blissett

    Luther Blissett Senior Member (Voting Rights)

    Messages:
    1,678
    Likes Received:
    12,825
    They like to study broad chauvinistic declarations.

    Sometimes they like to call these theories stereotypes. They study the harm stereotypes cause.
     
    Luther Blissett, Jan 13, 2018
    #8
  9. Woolie

    Woolie Committee member

    Messages:
    2,168
    Likes Received:
    13,467
    :rofl::rofl::rofl::rofl:!!!

    LOVE it when people support their statements by mentioning some other person who believes as they do.

    "Alien abductions occur frequently (Ted Smith from down the road, Travis Walton, Elvis Presley)."
     
    Woolie, Jan 13, 2018
    #9
    Solstice, Subtropical Island, Trish and 2 others like this.
  10. Cheshire

    Cheshire Moderator Staff Member

    Messages:
    1,748
    Likes Received:
    13,223
    Most of the sociology texts talking about ME I've read so far were blindly accepting the "no biological factor there" paradigm, hence patients are trying to fabricate a disease for psychosocial reasons. They're supposed to uncover the social factors of everything but they do not question at any moment the BPS view, which is taken as some kind of revealed truth exempt from human bias.

    But if you think socilogy's been doing poorly, have a go at semiotics:
    Medically unexplained physical symptoms, misunderstood and wrongly treated?
    A semiotic perspective on chronic pain
    http://www.tandfonline.com.sci-hub.tw/doi/abs/10.1080/09593985.2017.1422164?journalCode=iptp20

    Right from the start, in the abstract, you've got this gem:
    Then...
    Can someone think of something crappiest than that? (well, there's still neuropsychoanalysis...)

    And I could go on...

    Why on earth a semeotician decided one day that they could be of use to explain medical problems is beyond me.

    These people are not self-proclaimed gurus, they're academics. (Bærum Fysikalske Institutt, Sandvika, Norway; b Institute of Health and Society, University of Oslo, NO, Oslo) How is this thing happening?
     
    Cheshire, Jan 13, 2018
    #10
    Snow Leopard, Trish, Woolie and 1 other person like this.
  11. Woolie

    Woolie Committee member

    Messages:
    2,168
    Likes Received:
    13,467
    A lot of sociology around this area is much more assumption free. They don't make any stand on what the truth is around causation, they just describe the social phenomena surrounding patienthood - invalidation, the search for meaning, seeking permission to occupy the sick role, etc.
     
    Last edited: Jan 13, 2018
    Woolie, Jan 13, 2018
    #11
    Dolphin, Subtropical Island, Trish and 1 other person like this.
  12. chrisb

    chrisb Senior Member (Voting Rights)

    Messages:
    1,818
    Likes Received:
    12,648
    It is hard to avoid the conclusion that, potentially, the most important tool for those advocating a biopsychosocial approach to anything would be a mirror.
     
    chrisb, Jan 13, 2018
    #12
    Solstice, Subtropical Island, Sean and 2 others like this.
  13. Woolie

    Woolie Committee member

    Messages:
    2,168
    Likes Received:
    13,467
    F****adoodledoo!
     
    Woolie, Jan 13, 2018
    #13
    Trish, TiredSam and Cheshire like this.
  14. Trish

    Trish Moderator Staff Member

    Messages:
    13,135
    Likes Received:
    72,076
    Location:
    UK
    I find it very hard not to wish a bad case of real chronic pain on the arseholes who choose to gaslight us in this way. How quickly they would change their tune.

    Copied from the sections @Woolie quoted:
    Medically unexplained is bad enough, but at face value, a statement of fact at the time the patient arrives at the clinic. Medically unexplainable is a whole new level of denial. Is the author God?
     
    Trish, Jan 13, 2018
    #14
    Dolphin, Solstice, Subtropical Island and 6 others like this.
  15. large donner

    large donner Senior Member (Voting Rights)

    Messages:
    934
    Likes Received:
    7,918
    Exactly.

    Its laughable how the medical profession is currently priding themselves on how many people they are unable to diagnose and not only that they keep wanting to put that figure out everywhere.

    Can you imagine Kwik Fit advertising that 30% of their visitors cars remain unfixed!
     
    Last edited: Jan 13, 2018
    large donner, Jan 13, 2018
    #15
    Solstice likes this.
  16. Valentijn

    Valentijn Not a moderator

    Messages:
    2,275
    Likes Received:
    13,232
    Location:
    Netherlands
    They're listed as being at different universities as well, in different parts of the country.
     
    Valentijn, Jan 13, 2018
    #16
    Solstice and Trish like this.

Share This Page