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  1. Andy
    Thread

    Effects of a Telerehabilitation Program in Women with Fibromyalgia at 6-Month Follow-Up: Secondary Analysis... 2022 Hernando-Garijo et al

    Abstract (1) Background: Telerehabilitation allows health professionals to monitor patients without face-to-face contact. The objective was to...
    Thread by: Andy, Dec 24, 2022, 2 replies, in forum: 'Conditions related to ME/CFS' news and research
  2. Milo
    Thread

    "My Fibro Family!" A qualitative analysis of facebook fibromyalgia support groups' discussion content (2022) Crump and LaChapelle

    ABSTRACT Background Fibromyalgia (FM) is a diagnostically controversial syndrome characterized by chronic widespread pain, fatigue, sleep...
    Thread by: Milo, Dec 13, 2022, 7 replies, in forum: 'Conditions related to ME/CFS' news and research
  3. Andy
    Thread

    Digital peer-supported self-management, co-designed by people living with Long COVID: a mixed methods proof-of-concept study 2022 Wright et al

    ABSTRACT Background: There are around 1.3million people in the UK living with the devastating psychological, physical and cognitive consequences...
    Thread by: Andy, Sep 28, 2022, 2 replies, in forum: Long Covid research
  4. Kalliope
    Thread

    Searching for papers about online ME/CFS patient communities

    Does anyone know of papers exploring online ME patient communities? Don't know quite where to start..
    Thread by: Kalliope, Sep 24, 2022, 9 replies, in forum: General ME/CFS discussion
  5. Andy
    Thread

    Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study, 2022, Day

    ABSTRACT Background: Long COVID is an emerging public health concern. A growing number of individuals are experiencing prolonged multifaceted...
    Thread by: Andy, Apr 26, 2022, 2 replies, in forum: Long Covid research
  6. Ian NeuroProActive
    Thread

    UK company Neuro ProActive

    Dear all, It’s great to be part of this forum. Neuro ProActive is a web and app based, therapist led digital platform for the rehabilitation and...
    Thread by: Ian NeuroProActive, Mar 20, 2022, 36 replies, in forum: UK clinics and doctors
  7. Andy
    Thread

    Using Communities of Practice Theory to Understand the Crisis of Identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), 2021, Murray

    Abstract Objective To explore the crisis of identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) through the lens of...
    Thread by: Andy, Dec 7, 2021, 22 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Sly Saint
    Thread

    Effectiveness of Internet-Based Cognitive Behavior Therapy (Fatigue in Teenagers on the Internet) for Adolescents With CFS, 2021, Knoop et al

    Effectiveness of Internet-Based Cognitive Behavior Therapy (Fatigue in Teenagers on the Internet) for Adolescents With Chronic Fatigue Syndrome in...
    Thread by: Sly Saint, Aug 14, 2021, 5 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Andy
    Thread

    Impacts of online support groups on quality of life, and perceived anxiety and depression in those with ME/CFS: a survey, 2021, Morehouse et al

    ABSTRACT Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition that can negatively affect physical...
    Thread by: Andy, Jul 11, 2021, 1 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Sly Saint
    Thread

    Podcast: Finding My People - Online Communities with Jenny McGibbon and Stefanie Grant

    Having a chronic illness as a young adult can be isolating. Healthy peers don’t understand and the medical world feels designed for older people....
    Thread by: Sly Saint, May 1, 2021, 0 replies, in forum: General disability topics and advocacy
  11. Andy
    Thread

    Guided graded exercise self-help for chronic fatigue syndrome: Long term follow up & cost-effectiveness following the GETSET trial, 2021, Clark et al

    Highlights • Guided graded exercise self-help (GES) can lead to sustained improvement in patients with chronic fatigue syndrome. • There was no...
    Thread by: Andy, Apr 5, 2021, 46 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  12. ME/CFS Skeptic
    Thread

    Comparison of chronic fatigue syndrome/myalgic encephalopathy with other disorders: an observational study by Knudsen et al. 2012

    Abstract Objectives To examine the level of activity in online discussion forums for chronic fatigue syndrome/myalgic encephalopathy (CFS/ME)...
    Thread by: ME/CFS Skeptic, Mar 16, 2021, 25 replies, in forum: ME/CFS research
  13. Gecko
    Thread

    Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm

    Preventing Post-Exertional Malaise – Pacing and Energy Management in ME/CFS An online talk by Staci Stevens and Dr Mark Van Ness of the Workwell...
    Thread by: Gecko, Oct 14, 2020, 24 replies, in forum: General ME/CFS news
  14. Kalliope
    Thread

    UK - NHS England online tool and clinics for long Covid.

    Moderator note: This post has been moved from this thread and following posts are a mix of moved posts and posts from a new thread....
    Thread by: Kalliope, Jul 5, 2020, 290 replies, in forum: Long Covid news
  15. Subtropical Island
    Thread

    Easy ways to donate time

    I’m always looking for purpose in my life. For me that’s a way to contribute. My ability is very fluctuating. Sometimes I can do a lot and think...
    Thread by: Subtropical Island, Feb 16, 2020, 12 replies, in forum: Home adaptations, mobility and personal care
  16. Dolphin
    Thread

    Implementing guided ICBT for chronic pain and fatigue: A qualitative evaluation among therapists and managers, 2019, Knoop et al

    Free full text: https://www.sciencedirect.com/science/article/pii/S2214782919300910 Internet Interventions Available online 31 October 2019,...
    Thread by: Dolphin, Nov 5, 2019, 3 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  17. RoseE
    Thread

    Online Program for School Nurses - Learn how ME/CFS keeps youth from attending school

    Has anyone done /reviewed the online program from the Northeastern University School of Nursing? Wondering if we can recommend it (in NZ). (and...
    Thread by: RoseE, Sep 8, 2019, 4 replies, in forum: General ME/CFS news
  18. Andy
    Thread

    Internet-Based Cognitive Behavioral Therapy in Stepped Care for CFS: Randomized Noninferiority Trial, 2019, Knoop et al

    Abstract BACKGROUND: Internet-based cognitive behavioral therapy (I-CBT) leads to a reduction of fatigue severity and disability in adults with...
    Thread by: Andy, Mar 16, 2019, 6 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Clara
    Thread

    PACE as a teaching tool - Discuss PACE in "Design and Interpretation of Clinical Trials" free online course by Johns Hopkins University on Coursera

    Ron Davis said, “I would like to use it as a teaching tool, to have medical students read it and ask them, ‘How many things can you find wrong...
    Thread by: Clara, Jul 11, 2018, 18 replies, in forum: Advocacy Projects and Campaigns
  20. Sly Saint
    Thread

    BABCP Annual Conference and Workshops

    Annual Conference & Workshops 2018 Strathclyde University, Glasgow 17th - 20th July 2018 http://babcpconference.com/ A process of change:...
    Thread by: Sly Saint, Jun 14, 2018, 16 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
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