I was one of the subjects of this study. I was on the "Adaptive Pacing" pathway. My memory isn't great but i'm sure i was told not to speak to others with the condition. Maybe neccessary for the trial, but also meant i was isolated for a long time and suffered as a result.
https://bsky.app/profile/rbmdm.bsky.social/post/3lakeen34fk2o
It's probably possible to find me in the results as the walking test, both before and after i walked loads, as i was relatively fit, with my health up and down and so i rested up before appointments. It didn't take into account me falling asleep on the trains home or the days that followed.
https://bsky.app/profile/rbmdm.bsky.social/post/3lakei673bc2o