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News about Long Covid including its relationship to ME/CFS 2020 to 2021

Discussion in 'Long Covid news' started by Hip, Jan 21, 2020.

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  1. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Not sure if this is the best thread, but so sad to read about how teachers who have been infected with Covid-19 and haven't recovered are treated..

    iNews Teachers suffering from long Covid plan to quit profession 'in droves' over 'shocking' treatment

    quote:

    “Some feel there is a lot of resentment from co-workers about the time they have been sick.

    “I personally felt there was a lot of aggression towards me and I heard some of my colleagues referring to me as ‘a lazy bitch’ and saying they didn’t believe long Covid existed.

    “There was a shortage of teachers before, so it will be disastrous if there is a mass exodus of teachers as a result of Covid.”

    One teacher working in the North West told how she contracted Covid-19 in October 2020 and it left her feeling asthmatic and fatigued.

    When she returned to school, it was recommended she did a phased return as she was sleeping at least 18 hours a day. “This resulted in staff saying things like, ‘I didn’t have this much time off when I had cancer,’ or, ‘My husband didn’t have this much time off when he had heart surgery.’”
     
    rainy, cfsandmore, rvallee and 11 others like this.
  2. Trish

    Trish Moderator Staff Member

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    So sad. I had similar disbelief about my ME when I was teaching.
     
    Missense, Fizzlou, rainy and 12 others like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

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    So sorry to hear that @Trish
     
    Missense, rainy, cfsandmore and 6 others like this.
  4. Three Chord Monty

    Three Chord Monty Senior Member (Voting Rights)

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    https://twitter.com/user/status/1476482698751397897
     
  5. Three Chord Monty

    Three Chord Monty Senior Member (Voting Rights)

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    I added tweet threads about the preprint of the autopsy study that found evidence of persistent Covid infection in various areas of the body in last week's thread that linked directly to that study. Amy Proal tweeted out a lengthy thread about it, and then she followed up with this:

    https://twitter.com/user/status/1474139384165376005
     
  6. Amw66

    Amw66 Senior Member (Voting Rights)

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    hibiscuswahine, Michelle and Kalliope like this.
  7. mango

    mango Senior Member (Voting Rights)

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    Opinion piece in the journal of the Swedish Medical Association, by ME doctor/researcher (bps) Indre Bileviciute-Ljungar and Kristian Borg, also a rehab specialist.

    "Everyone affected by post-covid should be offered multimodal specialised rehabilitation. We also call for specific investments in rehabilitation research." ME is mentioned.

    Alla patienter med postcovid bör erbjudas multimodal rehabilitering
    https://lakartidningen.se/opinion/d...covid-bor-erbjudas-multimodal-rehabilitering/

    Google Translate, English
     
    hibiscuswahine, Kalliope and sebaaa like this.
  8. Mij

    Mij Senior Member (Voting Rights)

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    Only high risk people in high risk settings will qualify for publicly funded PCR tests here. Otherwise, if you have symptoms and are fully vaccinated, assume you have it and isolate for 5 days

    Canada’s new guidelines are going to make it impossible for people who become disabled from LC to get benefits and thrown into the psychosomatic bin.
     
  9. rvallee

    rvallee Senior Member (Voting Rights)

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    I've been noticing a growing trend in long haulers and it's how returning to normal activity, especially exercise, is by far what most attribute as the cause of their chronic illness, so many wonder if they hadn't done that whether they would still be ill. It doesn't mean that it's 100% correct but it's become so dominant over time it's impossible to ignore. Especially as it's consistent with what with know of ME.

    This is especially important as there is still a trend in health care services to not just continue with the exercise rehabilitation, but of trying to target it as soon as possible, which if evidence suggests is the exact worst thing to do.

    The trend has been noticeable for a while but is really growing as people share their experience, especially the cycles of relapses many have gone through.
     
    cfsandmore, Helene, EzzieD and 15 others like this.
  10. Mij

    Mij Senior Member (Voting Rights)

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    I didn't exercise or push myself for 7-8 years during PVFS, when I started feeling better I exercised and got PEM. So resting, taking it easy didn't prevent ME. I could have rested for 20 more years and my guess is that the minute I went over I would experience delayed PEM.
     
  11. rvallee

    rvallee Senior Member (Voting Rights)

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  12. chrisb

    chrisb Senior Member (Voting Rights)

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    When did Fauci come to hold the view that all ME/CFS was always a post viral syndrome? In the 1980s and 90s he always gave the impession that he thought it was a psychiatric problem when he supported Straus.

    EDIT It reminds one that only the future is certain. The past is always changing.
     
    Last edited: Jan 1, 2022
  13. Dolphin

    Dolphin Senior Member (Voting Rights)

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  14. Amw66

    Amw66 Senior Member (Voting Rights)

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  15. Amw66

    Amw66 Senior Member (Voting Rights)

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    Ash, MEMarge, Kalliope and 1 other person like this.
  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    not a very good article in the FT,; no mention of ME, and it says
    "Women, people with obesity, and those who were on invasive mechanical ventilation are all more likely to develop long Covid.".
    Long Covid: why do some people have symptoms months after infection?

    https://www.ft.com/content/ed89cad2-6f82-44f0-b01d-c4490e4a7372
     
    Ash, alex3619, Sean and 5 others like this.
  17. Dakota15

    Dakota15 Senior Member (Voting Rights)

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    ahimsa, Ash, Sean and 5 others like this.
  18. Amw66

    Amw66 Senior Member (Voting Rights)

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    ME Action highlight of Medium article

     
    Last edited by a moderator: Jan 7, 2022
  19. Kalliope

    Kalliope Senior Member (Voting Rights)

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    The Guardian - Opinion piece Could micro clots help explain the mystery of long Covid? by professor Resia Pretorius

    quotes:

    A recent study in my lab revealed that there is significant microclot formation in the blood of both acute Covid-19 and long Covid patients. With healthy physiology, clots may form (for instance, when you cut yourself). However, the body breaks down the clots efficiently by a process called fibrinolysis.

    We found high levels of various inflammatory molecules trapped in the persistent microclots, including clotting proteins like plasminogen, fibrinogen and Von Willebrand factor (VWF), and also Alpha-2 antiplasmin (a molecule that prevents the breakdown of microclots).

    ...

    We urgently need to invest in more research and clinical trials to better understand and further confirm the link between abnormal blood clotting, hypoxia and vascular dysfunction in patients with long Covid. Even those without long Covid could benefit from such research, as symptoms noted in long Covid patients show many similarities to those seen in chronic and viral-related illnesses including myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) – another disease that has been dismissed as “psychological” for decades. Just because we have not yet identified a biomarker for long Covid does not mean biomarkers do not exist. We just need to look harder.
     
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  20. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    Could you give the link to the Medium article, please. I can't find it.
     
    Ash, Jacob Richter and Kalliope like this.
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