News about Long Covid including its relationship to ME/CFS 2020 to 2021

Just wondering if there is any awareness campaign underway to further promote the
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome CPD produced by Dr Muirhead ( @EducateME )?

I know that the MEA contacted GPs last July:
https://www.s4me.info/threads/uk-me-cfs-cpd-module-from-study-prn.15088/page-2

but a lot has happened since then including the rise in numbers of long-covid patients.

With all the current conflicting information from the likes of TC,CG and PG maybe a tagline somewhere along the lines of
"if you care about the future of long-covid patients you should spend an hour on this free online course"
https://www.studyprn.com/p/chronic-fatigue-syndrome

(btw I spotted a typo on the site and have contacted them to get it fixed)

 

https://twitter.com/user/status/1361225416581795840

 

Code:

https://twitter.com/IrishMECFS/status/1361487920524382208

 

In the Republic of Ireland, we in the Irish ME/CFS Association have arranged a webinar for GPs for March on postviral fatigue syndrome and ME/CFS.

When we are emailing and posting information to GPs we are also going to give a link to that CPD module.

 

The ONS (UK) figures are being challenged as too high see thread here: https://twitter.com/user/status/1361662227120615426
(it’s on children but the same sort of argument would apply to adults).

 

And yet, seems rather consistent with other countries:

https://twitter.com/user/status/1361718088857579520


Almost like efforts should be made to actually count this so we could know instead of speculate.

 

Article can't be published because of paywall: "The Challenges of Getting Long-Covid Patients Back to Work".

https://twitter.com/user/status/1361720941206589440


Direct image: https://pbs.twimg.com/media/EuXN2fCVgAkz4-Y?format=jpg&name=4096x4096

 

Covid: HSE refuses to close workplaces that are putting employees at risk

https://www.theguardian.com/world/2...workplaces-that-are-putting-employees-at-risk

 

There seem to be two things wrong with that paragraph.

The grammar suggests that covid rather than the department is supporting the inspectors.

What possible evidence could be produced to support the claims as to permanence or reversibility?

 

It is hard to be certain, but it appaears that the words quoted were probbably extracted from the response to a Parliamentary question. It might be itersting to see the original. It could be that the full response is rather more nuanced. On the other hand...

 

Long COVID: a public health expert’s campaign to understand the disease

https://theconversation.com/long-co...rts-campaign-to-understand-the-disease-152212

 

Inside health on Radio 4 had an episode on Long Covid yesterday. I didn't catch all of it but the bit I did listen to involved a patient of the Leeds Long Covid service describing 'pacing' as including 10% increases in activity.

Also it seems that they haven't been having much success in treating the patients as they haven't been able to discharge many people at all. You can listen to the episode here although I'm not sure if non-UK members will be able to (I think you need a UK TV licence to listen).

Edit: Clarity
Edit 2: I originally wrote that the leader of the service described pacing as including 10% increases in activity but then remembered if was a patient so I corrected myself.

 

Long Covid: MPs call for compensation for key workers

https://www.bbc.co.uk/news/uk-politics-56090826

 

A clinical primer for the expected and potential post-COVID-19 syndromes
Brian Walitt & Elizabeth Bartrum

https://journals.lww.com/painrpts/F...primer_for_the_expected_and_potential.19.aspx


Discussed on this thread:
A clinical primer for the expected and potential post-COVID-19 syndromes, Wallit et al, 2021

 

UCL researchers lead £11m projects to investigate Long Covid | UCL News - UCL – University College London

https://www.ucl.ac.uk/news/2021/feb/ucl-researchers-lead-ps11m-projects-investigate-long-covid

see also:
https://www.s4me.info/threads/non-h...clock-study-2021-stevenson-and-crawley.19061/

 

Long Covid: 'I can't walk 10m without a rest'

https://www.bbc.co.uk/news/uk-56113021

 

https://www.youtube.com/watch?v=2N4xBXphyxg

 

Just seen Dr David Strain on BBC News 24, explaining why Long Covid is different to other fatigue syndromes such as CFS.

Paraphrased:

____________________

With LC, it's like having an out of date smartphone; no matter how well you charge it up, the battery isn't in good condition and it will be drained before you get to the end of the day. You need to make sure you stop before you reach that stage, to give your body time to recover.

Whereas with CFS, we encourage people to take part in structured exercise programmes to get well again, as you would with pulmonary or cardiac rehabilitation.

____________________

I'm afraid I'm shattered after having to get up at 6am for delivery of a new bed base, shifting a lot of stuff in and out of the bedroom, and making and remaking the bed – I just couldn't cope with watching any more.

But: .