As I see it this call for evidence is not NICE asking to send them any study on ME/CFS we find interesting or that we think they should read in formulating the NICE guideline. As I interpret it the scope is quite restricted to: management while the ME/CFS diagnosis is being made, monitoring of ME/CFS patients once the diagnosis is made and information on the experiences of patients who have followed treatment.
Please correct me I'm wrong. But if that's the case I see no need in trying to collect studies outside the scope. I assume these will already be passed on to the GDG. I suspect that the technical team could find few studies on the particular domains listed or in the case of patient experiences that they suspect patient surveys exist they can't easily retrieve using databases. So in those cases, it makes sense to ask for further evidence, for example, unpublished studies, unknown patient surveys etc.
