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NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

Discussion in 'Information for NICE guidelines' started by Andy, Aug 30, 2019.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Our submission to the NICE call for evidence
    https://www.actionforme.org.uk/news...national-guideline-centres-call-for-evidence/

    MAGENTA, FITNET-NHS time to speak up(?)
     
  2. Amw66

    Amw66 Senior Member (Voting Rights)

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    Sean likes this.
  3. Amw66

    Amw66 Senior Member (Voting Rights)

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    ukxmrv likes this.
  4. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Is James Coyne suggesting that NICE has been assessed using a US system? It looks more as if he suggests it could be. I am sceptical. The US scorecard looks like the same formulaic sort of system that NICE uses. It is fine in theory but as soon as you get real people in solved everything slides.

    I am not clear what such a guideline achieve in the US since it seems that all sorts of unproven treatments are used in the US with insurance cover that would not be available in the UK. The IOM removed recommendation of GET but the rationale was pretty flimsy. The real problems with the poor quality research do not seem to have been identified.
     

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