Michael Sharpe skewered by @JohntheJack on Twitter

Cheshire said:
A new one (more politely asked)

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Answering spoonseeker:
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Funnily enough, it's not just the media MS. The current NICE guideline CG53 also seems to suffer from the same confusion ...
NICE CG53 said:
This guideline covers diagnosing and managing chronic fatigue syndrome (CFS) which is also known as myalgic encephalomyelitis (ME) (or encephalopathy). It aims to improve the quality of life for people with CFS/ME by setting out the care and treatment options that should be available for them.
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https://www.nice.org.uk/guidance/Cg53

I cannot imagine how such a confusion might have arisen for NICE, can you MS? I suppose it also excuses the media a bit really also, if NICE went and got themselves all mixed up about it?
 
dave30th said:
I don't know much about parliamentary decorum, but it seems to me that when you have conducted yourself in such an inappropriate manner that multiple MPs and a government minister call you out publicly and demand an apology, you have likely damaged your credibility and effectiveness as an advocate in the debate, and have undoubtedly undermined the credibility of your research as well.
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I know quite a bit about parliamentary decorum - and I can tell you that when multiple MPs (and a government minister) tell you that you've overstepped the mark and that an apology is due, it's extremely ill advised to dig your heels in and insist they're all wrong and that actually you're the one that's been unfairly maligned and defamed. Not if you have any hope of being taken seriously in future, that is.
 
Stewart said:
I know quite a bit about parliamentary decorum - and I can tell you that when multiple MPs (and a government minister) tell you that you've overstepped the mark and that an apology is due, it's extremely ill advised to dig your heels in and insist they're all wrong and that actually you're the one that's been unfairly maligned and defamed. Not if you have any hope of being taken seriously in future, that is.
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Or maybe MS thinks he is untouchable.
 
dave30th said:
I don't know much about parliamentary decorum, but it seems to me that when you have conducted yourself in such an inappropriate manner that multiple MPs and a government minister call you out publicly and demand an apology, you have likely damaged your credibility and effectiveness as an advocate in the debate, and have undoubtedly undermined the credibility of your research as well.
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Ye or sometimes they just give the fuckers a knighthood.
 
large donner said:
I think being on the end of their positivity is leading to negative consequences for him.
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Exactly. Well-put.

dave30th said:
I don't know much about parliamentary decorum, but it seems to me that when you have conducted yourself in such an inappropriate manner that multiple MPs and a government minister call you out publicly and demand an apology, you have likely damaged your credibility and effectiveness as an advocate in the debate, and have undoubtedly undermined the credibility of your research as well.
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One can only hope.
 
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Three mistakes in 4 words? (privilege spelt wrong, disappointing shouldn't be an adverb, though spelt wrong). Or does he mean the debate was disappointingly thorough? Unlike his grasp of spelling and grammar.

No matter. This from a guy who has never used his privileged position to defame people. I think I hear a cooking utensil refering to the colour of an electrical appliance.
 
Esther12 said:
They do occasionally make references to the possibility of an unidentified organic disorder too.
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Pure arse covering, just in case it turns out to be true.

BurnA said:
Given a lot of people conflate the two terms or use them interchangeably, Sharpe is really just clutching at straws.
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If it wasn't about ME, then why did they use the London ME criteria for sub-grouping?

arewenearlythereyet said:
Where is Simon I wonder?
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Sailing?

Barry said:
This reminds me of a nasty trick some car second hand car dealers employed back in my youth. The oil pressure warning light coming back on once the engine was running and the oil had warmed up (and was therefore thinner) was a typical sign of a knackered engine. So so dealers rewired the oil pressure warning light to the generator light, which also went out after the engine started and stayed out. Just another way of ignoring vital warning signs.
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Another trick is to change the oil out for a more viscous one, which helps keep the pressure up, without fixing any problems.
 
Stewart said:
I've been told by a very reliable source - okay, he's not that reliable - that Sir Simon retired from ME/CFS research many years ago. And he's had nothing to do with it since. No sirree. He wasn't even involved with the PACE trial - well, he can't remember whether he was involved and neither can Michael Sharpe (even though Sharpe is a co-author of numerous documents that clearly say that Simon was). And as Simon has pointed out recently, if he *had* been involved with PACE in any shape or form his monstrous ego would have demanded that he be listed as a co-author. But he isn't so he almost certainly wasn't. Unless of course he was - because no-one seems to remember and incredible as it may seem there's apparently no way to check...
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If you remember the good old days, you weren't there.
 
dave30th said:
I don't know much about parliamentary decorum, but it seems to me that when you have conducted yourself in such an inappropriate manner that multiple MPs and a government minister call you out publicly and demand an apology, you have likely damaged your credibility and effectiveness as an advocate in the debate, and have undoubtedly undermined the credibility of your research as well.
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It also struck me that his choice of words was very particular and I wonder if he would have used the same if he was saying it to a male MP. It conjures up images of a girl being told off (in the victorian age).
 
Can you imagine if we had a situation like the David Irving/Deborah Lipstadt trial, where he ruined himself in public trying to deal with his ego?

I wouldn't want Carol, (she's now a saint in my eyes), to have to go through something like that but to see him twist himself in knots trying to explain why he is right in public would be great.
 
TiredSam said:
So after the most disastrous name-dropping exercise I've ever seen from Wessely, we now have the most disastrous lobbying exercise I've ever seen from Sharpe
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They're both so ridiculous and bad at PR that I wonder how they could have been taken seriously all these years (and well, SW is not as bad as MS). I wonder if that tells something about the way ME patients are seen. Nobody cared to look at this whole field because nobody really cared about us.

Barry said:
Given his position on CFS Vs ME, why has he never ventured to ever correct the authorities, NICE, the medical establishment, insurance companies, etc, where PACE-style remedies are foisted onto people diagnosed with ME, or with "CFS/ME"?
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Yes, they keep telling that their work was misinterpreted, but where are the tons of mails (to NICE, to the media...) they sent to correct these errors? I can't imagine a decent searcher, caring about his patients, not reacting when his words are distorted or misused. But yet, Michael and his mates just said nothing and pretend to have done all of this for us all these years.
Call me stupid, Mr.
 
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