Copied from the NICE guideline thread here Not much time me for this survey - Friday 11th for Scottish NICE guideline implementation consultation - survey link in tweet thread https://twitter.com/user/status/1500513568604758021
I'd love to hear more about the "Practice Based Small Group Learning module on ME" referred to there.
NHS Scotland has a website with CPD courses for primary care clinicians: https://www.cpdconnect.nhs.scot/search-results?query=chronic fatigue syndrome&filter=&orderby=oldest The first page: https://www.cpdconnect.nhs.scot/med...atigue-syndrome-me-cfs-module-1st-page-24.pdf
That is a strange mixture of reasonable description of the illness and potentially misleading implication of 'early management' rather than exhaustive diagnostic work-up.
I can't tell if the CPD course is good or not from just the first page. It's not clear if it has anything to do with #MEAction Scotland. Yes, there does seem to be an emphasis on getting people diagnosed quickly as if that magically does something, when actually just telling a patient that ME/CFS is suspected and telling them about PEM and energy management while a good diagnostic process is followed is the ideal. I'm not sure why the 2007 NICE Guideline is mentioned, but perhaps it becomes clear in later pages. I don't think if something like multiple sclerosis had a relatively new guideline and a superseded guideline that is now nearly 20 years old that the old guideline would rate a mention. I don't think it makes sense to talk about an upper limit on prevalence. If we believe that few people recover after a few years of ME/CFS and if we don't think people with ME/CFS die dramatically younger than the average person - and I think we believe both of those things - then the real rates of ME/CFS will increase with age. It's probably just that ME/CFS doesn't get diagnosed in old people very often, and earlier diagnoses perhaps get forgotten. NHS Scotland has a Chronic Pain CPD Module too that includes: That first sentence really illustrates an attitude problem on the part of the NHS. They could have written 'We often don't have much to offer these patients that makes a significant improvement.'. Instead, it's about how the difficult patients mean clinicians don't have a nice time at work.
From #MEAction Scotland: Millions Missing Scotland 2025: Red alert for ME See the full post for actions you can do to support this effort. Includes a template for email to send to MSPs.
