ME/CFS services in the United Kingdom

this job ad appears to be for a private company used by the NHS

Advanced Sports Therapist or Osteopath or Physiotherapist
Haddington, Lincoln
We are excited to be adding to our talented multi-disciplinaryteam by recruiting an Advanced Practitioner in Pain to our in Lincolnshire. You will act as a source of clinical expertise on the management of persistent pain disorders, and providing an advisory service to patients, GPs, Consultants and the wider community of Lincolnshire. This would be achieved by establishing clinical credibility in order to facilitate successful partnership working and the delivery and development of high-quality pain management for patients.

Patient contact is a vital part of the role, and you will conduct advanced assessment and treatment of patients with persistent pain. You should demonstrate excellent communication skills with a strong patient focus. In addition, a high degree of competency and commitment to the development of others to enable them to deliver a quality service with the patient at the centre to help to establish Connect as a market leader in the provision of services to people with persistent pain. You will develop effective treatment plans within the service including joint working within the MDT that includes Consultants, Physiotherapists, Nurses, Psychologists and GPwER
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What we are looking for:
  • Experience in delivering Pain Management services with tangible results (or an ambition and desire to work in this area)
  • Experience of seeing patients with chronic fatigue syndrome, (or able to demonstrate transferable skills and knowledge, or an ambition and desire to work in this area
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https://www.totaljobs.com/job/sports-therapist/connect-health-job97756152

@PhysiosforME
 
Senior Clinical Psychologist/Senior Psychotherapist in ME/CFS
Summary
This Band 8a Psychology or Psychotherapy, permanent, role is an exciting opportunity for a compassionate, and enthusiastic, Senior Clinical Psychologist or Senior Psychotherapist to join a forward-thinking and dynamic multi-disciplinary team which is therapy-led.

The Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) Service is a specialist, all age, regional, therapy service covering South Yorkshire and North Derbyshire. We are looking for a Senior Clinical Psychologist or Senior Psychotherapist who has an interest in working with long-term physical health conditions, and has relevant or transferable skills, to join the adult ME/CFS team.

The successful candidate will be an integral member of a team in which specialist psychological therapy is well-established and highly valued. They will work directly with service users and their families who have opted for psychological support and provide indirect interventions with staff and other agencies through joint work, consultation, teaching and training. The role also includes close collaborative working with the Sheffield IAPT Health and Wellbeing Service and taking the lead for the ME/CFS Service in the newly developed integrated pathway between these services.
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https://findajob.dwp.gov.uk/details/9365237

bolding is mine. what are indirect interventions?
 
Sly Saint said:
what are indirect interventions?
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I think in the context it means this:

from: Section 10: Using health and social care information –direct care and indirect care purposes

"The term ‘indirect care’ is defined as activities that contribute to the overall provision of services to a population as a whole or a group of patients with a particular condition, but which fall outside the scope of direct care. It covers health services management, preventative medicine, and medical research. Examples of indirect care activities include risk prediction and stratification (see note below on borderline cases), service evaluation, needs assessment, and financial audit.

The key reason for distinguishing between purposes in this way is that it is generally possible to imply consent for the use of confidential information for direct care purposes but not for other purposes.

There are some exceptions and some tricky borderline cases on which specific guidance is provided. "
 
Putting out a call to any ME patients or carer's in North East Essex who would like to take part in a drive to deliver a new Integrated Care & Support Service for Suffolk & N E Essex Alliance?
Colchester MESH Support Group has closed down and they have no one available or no one to sign post on.

Please private message me for details and contacts within the CCG Alliance.
The work for this is well in hand and has been underway for a while.
It is going really well!
 
another job ad for a supposed 'new' long covid service.

Practitioner Psychologist (Long Covid Programme)Salford

An opportunity has arisen for a suitably qualified and experienced clinical or counselling psychologist within the Clinical Health Psychology Department at Salford Royal covering the new Long COVID service and Chronic Fatigue Syndrome. Newly qualified applicants or those in the process of qualifying will be considered. The post is a permanent post.

A commitment to provision of evidence-based health care is essential. An understanding of the psychological factors influencing physical health and delivery of health care would be desirable, as are excellent interpersonal and communication skills. Enthusiasm and commitment are essential.

A commitment to provision of evidence-based health care is essential. An understanding of the psychological factors influencing physical health and delivery of health care would be desirable, as are excellent interpersonal and communication skills. Enthusiasm and commitment are essential.
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https://www.totaljobs.com/job/practitioner/salford-royal-nhs-foundation-trust-job97944776
 
GP with Specialist Interest
Lowestoft
Department
East Coast Community Healthcare
This is an exciting opportunity to become part of a well-established, specialist, NHS service, that seeks to meet the needs of people who have a diagnosis of Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS) or Long Covid, in Norfolk and Suffolk.

As a service we are based at Kirkley Mill Health Centre in Lowestoft, Suffolk, but currently see patients from all of Norfolk and Suffolk in a variety of clinic locations. We offer an outpatient service via face to face appointments, video consultations, telephone and, in a small number of cases, home visits. We are looking to recruit an additional GP with Specialist Interest (GPwSI) to work, on a sessional basis, within the ME/CFS team to provide an agreed clinical service for patients with ME/CFS, in line with best practice, evidence-based medicine and national standards including NICE.


The team is made up of GPs with specialist interest in, and knowledge of, ME/CFS (GPwSI), and specialist therapists including occupational therapists and physiotherapists. This includes a therapist with a special interest in paediatric care who oversees the under 18s caseload, across the 2 counties.
Clinical duties will include the assessment of patients referred to the service by GPs or other health care professionals, and diagnosis of ME/CFS in conjunction with other members of the MDT. They will also support the provision of training and educational programmes to GPs and other healthcare professionals across Norfolk and Suffolk.

The GPwSI will ensure that the multidisciplinary team is involved in the planning of clinical support for the patient and their family/carers, and will liaise closely with GPs primary care teams, and other health and social care professionals. The GPwSI will also act as a resource for patients, carers, relatives, and primary and secondary health care professionals providing expert advice, support, and education.
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https://vacancies.essexprimarycarecareers.nhs.uk/vacancies/3400/gp-with-specialist-interest.html

interesting wording
"to provide an agreed clinical service for patients with ME/CFS, in line with best practice, evidence-based medicine and national standards including NICE".
 
Sly Saint said:
another job ad for a supposed 'new' long covid service.

Practitioner Psychologist (Long Covid Programme)Salford

https://www.totaljobs.com/job/practitioner/salford-royal-nhs-foundation-trust-job97944776
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The job advert includes:

A commitment to provision of evidence-based health care is essential. An understanding of the psychological factors influencing physical health and delivery of health care would be desirable, as are excellent interpersonal and communication skills. Enthusiasm and commitment are essential.

A commitment to provision of evidence-based health care is essential. An understanding of the psychological factors influencing physical health and delivery of health care would be desirable, as are excellent interpersonal and communication skills. Enthusiasm and commitment are essential.
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It is always worrying to see the phrase ‘evidence-based care’ in relation to both ME and Long Covid, as there is currently little or no evidence relating to any care strategies. Indeed here the offending paragraph is stressed by repeating it word for word. This means that anyone willing to go along with this advert and to apply for the job as it stands is automatically disqualifying themselves for the job as advertised.
 
Sly Saint said:
GP with Specialist Interest
Lowestoft
Department
East Coast Community Healthcare

https://vacancies.essexprimarycarecareers.nhs.uk/vacancies/3400/gp-with-specialist-interest.html

interesting wording
"to provide an agreed clinical service for patients with ME/CFS, in line with best practice, evidence-based medicine and national standards including NICE".
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I'm only going by the pseudonym but @Suffolkres might either be interested in this or shed light (if already aware). Agree that it is refreshing to see Nice, but you don't have to be cynical to think it could have been carried over from an old job description or they mean the old 2007 ones.
 
bobbler said:
I'm only going by the pseudonym but @Suffolkres might either be interested in this or shed light (if already aware). Agree that it is refreshing to see Nice, but you don't have to be cynical to think it could have been carried over from an old job description or they mean the old 2007 ones.
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I feel this GP with Special Interest post advert is potentially more promising, and, though someone with more knowledge about this specific service may comment differently, they seem to be saying the right things, which hopefully means they will end up doing the right things.

Do others think this linking of ME and Long Covid services is a positive step, and hopefully will counter the shift to sending people with ME to ever more generic services be it fatigue clinics, pain clinics, IAPT or MUS/FND services? Does this also mean that in some areas at least our fears that GET/CBT will continue through diagnosing people with ME as having FND or MUS instead, circumventing the new NICE ME guidelines, is not materialising?
 
Peter Trewhitt said:
linking of ME and Long Covid services is a positive step
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a couple of points;
although this is happening, the public are being told that 'new' LC services are being set up, with no mention of the fact that a lot of them, if not all, are ME clinics.

I am not sure which guidelines (if any) these services are following; the ones for LC or the ones for ME. Are they 'treating' both patient groups as the same?

I imagine many will be BACME affiliated.
 
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Peter Trewhitt said:
Do others think this linking of ME and Long Covid services is a positive step, and hopefully will counter the shift to sending people with ME to ever more generic services be it fatigue clinics, pain clinics, IAPT or MUS/FND services? Does this also mean that in some areas at least our fears that GET/CBT will continue through diagnosing people with ME as having FND or MUS instead, circumventing the new NICE ME guidelines, is not materialising?
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Unlikely without outside intervention ending this cycle of mediocrity. This nonsense is baked into the profession and they don't want to hear anything that contradicts their textbooks, even when the textbooks are clearly wrong. Medicine is broken in so many ways.
"Exercise is the only thing that will make you better....." said the Lung Consultant who specialises in Covid and Long Covid
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It's M.E. Linda said:
Have you been able to send this good spot to the ME Association @Sly Saint ? They have done a very swift response to the East Kent Hospitals physio’s “advice”

Please shout if you are unable to do this, I am happy to use your post above (if that is ok with you) to email people at MEA, if you need any help.
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I have tweeted about the issue of services blatantly ignoring the guideline. The tweet is not specifically about this instance—more my general thoughts on why the current approach (a letter from Charles) is not sufficient.

 
InitialConditions said:
I have tweeted about the issue of services blatantly ignoring the guideline. The tweet is not specifically about this instance—more my general thoughts on why the current approach (a letter from Charles) is not sufficient.

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I've concluded from the number of these new jobs that seem to undermine the guideline that those in the current services genuinely believe that they are for them and all about them.

And that nothing can move forward until they are cleared out. I feel so much less sympathy for any 'poor me' arguments they make to that given these are such clear and blatant screw you we will do what we want hard-to-undo actions. And because they are for new staff, the whole supposedly care about people losing their jobs is nonsense - these are new people who will be leaving other posts, if we were to belief that one-liner they would be acting with caution on recruitment.
 
A new way of working and developing ME services......


https://www.sneeics.org.uk/resources/flipbooks/expo-2022-programme/

INAUGURAL MEETINGS OF THE NEW STATUTORY SUFFOLK AND NORTH EAST ESSEX ICS

On Friday 1st July 2022 the Suffolk and North East Essex ICS will transition to new statutory arrangements subject to the Health and Care Act, 2022.

This introduces two new statutory features for the ICS:

• an NHS Integrated Care Board (ICB), responsible for NHS strategic planning and allocation decisions, and;
• an Integrated Care Partnership (ICP), responsible for bringing together a wider set of system partners to develop the strategy to address the broader health, public health and social care needs of the local population.

The inaugural meetings of both the ICB and ICP will take place at ‘Can Do Health and Care’ Expo 2022 on the
event Main Stage in the Millennium Suite which is located on the 2nd floor of the Millennium Grandstand. Members of the public are invited to attend the meeting in person.

Alternatively, you can view both meetings either live via YouTube or watch the recording at a later time.


Please see details below.


NHS SUFFOLK AND NORTH EAST ESSEX INTEGRATED CARE BOARD (ICB) SUFFOLK AND NORTH EAST ESSEX INTEGRATED CARE PARTNERSHIP (ICP)

12:00pm– 1:00pm, Main Stage –Millennium Suite
3:00pm – 4:00pm, Main Stage – Millennium Suite

The NHS Suffolk and North East Essex Integrated Care Board (ICB) plans and buys healthcare services for our population. This function is commonly referred to as ‘commissioning’.

With a budget of around £1.5 billion, set by NHS England, the ICB will work closely with local government and the NHS providers in our area. Our performance will be judged by how well
our local health and care system as a whole is working, including the health outcomes of our communities.

The ICB has delegated some authority to the three health and wellbeing alliances that operate in Suffolk and North East Essex to act on its behalf to ensure that the needs of smaller, local areas are addressed.

Local residents have a big role to play in the operation of the ICB. We rely on the experiences and perspectives of our communities to help shape our decision making.


Information about the inaugural meeting of the ICB including the agenda and meeting papers are available to view online at:

https://suffolkandnortheastessex.icb.nhs.uk/ event/icb-board-meeting-july-2022/

The establishment of a statutory ICP in Suffolk and North East Essex is a natural next step in the evolution of the current ICS. It will enable an equal partnership between
partners in the ICS with a focus on population health and reducing health inequalities, underpinned by Outcome Based Approaches. The approach is about ‘Thinking

Differently Together’ to develop whole system strategy, working closely with both Health and Wellbeing Boards, Healthwatch and people with lived experience – also facilitating system relationships and positive engagement with wider system partners including the VCSE sector.

Based on the principle of the ICP working as a statutorily equal partnership between the NHS and local government, the Suffolk and North East Essex ICP Committee is Co-Chaired by Cllr. John Spence - Essex County Council, Cllr. Andrew Reid - Suffolk County Council and Professor William Pope - NHS Suffolk and North East Essex, supported by ICP Director, Susannah Howard.
Information about the inaugural meeting of the ICP including the agenda and meeting papers are available to view online at:

www.sneeics.org.uk/can-do-health-care/working together/suffolk-and-north-east-essex-integrated-care partnership/
 
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