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May 2019 - Awareness Week including Millions Missing

Discussion in 'Advocacy Projects and Campaigns' started by Sly Saint, Feb 13, 2019.

  1. Binkie4

    Binkie4 Senior Member (Voting Rights)

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  2. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Above #2 is photo of protest in New York, taken by my son this afternoon.

    I can see Omar Wasow just left of centre near the coffin. Greenrucksack.

    ETA: location is edge of Central Park by Columbus Circle
     
    Last edited: May 11, 2019
  3. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

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    Millions Missing Canada - downtown Toronto - in front of Varsity Stadium - there was a juxtaposition between the fit athletes training in the stadium with our sick selves...


    MMC 2 May 11 2019.jpg Millions Missing Canada May 11 2019 Toronto.jpg
     
    Jan, ahimsa, MEMarge and 25 others like this.
  4. Suffolkres

    Suffolkres Senior Member (Voting Rights)

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    Missing Millions Norwich! 20190512_075346.jpg
     
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  5. Andy

    Andy Committee Member

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  6. Suffolkres

    Suffolkres Senior Member (Voting Rights)

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  7. Andy

    Andy Committee Member

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    The Southampton demo is already set up and ready to go
    WP_20190512_004.jpg
     
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  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  9. chicaguapa

    chicaguapa Senior Member (Voting Rights)

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    412827CD-EAA1-40C5-930B-3EE915EB76BA.jpeg A few pics from Southampton today.

    We put down 378 pairs of shoes which grew to over 450 throughout the afternoon. Two city councillors came down, one who is in charge of adult social care in Southampton. Both asked to be kept in touch with MEAction’s campaign. The other gave me an interesting statistic which is that the population of Southampton city centre is 250,000, ie the number of pwme in the UK.
    8465BD33-667A-4B3F-B91D-2D95172CE4DA.jpeg FDC2B3B0-7760-4A3C-870A-2A389B808093.jpeg
     
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  10. rvallee

    rvallee Senior Member (Voting Rights)

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    Straw by straw, the camel's back will break.
     
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  11. Andy

    Andy Committee Member

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    Video of the livestream of MillionsMissing Glasgow


    Code:
    https://www.facebook.com/meactionscot/videos/286906638862092/
    Interview with Chris Ponting starting around 5 mins in.
     
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  12. Webdog

    Webdog Senior Member (Voting Rights)

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    Location:
    Holodeck #2
    San Francisco City Hall.

    mm2019SanFrancisco1c.jpg
     
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  13. NelliePledge

    NelliePledge Moderator Staff Member

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    Sorry don’t have the brain power to post pictures but for those who have Facebook see MM Nottingham
     
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  14. andypants

    andypants Senior Member (Voting Rights)

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  15. andypants

    andypants Senior Member (Voting Rights)

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    Jan, Skycloud, Hutan and 12 others like this.
  16. Kalliope

    Kalliope Senior Member (Voting Rights)

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    There was a MillionsMissing event today in Stavanger, Norway. It was quite well attended with 100 people present and 2,3 K (and counting) viewers via streaming.

    The compère for the day was Eirin Sund, leader of the local union.
    Program:
    Patient talk from Emma, 10 years, read by Ella, 11 years
    Video greeting from prime minister Erna Solberg
    Video greeting from Jen Brea
    Patient talk from Kristine Ruud Berdal
    Specialist talk from prof. Ola Didrik Saugstad
    Video greeting from drs Øystein Fluge and Olav Mella
    Carer talk by Mette Schøyen read by Eirin Sund
    Video greeting by Ron Davis

    Streaming of the whole event can be viewed here
    This will eventually be published on YouTube with English subtitles

    Video greeting from Jen Brea

    Video greeting from Ron Davis


    You can find the video greeting also from the prime minister and Fluge & Mella (both in Norwegian, English subtitles coming) at MillionsMissing Stavanger's Facebook page.

    The local newspaper Stavanger Aftenblad had an article about the event. It's paywalled, but I think pictures are available. One of the organisers has had ME for 24 years and despairs over the slow progress. She doesn't want young people to have the same kind of life she's had. Compere Eirin Sund says it's very rewarding to be part of this event, as she knows people with the disease. The article also includes the prime minister's video greeting.
    Stavanger Aftenblad: Markerte ME-dagen i Stavanger sentrum: - Jeg er fortvilet over hvor stille dette fagfeltet har vært
     
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  17. Andy

    Andy Committee Member

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  18. Andy

    Andy Committee Member

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  19. JaneL

    JaneL Senior Member (Voting Rights)

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  20. Andy

    Andy Committee Member

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    https://www.thecanary.co/podcasts/2019/05/12/canarypod-topple-uncaged-meets-the-millions-missing-david-tuller/
     
    MEMarge, rvallee, Sly Saint and 3 others like this.

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