I’ve emailed our healthwatch with a link to this to see if they will post anything. Never been in contact with them before so asked how they could help our support group as well.
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New Forum Software Installed (Still a few issues but reopening the forum) More details.
May 2019 - Awareness Week including Millions Missing
- Thread starter Sly Saint
- Start date
Andy
Retired committee member
Andy
Retired committee member
I hope th
It’s admirable people are using their and Energy.
I hope these events do reflect the stated purpose of the #MM. Both would be nice but I would rather see banners and chants for MRC to guarantee funding until the research field is established rather than educate the public because ultimately whilst it’s nice to have an understanding neighbour it’s better to have treatment. I don’t think a more aware public will translate into campaigning allies.
It’s admirable people are using their and Energy.
I hope these events do reflect the stated purpose of the #MM. Both would be nice but I would rather see banners and chants for MRC to guarantee funding until the research field is established rather than educate the public because ultimately whilst it’s nice to have an understanding neighbour it’s better to have treatment. I don’t think a more aware public will translate into campaigning allies.
Sly Saint
Senior Member (Voting Rights)
I
I’m doing a bit of guérilla customer testing to get the take of small group of friends that haven’t been exposed to ME politics to ask them what they think about the 2 logos to see if they pick up on the real/physical aspect as a concern.
i know @Sly Saint im going by social media which seems to be mainly the new logo.
I’m doing a bit of guérilla customer testing to get the take of small group of friends that haven’t been exposed to ME politics to ask them what they think about the 2 logos to see if they pick up on the real/physical aspect as a concern.
Andy
Retired committee member
Remember, if you have enough energy to get along to an event this weekend, this page, https://my.meaction.net/calendars/millionsmissing, can be used to find the closest event to you.
rvallee
Senior Member (Voting Rights)
Drop the quotes on humanitarian crisis, though. It is, plain and simple. The population of a mid-sized country is basically imprisoned in their own body and almost nobody gives a damn while those who should be helping are actually making things worse.
'Humanitarian crisis' for ME sufferers in Wales: https://www.bbc.com/news/uk-wales-48229907
'Humanitarian crisis' for ME sufferers in Wales: https://www.bbc.com/news/uk-wales-48229907
Binkie4
Senior Member (Voting Rights)
@NelliePledge
I hope your event is going well and that you are not suffering too much from the extra work that it has involved. Thank you.
I hope your event is going well and that you are not suffering too much from the extra work that it has involved. Thank you.
Andy
Retired committee member
Read more at http://occupyme.net/2019/05/11/millionsmissing-2019/
Thanks @Binkie4 im all prepped out now. Just resting now as I have to be out early for me to be there by noon
chicaguapa
Senior Member (Voting Rights)
We submitted this to them as a completed article. They asked me for something last year after coming down on the day. A community journalist also came to MM last year to write an article and she interviewed a few people afterwards. So I combined the two. It took so long to get it finished that we decided to hold onto it and wait until this year’s MM to publish it.
Binkie4
Senior Member (Voting Rights)
Andy
Retired committee member
ME/CFS Skeptic
Senior Member (Voting Rights)
Thread merged
I know that not all forum members are on Facebook or Twitter, so I thought this thread might be a good place to share some pictures and info on the Millions Missing events this year.
I helped organize a Millions Missing event in Gent, Belgium. We had a really cool location in the center of the city.
Unfortunately, I couldn't be there myself but from the video's, pictures and stories I've seen and heard, it seemed to be a great success. Laying out empty shoes with testimonies of ME-patients is a really powerful concept. People passing by seemed to be genuinely interested to learn what was going on.
Funny story: there were a lot of tourists in Gent and one of our Millions Missing volunteers managed to get the city guides to explain what was going on. So a little later a city guide was explaining to German tourists: "Auch in Berlin gibt er ein Millions Missing Manifestation..." Thought that was pretty cool.
I know that not all forum members are on Facebook or Twitter, so I thought this thread might be a good place to share some pictures and info on the Millions Missing events this year.
I helped organize a Millions Missing event in Gent, Belgium. We had a really cool location in the center of the city.
Unfortunately, I couldn't be there myself but from the video's, pictures and stories I've seen and heard, it seemed to be a great success. Laying out empty shoes with testimonies of ME-patients is a really powerful concept. People passing by seemed to be genuinely interested to learn what was going on.
Funny story: there were a lot of tourists in Gent and one of our Millions Missing volunteers managed to get the city guides to explain what was going on. So a little later a city guide was explaining to German tourists: "Auch in Berlin gibt er ein Millions Missing Manifestation..." Thought that was pretty cool.
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