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awareness

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  1. Sly Saint
    Thread

    Severe M.E Day - 8th of August 2020

    " A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis. Severe ME...
    Thread by: Sly Saint, Jul 7, 2020, 12 replies, in forum: General ME/CFS News
  2. Sly Saint
    Thread

    A life Hidden : This Is Love: An Appeal to Musicians

    Kara Jane is a singer with a voice that touches the heart. Its sweet, clear tone conveys both vulnerability and strength, creating a heartfelt...
    Thread by: Sly Saint, May 12, 2020, 4 replies, in forum: General ME/CFS News
  3. Sly Saint
    Thread

    Article (Canada): Park resident granted Premier’s Council Award May 2020

    A local resident has been awarded one of the province’s highest honours. Linda MacDonald, who lives in Sherwood Park, received the Premier’s...
    Thread by: Sly Saint, May 9, 2020, 0 replies, in forum: General ME/CFS News
  4. Sly Saint
    Thread

    Chronic fatigue charity reMEmber's annual conference - all you need to know

    Article in Midsussex times. I'm surprised they didn't object to the title. Mid Sussex based charity for people who have ME/chronic fatigue...
    Thread by: Sly Saint, Feb 28, 2020, 17 replies, in forum: General ME/CFS News
  5. Sly Saint
    Thread

    BBC Radio York - Bill Clayton ME Awareness 21st Feb 2020

    [MEDIA] [IMG] Bill Clayton @clanman3 Hoping to be on BBC Radio York on 103.7 FM on Fri between 7 and 10 pm. As my head doesn't always...
    Thread by: Sly Saint, Feb 19, 2020, 1 replies, in forum: General ME/CFS News
  6. Sly Saint
    Thread

    podcast: Betterknown - Margot Livesey (Emma Shorters aunt) talks about M.E. Feb 2020

    For the hundredth episode, Margot Livesey talks to Ivan about six things which she thinks should be better known. Margot Livesey is a novelist....
    Thread by: Sly Saint, Feb 16, 2020, 1 replies, in forum: General ME/CFS News
  7. Sly Saint
    Thread

    Young carers awareness day Jan 30th : article- 'One day it just got too much': The hidden lives of young carers

    According to the last census, there are 166,000 young carers in England, but recent research suggests that the actual figure may be as many as...
    Thread by: Sly Saint, Feb 1, 2020, 2 replies, in forum: General ME/CFS News
  8. Michiel Tack
    Thread

    #MEawarenesshour every wednesday on twitter

    It thought this was an idea worth considering, as online presence seems like one of the most powerful assets of the ME/CFS community. As I...
    Thread by: Michiel Tack, Jan 4, 2020, 36 replies, in forum: General Advocacy Discussions
  9. Sly Saint
    Thread

    Article: It took me eight years to convince docs something was wrong after ME left me 'unrecognisable' - Dec 2019

    A MODEL has revealed how her life was left “unrecognisable” after being blighted by a cruel energy-sapping disease that took eight years to...
    Thread by: Sly Saint, Dec 24, 2019, 7 replies, in forum: General ME/CFS News
  10. Sly Saint
    Thread

    Article: My illness makes me feel like I've run a marathon after two bottles of wine - Dec 2019

    Smiling for the camera, radiant Catherine Allen looks a picture of health and happiness. Yet her life has been blighted by a cruel energy-sapping...
    Thread by: Sly Saint, Dec 17, 2019, 2 replies, in forum: General ME/CFS News
  11. Sly Saint
    Thread

    Article: Tesco launch sunflower lanyard scheme to help shoppers with hidden disabilities Dec 2019

    Tesco has taken steps to help shoppers with hidden disabilities by launching the sunflower lanyard scheme in stores across the UK. The...
    Thread by: Sly Saint, Dec 5, 2019, 0 replies, in forum: General disability topics and advocacy
  12. Sly Saint
    Thread

    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    write up on AfME website: What's it like having a debilitating illness that some people don't believe exists? When it leaves you too unwell to...
    Thread by: Sly Saint, Sep 27, 2019, 29 replies, in forum: General ME/CFS News
  13. Sly Saint
    Thread

    Canaries in the coalmine: Why Marcus Sedgwick is writing about Chronic Fatigue and illnesses we all need to understand better - 11 Sept 2019

    After author Marcus Sedgwick developed Chronic Fatigue Syndrome, there were times he could not stand for more than a few minutes. He explains why...
    Thread by: Sly Saint, Sep 12, 2019, 1 replies, in forum: General ME/CFS News
  14. Sly Saint
    Thread

    BroadAgenda - Australia - #MillionsMissing - Gender bias adds to the burden of disease - Susan Hutchinson May 2019

    Gender Gap: Today is the International Awareness Day for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). ME affects 15 to 30 million...
    Thread by: Sly Saint, May 12, 2019, 0 replies, in forum: General ME/CFS News
  15. Sly Saint
    Thread

    Ros Vallings (NZ) to give series of talks in Ireland - May 2019

    "Dr. Rosamund Vallings Talks The Irish ME/CFS Association is pleased to announce that it has arranged for Dr Ros Vallings, a leading international...
    Thread by: Sly Saint, Apr 28, 2019, 15 replies, in forum: Advocacy Projects and Campaigns
  16. Sly Saint
    Thread

    ME/CFS Awarness Trip Announcment Trailer - March 2019 Spain & Portugal

    "Servando Castello, AKA “Low Battery Man" patient activist Servando Castello is taking to the streets of Spain and Portugal to raise awareness of...
    Thread by: Sly Saint, Mar 22, 2019, 1 replies, in forum: Advocacy Projects and Campaigns
  17. Sly Saint
    Thread

    May 2019 - Awareness Week including Millions Missing

    Australia: International Awareness Day for Chronic Immunological and Neurological Diseases (CIND) including myalgic encephalomyelitis (ME) /...
    Thread by: Sly Saint, Feb 13, 2019, 97 replies, in forum: Advocacy Projects and Campaigns
  18. Andy
    Thread

    Walk a mile in my shoes: trying on CWTCH's chronic illness symptom suit

    This was me wearing the symptom suit, an outfit designed by members of the Pembrokeshire Charity CWTCH. I was taking on the ‘walk a mile in my...
    Thread by: Andy, Dec 10, 2018, 4 replies, in forum: Advocacy Projects and Campaigns
  19. Sly Saint
    Thread

    (not a recommendation) Brave Mark hopes TV show appearance will inspire others - Ulster Herald

    from the Ulster Herald: " A BRAVE Omagh boy who has ME hopes his upcoming appearance on Children in Need will help inspire young people to ‘live...
    Thread by: Sly Saint, Oct 1, 2018, 13 replies, in forum: General ME/CFS News
  20. Sly Saint
    Thread

    Australia - Adam Bandt MP

    Adam Bandt 19 September at 16:53 · The effects of myalgic encephalomyelitis, or ME for short, are devastating enough to leave 25 per cent of...
    Thread by: Sly Saint, Sep 21, 2018, 11 replies, in forum: General Advocacy Discussions
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