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awareness

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  1. ahimsa
    Thread

    USA: News from the Bateman Horne Center

    Ever-Growing Awareness by Lucinda Bateman, MD Mar 2, 2022 https://batemanhornecenter.org/evergrowing-awareness/ It has been my life’s work to...
    Thread by: ahimsa, Mar 4, 2022, 34 replies, in forum: News from organisations
  2. Andy
    Thread

    The circuit of symbolic violence in chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) (I): A preliminary study, 2021, Gimeno Torrent

    Abstract Objective: How can it be that a disease as serious as CFS affecting such a large number of people could be so unknown to the general...
    Thread by: Andy, Jun 16, 2021, 10 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Andy
    Thread

    ME Awareness Day / Week / Month, May 2021

    A thread for article, events and anything else related to ME Awareness Day/Week/Month 2021.
    Thread by: Andy, Jan 17, 2021, 58 replies, in forum: Advocacy Projects and Campaigns
  4. Amw66
    Thread

    Ensuring severely affected can be heard

    I have started this thread as a lot of advocacy campaigns , and some research utilise online questionnaires to gather info. The James Lind...
    Thread by: Amw66, Jan 12, 2021, 30 replies, in forum: General Advocacy Discussions
  5. Cheshire
    Thread

    Improving images used to depict ME/CFS

    Merged thread: 'Stock photos are terrible at depicting illness' Stock photos are ubiquitous—and infamous. The concepts are often laugh-out-loud...
    Thread by: Cheshire, Nov 6, 2017, 60 replies, in forum: Advocacy Projects and Campaigns
  6. Sly Saint
    Thread

    Severe M.E Day - 8th of August 2020

    " A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis. Severe ME...
    Thread by: Sly Saint, Jul 7, 2020, 12 replies, in forum: General ME/CFS news
  7. Tom Kindlon
    Thread

    CDC create new page on how people with ME/CFS can be supported for May 12 and link to it in their weekly e-bulletin

    https://www.cdc.gov/Features/cfsawarenessday/index.html?deliveryName=USCDC_201-DM28478 [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, May 16, 2020, 3 replies, in forum: General ME/CFS news
  8. Sly Saint
    Thread

    Kara Jane Spencer, UK singer with severe ME

    A life Hidden : This Is Love: An Appeal to Musicians Kara Jane is a singer with a voice that touches the heart. Its sweet, clear tone conveys...
    Thread by: Sly Saint, May 12, 2020, 29 replies, in forum: General ME/CFS news
  9. Sly Saint
    Thread

    Article (Canada): Park resident granted Premier’s Council Award May 2020

    A local resident has been awarded one of the province’s highest honours. Linda MacDonald, who lives in Sherwood Park, received the Premier’s...
    Thread by: Sly Saint, May 9, 2020, 0 replies, in forum: General ME/CFS news
  10. Eagles
    Thread

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients...
    Thread by: Eagles, Feb 29, 2020, 74 replies, in forum: General ME/CFS news
  11. Sly Saint
    Thread

    United Kingdom: reMEmber news

    Merged threads "The charity, reMEmber, for people with ME (Chronic Fatigue Syndrome), has been awarded the grant by the Sussex Community...
    Thread by: Sly Saint, Apr 24, 2019, 29 replies, in forum: News from organisations
  12. Sly Saint
    Thread

    Article: Woman with ME models and dances with her wheelchair in George at Asda ad to show ambulatory wheelchair users exist -Feb 2020

    Kate Stanforth lives with myalgic encephalomyelitis (ME) – a condition that is also known as chronic fatigue syndrome (CFS). Her symptoms started...
    Thread by: Sly Saint, Feb 21, 2020, 2 replies, in forum: General ME/CFS news
  13. Sly Saint
    Thread

    BBC Radio York - Bill Clayton ME Awareness 21st Feb 2020

    [MEDIA] [IMG] Bill Clayton @clanman3 Hoping to be on BBC Radio York on 103.7 FM on Fri between 7 and 10 pm. As my head doesn't always...
    Thread by: Sly Saint, Feb 19, 2020, 1 replies, in forum: General ME/CFS news
  14. Sly Saint
    Thread

    podcast: Betterknown - Margot Livesey (Emma Shorters aunt) talks about M.E. Feb 2020

    For the hundredth episode, Margot Livesey talks to Ivan about six things which she thinks should be better known. Margot Livesey is a novelist....
    Thread by: Sly Saint, Feb 16, 2020, 1 replies, in forum: General ME/CFS news
  15. Sly Saint
    Thread

    Young carers awareness day Jan 30th : article- 'One day it just got too much': The hidden lives of young carers

    According to the last census, there are 166,000 young carers in England, but recent research suggests that the actual figure may be as many as...
    Thread by: Sly Saint, Feb 1, 2020, 2 replies, in forum: General ME/CFS news
  16. Sly Saint
    Thread

    Article: Former weightlifter tells how illness left her unable to get out of bed Jan 2020

    A former weightlifter has told how an illness left her unable to get out of bed. Gemma Allen, from Earby, spends most of her day lying in...
    Thread by: Sly Saint, Jan 11, 2020, 1 replies, in forum: General ME/CFS news
  17. ME/CFS Skeptic
    Thread

    #MEawarenesshour every wednesday on twitter

    It thought this was an idea worth considering, as online presence seems like one of the most powerful assets of the ME/CFS community. As I...
    Thread by: ME/CFS Skeptic, Jan 4, 2020, 38 replies, in forum: General Advocacy Discussions
  18. Sly Saint
    Thread

    Article: It took me eight years to convince docs something was wrong after ME left me 'unrecognisable' - Dec 2019

    A MODEL has revealed how her life was left “unrecognisable” after being blighted by a cruel energy-sapping disease that took eight years to...
    Thread by: Sly Saint, Dec 24, 2019, 7 replies, in forum: General ME/CFS news
  19. Sly Saint
    Thread

    Article: My illness makes me feel like I've run a marathon after two bottles of wine - Dec 2019

    Smiling for the camera, radiant Catherine Allen looks a picture of health and happiness. Yet her life has been blighted by a cruel energy-sapping...
    Thread by: Sly Saint, Dec 17, 2019, 2 replies, in forum: General ME/CFS news
  20. Sly Saint
    Thread

    Article: Tesco launch sunflower lanyard scheme to help shoppers with hidden disabilities Dec 2019

    Tesco has taken steps to help shoppers with hidden disabilities by launching the sunflower lanyard scheme in stores across the UK. The...
    Thread by: Sly Saint, Dec 5, 2019, 0 replies, in forum: General disability topics and advocacy
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