Discussion in 'General ME/CFS News' started by Andy, Jan 18, 2019.
I think this idea deserves more attention. Thanks to @obeat for highlighting it on another thread as an idea that could be adopted in other regions. It would be good to hear more about the American group and the proposed European group.
Website has been created for the Council, http://www.emecc.org/index.shtml
My reservation is that this has already been going for for some time under the auspices of EUROMENE. IiME were certainly helpful in getting researchers together over the last ten years. But the EUROMENE group has been around a good while and became an active enterprise with the EU COST grant awarded to Uldis Berkis. Over the last two years clinicians throughout Europe have been collaborating on pretty much every aspect of ME, producing guidelines and recommendations. I do not see a need for an additional organisation.
There is also the problem that organisations with names like 'Clinician Council' inevitably attract people who talk a lot and want to be important. The great thing about EUROMENE is that it is pretty much free of that because it is just trying to get a job done.
This is very confusing.
So there is EUROMENE, The European ME Alliance (EMEA) and now EMECC.
This seems counterproductive in an environment where there is so little good research and clinical care for ME. Surely a single organisation would be better.
Separate names with a comma.