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George Monbiot on ME/CFS, PACE, BPS and Long Covid

Discussion in 'General ME/CFS news' started by Robert 1973, Jan 8, 2021.

  1. Andy

    Andy Committee Member

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    Hampshire, UK
    Lidia, DokaGirl, cfsandmore and 27 others like this.
  2. Sean

    Sean Moderator Staff Member

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    The HRA report in no way exonerates or supports PACE. All it says is that PACE ticked the legal, administrative, and ethical boxes as they existed at the time.

    It is not anything for PACE to hang their science on. The HRA couldn't have made that any clearer within the context and system.

    Their statements about the report's limits is the important part of that document. It was sending an explicit message to the PACE crowd that they could not use this document to dismiss technical criticism of their methodology.

    PACE authors misrepresenting what the report actually said or didn't say can't be blamed on the HRA.
     
    Solstice, Mithriel, ukxmrv and 15 others like this.
  3. Esther12

    Esther12 Senior Member (Voting Rights)

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    I really disagree with that. My reading is that the HRA's 'report' was designed to support PACE as much as it could. To me, it read like a PR project and I think there's a lot of spin in it.
     
  4. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    So no scary info on cigarette packs then? No other health warnings about anything? No health and safety info? No warnings about operating heavy equipment after taking certain drugs? Apparently, shouldn't warn people about anything because this will cause negative outcomes.

    :banghead:
     
    Wits_End, inox, alktipping and 15 others like this.
  5. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Their response is shocking. Is there no follow up requirement written into these studies? Apparently not! Where are the ethics committees on this?
     
    Last edited: Apr 20, 2021
    shak8, inox, alktipping and 6 others like this.
  6. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    How far does this definition of normal go? How dire do symptoms have to be? Many pwME have tachycardia with exertion, or feeling faint. Were they urged to just keep going?
     
    alktipping, MEMarge, Simbindi and 5 others like this.
  7. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    About reactions to prescriptions and dismissal of side effects - absolutely and totally correct. Repeatedly the case.
     
    ukxmrv, alktipping, MeSci and 3 others like this.
  8. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    I too am hoping, despite living in the frozen North. We need this kind of coverage here! Fortunately, we can read George Monbiot's articles online. May others soon follow his leadership.
     
    alktipping, Simbindi, MeSci and 5 others like this.
  9. Hutan

    Hutan Moderator Staff Member

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    Aotearoa New Zealand
    alktipping, Michelle, MEMarge and 3 others like this.
  10. Wyva

    Wyva Senior Member (Voting Rights)

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    So this probably isn't new information to many of you but it was to me because I didn't really know who George Monbiot was before the Michael Sharpe incident. Very recently I also saw him in the documentary Seaspiracy as one of the people sharing their opinion on the subject of industrial fishing and its dangers to marine wildlife. So I looked him up on Wikipedia and this is what I found:

    OK, now I see why you are saying that a bunch of psychiatrists are unlikely to scare him. I'm impressed.
     
    Wits_End, Chezboo, Tia and 34 others like this.
  11. Barry

    Barry Senior Member (Voting Rights)

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    The fact MS tries to use it as a justification for their science, shows just what wafer thin ice he knows they are on.
     
    Ariel, inox, Mithriel and 19 others like this.
  12. EzzieD

    EzzieD Senior Member (Voting Rights)

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    Wow, I didn't know all that about him either. Now there's someone who has experienced real threats and abuse, which makes the BPS crowd's whiny claims of threats and abuse from very ill, incapacitated patients look even sillier than they already do. GM is indeed an impressive guy.
     
    JellyBabyKid, Chezboo, Ariel and 21 others like this.
  13. Sean

    Sean Moderator Staff Member

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    Monbiot also had prostate cancer and a full prostatectomy, and then COVID and Long Covid.

    I doubt there is much left in this world to intimidate him.
     
    shak8, Ariel, inox and 18 others like this.
  14. Barry

    Barry Senior Member (Voting Rights)

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    f*** a d***!!!
     
    shak8, Missense, DokaGirl and 2 others like this.
  15. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Even though Canada doesn't share as many Britishisms as some other countries do, we do share this one @Barry. :);)
     
    shak8, Missense, Amw66 and 2 others like this.
  16. Amw66

    Amw66 Senior Member (Voting Rights)

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    I wonder if GM has any idea re state of paediatric research and what families go through.
    That's a whole different ball game.
     
    Barry, JemPD, MEMarge and 7 others like this.
  17. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Maybe @Jonathan Edwards could put GM in touch with Nigel Speight or provide a link with the radio program, was it File on 4, @Sly Saint.
     
    shak8, Michelle, Amw66 and 5 others like this.
  18. Suffolkres

    Suffolkres Senior Member (Voting Rights)

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    Very good and welcome suggestion.
     
  19. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    If talking about ME, infects others with this "psychological ailment", why has no one around me, for the 3 decades I've had this, developed ME?
     
    Missense, Tia, shak8 and 16 others like this.
  20. Hutan

    Hutan Moderator Staff Member

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    Location:
    Aotearoa New Zealand
    MEMarge, alktipping and Andy like this.

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