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Esther Crawley - (what drives her) plus quotes

Discussion in 'PsychoSocial ME/CFS News' started by Sly Saint, Nov 20, 2017.

  1. Allele

    Allele Senior Member (Voting Rights)

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    So to speak
     
  2. Sean

    Sean Senior Member (Voting Rights)

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    "non-operative treatment... ...of acute uncomplicated appendicitis in children.'"

    If Crawley's track record is any guide, then Bristol is going to be facing lawsuits for avoidable peritonitis, and worse.
     
    Last edited: Mar 7, 2018
    Inara, Valentijn, Jan and 4 others like this.
  3. Amw66

    Amw66 Senior Member (Voting Rights)

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    I had thought this was s replication study but there are differences to the previous research from Finland.
    Only taking follow up to 6 months looks like it may be maximising outcomes ( again)
     
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Anyone looked at her CFS clinics site recently?
    Evidence Based Treatment
    We believe that all clinical care should have an evidence base. We therefore only offer treatment that has been recommended by NICE. Professor Crawley leads a research team based at the University of Bristol which conducts research in to the causes and treatment of CFS/ME. This means that all the treatment offered by the clinical team is based on the most up-to-date research results.

    Our service featured in mainstream media
    Esther Crawley explains why we do paediatric trials in CFS/ME:
    Professor Crawley's TEDx talk, (November 2017)



    http://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/index.asp
     
    MEMarge, JohnTheJack, Woolie and 8 others like this.
  5. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    That's weird, because the Lightning Process certainly isn't recommended by NICE!
     
  6. Inara

    Inara Senior Member (Voting Rights)

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    Maybe they offer it off-label for private payers :D You know, "science has shown it can cure you"...and desperate people will believe...
     
    MEMarge, Woolie, ladycatlover and 2 others like this.
  7. Alvin

    Alvin Senior Member (Voting Rights)

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    Gaslighting the public is in vogue these days...:emoji_face_palm:
     
    MEMarge, Inara, ladycatlover and 2 others like this.
  8. large donner

    large donner Guest

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    Do the NICE guidelines say to rediagnose people with PRS if they don't improve with the current treatments.
     
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  10. Esther12

    Esther12 Senior Member (Voting Rights)

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    MSEsperanza likes this.
  11. rvallee

    rvallee Senior Member (Voting Rights)

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    Hubris is rarely expressed this clearly. Great example of Dunning-Kruger as well. This is exactly the opposite attitude someone working in a life or death profession should adopt. This explains a lot. Don't get high on your own farts, people.
     
  12. seanpaul

    seanpaul Established Member

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    after she started in CFS she contacted Peter White and asked him how to win grant money - he became her mentor

    she then asked Davey-Smith how could she access the ALSPAC dataset - he helped her with that

    her NIHR talk is very very informative - she was bored, gave up research after PhD, started in CFS because of an advert to set up service
     
    ladycatlover, Webdog, Amw66 and 5 others like this.
  13. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Last edited: Feb 22, 2019
  14. James Morris-Lent

    James Morris-Lent Senior Member (Voting Rights)

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    For all of you out there bored as hell, just take a moment to reflect on the damage that you are currently not doing.

    ...

    Good. Carry on with your distractions.
     
  15. Amw66

    Amw66 Senior Member (Voting Rights)

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    I' m sorry. I have not long eaten and now feel sick
     
    MEMarge, Forbin and ladycatlover like this.
  16. Forbin

    Forbin Senior Member (Voting Rights)

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    Words to the wise... and the not so wise.

    TAE..jpg
     
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  17. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    Snowdrop and ladycatlover like this.
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    MEMarge, Esther12 and ladycatlover like this.
  19. Barry

    Barry Senior Member (Voting Rights)

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    When I saw this it struck me how similar this seems to the BPS people who never discuss, but simply bludgeon.
     
    MEMarge, Sean, rvallee and 1 other person like this.
  20. rvallee

    rvallee Senior Member (Voting Rights)

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    Yup. The parallels are obvious. The common foundation is hubris and shamelessness. Promote your idea, no matter what reality says. If you push it long enough, you can substitute reality (as long as you have friends in high places).

    Before them few people were talking about fatigue. Now it's all people know, no matter how wrong it is, because of relentless self-promotion and silencing of all opposition. This isn't science or even medicine, it's mostly politics and ideology, the illusion of competence through performative delivery of useless services.
     
    ScottTriGuy, Atle, MEMarge and 3 others like this.

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