Discussion in 'PsychoSocial ME/CFS News' started by Sly Saint, Nov 20, 2017.
So to speak
"non-operative treatment... ...of acute uncomplicated appendicitis in children.'"
If Crawley's track record is any guide, then Bristol is going to be facing lawsuits for avoidable peritonitis, and worse.
I had thought this was s replication study but there are differences to the previous research from Finland.
Only taking follow up to 6 months looks like it may be maximising outcomes ( again)
Anyone looked at her CFS clinics site recently?
Evidence Based Treatment
We believe that all clinical care should have an evidence base. We therefore only offer treatment that has been recommended by NICE. Professor Crawley leads a research team based at the University of Bristol which conducts research in to the causes and treatment of CFS/ME. This means that all the treatment offered by the clinical team is based on the most up-to-date research results.
Our service featured in mainstream media
Esther Crawley explains why we do paediatric trials in CFS/ME:
Professor Crawley's TEDx talk, (November 2017)
That's weird, because the Lightning Process certainly isn't recommended by NICE!
Maybe they offer it off-label for private payers You know, "science has shown it can cure you"...and desperate people will believe...
Gaslighting the public is in vogue these days...
Do the NICE guidelines say to rediagnose people with PRS if they don't improve with the current treatments.
Slides from a presentation (not sure when)
"What a journey! - Esther Crawley"
https://www.nihr.ac.uk/funding-and-support/documents/Day 1 - Career journey Ester Crawley.pdf
eta: she started her career in CF/CFS because she was bored.
That's a couple of years old I think - maybe from around the time she got NIHR funding?
I remember thinking it was funny.
Hubris is rarely expressed this clearly. Great example of Dunning-Kruger as well. This is exactly the opposite attitude someone working in a life or death profession should adopt. This explains a lot. Don't get high on your own farts, people.
after she started in CFS she contacted Peter White and asked him how to win grant money - he became her mentor
she then asked Davey-Smith how could she access the ALSPAC dataset - he helped her with that
her NIHR talk is very very informative - she was bored, gave up research after PhD, started in CFS because of an advert to set up service
she tells quite a different story in her inaugural speech; talks about her epiphanies.
eta: presentation is from Dec 2016
For all of you out there bored as hell, just take a moment to reflect on the damage that you are currently not doing.
Good. Carry on with your distractions.
I' m sorry. I have not long eaten and now feel sick
Words to the wise... and the not so wise.
CCAH report 2016-2017;
details Crawleys projects and costs including FITNET which is just under £1Million.
http://www.bristol.ac.uk/media-libr...FINAL VERSION-Jan18 (Julie Munro updated).pdf
When I saw this it struck me how similar this seems to the BPS people who never discuss, but simply bludgeon.
Yup. The parallels are obvious. The common foundation is hubris and shamelessness. Promote your idea, no matter what reality says. If you push it long enough, you can substitute reality (as long as you have friends in high places).
Before them few people were talking about fatigue. Now it's all people know, no matter how wrong it is, because of relentless self-promotion and silencing of all opposition. This isn't science or even medicine, it's mostly politics and ideology, the illusion of competence through performative delivery of useless services.
Separate names with a comma.