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Esther Crawley - (what drives her) plus quotes

Discussion in 'PsychoSocial ME/CFS News' started by Sly Saint, Nov 20, 2017.

  1. Amw66

    Amw66 Senior Member (Voting Rights)

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    http://mentalhealthdaily.com/2015/05/13/delusions-of-persecution-causes-symptoms-treatment/
     
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  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    upload_2018-1-4_13-18-31.png
    BBC news quote by the paediatrician Dr Esther Crawley from Voices from the Shadows website.

    upload_2018-1-4_13-24-7.png

    upload_2018-1-4_13-33-46.jpeg


    "The activists have their own strange beliefs about exercise. It has never harmed anyone with ME...."
    quote taken from Countrygirls notes at Crawleys last talk.
     
    Last edited: Jan 4, 2018
  3. Sbag

    Sbag Senior Member (Voting Rights)

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    I don't think it mentioned anything about recording the Lightning intervention sessions in any of the proposals, and what would be done regarding storage/usage of that information.
     
  4. Esther12

    Esther12 Senior Member (Voting Rights)

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    The idea of some PhD student having to listen to, and assess, all those loopy LP sessions is pretty funny. What must they have thought?!
     
    Last edited: Jan 10, 2018
  5. Barry

    Barry Senior Member (Voting Rights)

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    upload_2018-1-4_16-51-2.png

    What a surreal response that is from a scientist. Oh, I need a brain surgeon. No worries, there's a butcher's shop nearby and that does a lot with brains.

    Good to see EC accepts responsibility though ... I was beginning to wonder.
     
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  6. Sbag

    Sbag Senior Member (Voting Rights)

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    They were probably completely indoctrinated by the end of it!
     
  7. Woolie

    Woolie Committee member

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    That's not correct. It means that a good number are missing less than two days of school a week, and a good number are missing more. If "days missing" is normally distributed, the numbers in these two groups (more vs. less than 2 days) will be more or less even.
     
  8. Seven

    Seven Senior Member (Voting Rights)

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    We need copies of what this sessions entail and publish them ( any volunteers)?? :whistle:
     
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  9. Skycloud

    Skycloud Senior Member (Voting Rights)

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    And of course we know the most severe are not at school at all.
     
  10. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Change of direction for Esther Crawley?

    CONTRACT Study - CONservative TReatment of Appendicitis in Children (feasibility): study protocol for a randomised controlled Trial
    https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2520-z
     
  11. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

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    Let's hope so, but our gain would be another patient group's loss.

    Do you think she'll get them to stand in a circle and shout 'Stop!' at their infected appendixes?
     
  12. Allele

    Allele Senior Member (Voting Rights)

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    Was my first thought too! :alien:
     
  13. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I wonder what exactly is going on here. I have never previously come across the idea of doing a 'sort of' (or 'feasibility') study before, putatively, intending to do a proper study, other than the case of SMILE where it seems the sort of study turned out to be sort of the real study.

    And I wonder what Dr Crawley, a paediatric rheumatologist, is doing as an author on a study of appendicitis? Is it that she is considered now to be an expert on sort of studies of this sort?
     
  14. Allele

    Allele Senior Member (Voting Rights)

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    Sort of :rofl:
     
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  15. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    'A detailed programme of embedded qualitative and quantitative research to optimise recruitment to the feasibility RCT. It will also inform the design and conduct of any future RCT of non-operative treatment versus appendicectomy in the treatment of acute uncomplicated appendicitis in children.'

    This could mean absolutely anything, or nothing. It sounds like bullshit to me.

    I have a strong suspicion that this is a sort of trial to sort of see if appendicitis treatment can be made cheaper. So it will attract lots of money that could otherwise be used for looking after ill people.
     
  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Well I suppose she is a sort of expert..........on what exactly seems to vary

    expert on getting ethics approval, avoiding FOIs, dealing with troublesome parents...........coming up with names for trials.............making up definitions............the list is endless
     
    Last edited: Mar 5, 2018
  17. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Does anyone know how many psychologists are in the list of names of people involved?
     
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  18. Valentijn

    Valentijn Not a moderator

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    2 are in psych departments, not counting Crawley, who's a stealth-psychobabbler.
     
  19. Amw66

    Amw66 Senior Member (Voting Rights)

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    CBT anyone?
     
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  20. ladycatlover

    ladycatlover Moderator Staff Member

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    Have to say that was my first thought too... Followed by GET. Cos if you can get better with CBT you'll be deconditioned and need to get back to full health as lets face it stuff like appendicitis is merely MUS. [/sarcasm]
     
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