Discussion in 'PsychoSocial ME/CFS News' started by Sly Saint, Nov 20, 2017.
BBC news quote by the paediatrician Dr Esther Crawley from Voices from the Shadows website.
"The activists have their own strange beliefs about exercise. It has never harmed anyone with ME...."
quote taken from Countrygirls notes at Crawleys last talk.
I don't think it mentioned anything about recording the Lightning intervention sessions in any of the proposals, and what would be done regarding storage/usage of that information.
The idea of some PhD student having to listen to, and assess, all those loopy LP sessions is pretty funny. What must they have thought?!
What a surreal response that is from a scientist. Oh, I need a brain surgeon. No worries, there's a butcher's shop nearby and that does a lot with brains.
Good to see EC accepts responsibility though ... I was beginning to wonder.
They were probably completely indoctrinated by the end of it!
That's not correct. It means that a good number are missing less than two days of school a week, and a good number are missing more. If "days missing" is normally distributed, the numbers in these two groups (more vs. less than 2 days) will be more or less even.
We need copies of what this sessions entail and publish them ( any volunteers)??
And of course we know the most severe are not at school at all.
Change of direction for Esther Crawley?
CONTRACT Study - CONservative TReatment of Appendicitis in Children (feasibility): study protocol for a randomised controlled Trial
Let's hope so, but our gain would be another patient group's loss.
Do you think she'll get them to stand in a circle and shout 'Stop!' at their infected appendixes?
Was my first thought too!
I wonder what exactly is going on here. I have never previously come across the idea of doing a 'sort of' (or 'feasibility') study before, putatively, intending to do a proper study, other than the case of SMILE where it seems the sort of study turned out to be sort of the real study.
And I wonder what Dr Crawley, a paediatric rheumatologist, is doing as an author on a study of appendicitis? Is it that she is considered now to be an expert on sort of studies of this sort?
'A detailed programme of embedded qualitative and quantitative research to optimise recruitment to the feasibility RCT. It will also inform the design and conduct of any future RCT of non-operative treatment versus appendicectomy in the treatment of acute uncomplicated appendicitis in children.'
This could mean absolutely anything, or nothing. It sounds like bullshit to me.
I have a strong suspicion that this is a sort of trial to sort of see if appendicitis treatment can be made cheaper. So it will attract lots of money that could otherwise be used for looking after ill people.
Well I suppose she is a sort of expert..........on what exactly seems to vary
expert on getting ethics approval, avoiding FOIs, dealing with troublesome parents...........coming up with names for trials.............making up definitions............the list is endless
Does anyone know how many psychologists are in the list of names of people involved?
2 are in psych departments, not counting Crawley, who's a stealth-psychobabbler.
Have to say that was my first thought too... Followed by GET. Cos if you can get better with CBT you'll be deconditioned and need to get back to full health as lets face it stuff like appendicitis is merely MUS. [/sarcasm]
Separate names with a comma.