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Cochrane ME/CFS GET review temporarily withdrawn

Discussion in 'PsychoSocial ME/CFS News' started by Trish, Oct 17, 2018.

  1. Jez

    Jez Established Member

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    Outstanding! Big thanks to all those who've done the hard yards on this front. What a milestone. BMJ must be feeling the pressure.
     
  2. Roy S

    Roy S Senior Member (Voting Rights)

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    Good find!

    from that article-
    "Raising further questions about her objectivity as a science reporter are Kelland’s ties to the Science Media Centre..."
     
  3. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Training videos for English GP's on how to deal with CFS patients

    Vignette 5
    Reconstruction of a typical GP consultation

    Dr Clare Gerada (Simon Wessely's wife) and Alicia Deale (playing the patient):

    "...can I have a little look at
    your diary?.....I think what your diary shows is again how important it is that we develop a consistent approach because what we talked about was that it's important that we break this association between activity and your symptoms .... we've talked before about the fact that you walk at the moment to the bus stop to go to work, how long extra would it be if you walk to the next bus stop?...."

    "...what we're trying to do here as I've said to you is to break this association between activity and your symptoms because equally if you feel rotten I still want you to do that activity...even if you're absolutely exhausted I still want you to do your ten minute walk in the morning and the ten minute walk in the evening after work...

    Alicia Deale (Patient): 'Is that going to be safe?'

    Clare Gerada: it will be safe - all the evidence that we've put together and all the the research literature shows that is absolutely safe you will not do yourself any harm..."



    http://www.veo h.c om/watch/v19931890Xyz2eEn7
     
    Woolie, janice, Jan and 26 others like this.
  4. Roy S

    Roy S Senior Member (Voting Rights)

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    this is the original tweet by Peter Tatchell there that I can't make appear here-
    (aversion therapy...talk about a piece of crap...)

     
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  5. Esther12

    Esther12 Senior Member (Voting Rights)

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    I'm still thinking all this stuff through, but (not forgetting how terrible Cochrane has been for years) I think I am impressed they have been willing to take on Wessely & co by withdrawing this review, even as Cochrane has all of the other drama going on. Maybe that shows my standards are now depressingly low, as those political considerations really shouldn't be allowed to lead to patients and clinicians being left with a seriously flawed review... but in many ways this seems the time when the cost of withdrawing the review is highest for Cochrane. I bet they wish they'd dealt properly with things earlier.

    Maybe all the other drama made Tovey 'fuck it, I'm retiring soon, I'll just do what's right'?
     
    Woolie, Lidia Thompson, Jan and 32 others like this.
  6. pteropus

    pteropus Senior Member (Voting Rights)

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    has anyone estimated how many millions of people were harmed by this dangerous treatment ?

    this news is very welcome, but i wonder how much physical and emotional trauma was incurred, worldwide, through GET & CBT.

    admitting the faults in the original 'systematic review' would leave them open to HUGE legal liabilities.
     
    Last edited: Oct 18, 2018
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  7. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  8. Cheshire

    Cheshire Moderator Staff Member

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    Last edited: Oct 18, 2018
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  9. Sbag

    Sbag Senior Member (Voting Rights)

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    Sharpe has just tweeted the link to the article - roll on the comments!
     
  10. Amw66

    Amw66 Senior Member (Voting Rights)

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    No doubt fishing for militant activist quotes / evidence
     
  11. Kalliope

    Kalliope Senior Member (Voting Rights)

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  12. Kalliope

    Kalliope Senior Member (Voting Rights)

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  13. SallyC

    SallyC Senior Member (Voting Rights)

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    Has anyone else read the Reuters Trust principles at the bottom of the article?

    For instance:

    "That the integrity, independence, and freedom from bias of Thomson Reuters shall at all times be fully preserved"

    There is an email address at the bottom if you have comments, I am going to do my best to send one regarding bias towards GET proponents, lack of accurate reporting regarding current views of GET and lack of comment from the people who have criticised the review using sound scientific facts. Also that Colin Blakemore does have CoI given PACE was begun under his time at MRC.

    I don't really have the energy for this but it is so important.
     
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  14. Skycloud

    Skycloud Senior Member (Voting Rights)

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  15. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Seconding the thanks to all involved, especially Bob, @Tom Kindlon and @dave30th.

    Now hoping that independent media and another news agency than Reuters will spread the news in a more objective manner.

    And hoping to soon receive the answer "Content not available" when clicking the link to the review.

    And again and again, thinking of Bob.

    But this is an image that keeps cheering me up:

     
    Last edited: Oct 18, 2018
    Woolie, sea, Jan and 21 others like this.
  16. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Who is Tracy King and what is it she is worried about - her job?
     
  17. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    'Tracy King is a writer, producer and science populariser. Before turning to animation, she ran a successful marketing and PR company, during which time she created major science and critical-thinking events and had an early viral video success with her marketing campaign for Prof. Richard Wiseman’s book Quirkology.' From here: https://www.foundry.com/events/its-not-rocket-science

    In other words, she does 'critical' pieces about popular science.
     
    Last edited: Oct 18, 2018
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  18. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    Most of us don't discuss that though - it is deliberate mischaracterisation of our arguments by people who haven't bothered to listen to us.
     
  19. chrisb

    chrisb Senior Member (Voting Rights)

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    Surely it was a joke by Tracy King. Or am I missing the joke by stating that?
     
  20. Andy

    Andy Committee Member & Outreach

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    I wondered that. Her Twitter bio says
    By the evidence of her tweet, she debunks things based on the headlines of media stories that she reads..
     

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