Blog: "The Death Threat Myth Exposed", Jennie Spotila

[Arnie Pye]

https://www.s4me.info/threads/the-me-scandal.19828/

https://www.s4me.info/threads/uk-cmrc-conference-2016-video-of-esther-crawleys-lecture.6890/

https://www.s4me.info/threads/esthe...s-2nd-bristol-disrupting-your-view-of-me.286/

https://www.s4me.info/threads/bette...ter-data-25th-october-2017-esther-crawley.75/

I didn't realise initially that it was a tag search. And once I did I wasn't sure how to put two separate search terms in to the search. I only got it to work by putting the first search term in, doing the search. then using the back button to add the second search term.

This post has been copied and the discussion of how to use tags moved to this thread: 'tags' at top of threads.....how to create/use them

 

[Andy]

Trial By Error: Jennie Spotila Tracks Down–and Busts–an Old Tale About “Death Threats” from Patients

In early 2011, the first report of the PACE results in The Lancet drew widespread criticism from patients and advocates. Later that year, stories about unhinged, anti-science patients harassing and threatening leading researchers in the field appeared in high-profile UK outlets like BMJ and The Times. In the UK, this appears to have been orchestrated with the help of the so-called Science Media Centre, which has always backed the crap produced by the members of the biopsychosocial ideological brigades.

The rumors of “death threats” from ME/CFS patients were not, however, confined to the UK. In her blog Occupy M.E., Jennie Spotila last week excavated how the “death threats” meme traveled to the National Institutes of Health–and finally gets to the bottom of the story. You can read it here or below; I am re-posting it in full with her permission.

https://www.virology.ws/2021/04/14/...n-old-tale-about-death-threats-from-patients/

 

[DokaGirl]

So discouraging and appalling that information, if one can call it that, based on something akin to the children's game, ie, the telephone game, can help to ruin the lives of millions.

 

[DokaGirl]

And, if this is the ongoing fear at NIH, it may go some way to explaining why NIH severely restricts funding for ME. It stands to reason, if you're afraid for your life, why would you fund these supposed dangerous people? And why would such awful people deserve any help? Like @rvallee pointed out, this is maybe one of the biggest log jams in our way.

Of course, it doesn't explain the rationale behind continuing to research a disease these "undeserving, dangerous radicals think they have."

 

[DokaGirl]

And, who are these dangerous ME militants who have enough health and energy to march with guns to the NIH? Most people with ME can barely get up the energy to make a salad!

Good Grief! It seems to me some in the largest medical research facility in the world need to go back and review what scientific evidence is.

 

[DokaGirl]

It would go some way to clearing this up, and helping the ME reputation if NIH would blog about this, explain as Jennie Spotila has done. And thanks very much to Jennie for doing so!