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"The ME scandal"

Discussion in 'General ME/CFS News' started by Marky, Mar 28, 2021.

  1. Marky

    Marky Senior Member (Voting Rights)

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    Hey

    Someone anonymous from Norway have produced a very thorough two part series on different topics (PACE, Lightning Process etc.)

    It has english subtitles so everyone can watch

     
    Marit @memhj, Atle, Imse and 36 others like this.
  2. alktipping

    alktipping Senior Member (Voting Rights)

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    all that hand waving is exhausting .
     
    Kitty, Invisible Woman and DokaGirl like this.
  3. Campanula

    Campanula Established Member (Voting Rights)

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    Just finished seeing this and it's really, really good. It's a long watch, but absolutely undoubtably worth it. I've known about these things going on for quite some time, but seeing them systematized and presented in a coherent framework is pretty shocking. I'm wondering what will happen to the central actors in the scandal when all this reaches the mainstream? Will there be lawsuits? Will it change the way medical research is being conducted?
     
    Atle, Marky, MEMarge and 9 others like this.
  4. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    I tried and lasted a couple of minutes. Normally, I'm fine with subtitles but the hands moving either side of where the subtitles appear just melted my brain & I couldn't filter them out.
     
    Marky, MEMarge, Yessica and 5 others like this.
  5. Trish

    Trish Moderator Staff Member

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    Me too. I wonder whether the video could be edited by whoever produced it to remove the moving hands.
     
    Marky, Yessica, mango and 3 others like this.
  6. JemPD

    JemPD Senior Member (Voting Rights)

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    Yeah i agree unfortunately. Subtitles are very hard at the best of times, but attempting to tune out the movement while reading is impossible for me after just a few minutes. Man that is a serious 'battery drain' i'll never get my microwave ready-meal tonight if i carry on trying to watch it. Shame as it looks good
     
    MEMarge, Yessica, mango and 5 others like this.
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Don't know if this helps
    here are the subtitles for the first part (PACE trial)
     
    Lidia, Mithriel, Marky and 10 others like this.
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    2nd bit on Wyller etc and counter arguments (pt1)
     
    Mithriel, Marky, alktipping and 5 others like this.
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    pt2 of above
     
    Lidia, Marky, Invisible Woman and 7 others like this.
  10. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    3rd bit on LP, Crawley,Live Landmark pt1
     
  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    pt2
     
  12. Kitty

    Kitty Senior Member (Voting Rights)

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    If anyone wants to watch it on a laptop or desktop, I think it might be possible to block the hands by making a couple of blank browser windows, and sizing and positioning them so they cover them. Fortunately, the subtitles seem to occupy a narrow space in the centre of the screen – I've only watched a few minutes so far, but I haven't seen the text stray outside this zone.

    I've uploaded photo of how I set it up on mine. I use blank windows all the time, for instance to cover all the avatars down the left-hand side of the screen on S4ME.

    Screenshot 2021-03-30 at 19.06.39.png
     
  13. Barry

    Barry Senior Member (Voting Rights)

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    Just watched this, and very, very impressed. I don't have ME/CFS, and I still agree the hand waving is distracting. I had the sound off.

    Although it doesn't say anything that most people here won't already know, it does a super job of pulling most of the useful advocacy information together into a single presentation, which I think is a plus point not to be under-estimated. You could point someone towards this one presentation, and by the end of it will have covered enough material to have a very good overall insight into the the big issues, and names behind those issues.

    Very good at developing lines of argument and pulling the threads together into coherent easily understood conclusions. Over and over, taking various subject areas. Hard hitting but objectively so.

    I think the presentation possible works better if you just listen. I'm OK with subtitles usually, but a bit of an afterthought here maybe. But I think this could be a seriously beneficial bit of advocacy towards those new to the ME/CFS issues, but want to get up to reasonable speed with the fundamentals in a single primer.
     
    Atle, Marky, Invisible Woman and 8 others like this.
  14. Sean

    Sean Senior Member (Voting Rights)

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    Adjusting the subtitle settings to maximise their visual presence/dominance over the hands is helping me a lot.

    Font colour - Green
    Font size - 400% (maximum)
    Background colour - Black
    Background opacity - 100%
    Window colour - Black
    Window opacity - 100%
    Font opacity - 100%
     
    MEMarge, Marky, Amw66 and 7 others like this.
  15. Imse

    Imse Established Member

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    Really good summarizing of the ME scandal in Norway. I've only been able to watch part 1, or listened to, because of the waving hands.

    For those who you who need to read the subtitles, You could try to stick some sticky notes on your screen to cover up those really disturbing hands.

    It is so worth to see this documentary.
     
    Last edited: Mar 31, 2021
    MEMarge, Marky, Campanula and 8 others like this.
  16. Pineapple

    Pineapple New Member

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    This is a great watch! The documentary is in two parts, which is easy to overlook.
    Here is part two, since it hasn't been linked to previously;




    A thread describing the documentary "like a scientific Unrest movie":

     
    Last edited: Apr 1, 2021
    MEMarge, MSEsperanza, Atle and 8 others like this.
  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    from 14:46 the Cochrane exercise review

     
  18. Barry

    Barry Senior Member (Voting Rights)

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    If you can't see the subtitles then click on where I've highlighted. I could not see them at first.

    upload_2021-4-1_18-23-9.png
     
  19. Pineapple

    Pineapple New Member

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    A beautiful trailer with English subtitles was uploaded as well today. Definitely worth watching, only 95 seconds.

     
  20. Campanula

    Campanula Established Member (Voting Rights)

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