Abstract This article examines the contestation of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Lacking consistent diagnostic...
Someone calling themselves Long Covid Patient Action Group UK on Twitter has announced protests calling for more research into long covid outside...
Bridget Mildon created FND Hope International, and is very active in supporting the concept of functional neurological disorders. She wrote about...
Last week, an old story was recounted to a new audience. During the March 30, 2021 NIH telebriefing with the ME/CFS community, Dr. Vicky...
Is your age within the range of 18 to 35? Do you identify as a disabled person? Do you currently live in a European State? Do you have experience...
Recommendations From the Twitter Hashtag #DoctorsAreDickheads: Qualitative Analysis https://www.jmir.org/2020/10/e17595/ Background: The social...
Objectives: To describe the role of the internet and cognitive biases in the controversy surrounding chronic Lyme disease. The attribution of...
But I thought activism was bad??? Academic journals must become more “activist” if they are to survive, seeking to “change the direction of...
Activism and new ways of getting input from a much wider range of patients and communities are needed to advance patient and public partnership in...
..almost as soon as ACT UP formed, a group within ACT UP realized: it would not be enough to inform the world of our plight and put the people in...
Moderator note: Posts on this thread have come from three places, this thread and the following two threads. They have been copied or moved to...
Moved from this thread Thought this was posted here already but I can't find it. So why are Dr. Sharpe and other clinical-translation...
After yet another round of news articles misrepresenting the views of "ME activists" can someone please point me at some actual views. Either...
A longish read. I skimmed through. An interesting quote from near the end: The activists questioned the gold standard of medical intervention...
Reuters: LONDON (Reuters) - The emails, tweets and blog posts in the “abuse” folder that Michael Sharpe keeps on his computer continue to pile up....
Throughout history, activism and campaigning have been a driving force for positive change across the world. From civil rights to LGBTQ rights and...
Abstract Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) is a contested illness category. This paper investigates the common claim...
/Movement Action Plan/, by Bill Moyer. http://www.indybay.org/uploads/movement_action_plan.pdf excerpt: === STAGE TWO: PROVE THE FAILURE OF...
The Body - The Complete HIV/AIDS Resource Journalist Olivia G. Ford Using Lessons From HIV Activism, People With Chronic Fatigue Syndrome Fight...
I recently asked the Metropolitan Police Service about the existence of an 'activist list', alleged in an article by the late Michael Hanlon, that...
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