Silence is Death-What the HIV activists taught us (Tidsskriftet) Norway March 2019

A longish read. I skimmed through.

An interesting quote from near the end:

The activists questioned the gold standard of medical intervention research – the randomised, controlled trial – and showed how a series of normative assessments are made in all medical research, for example how study groups are composed. Thus, the activists succeeded in undermining the status of the randomised, controlled trial as representing an indisputable truth that was directly applicable to the real world.

ETA the missing link (thanks again to @Andy ) Next time the link goes in first.

https://tidsskriftet.no/en/2017/09/essay/silence-death-what-hiv-activists-taught-us

 

No link Snowdrop?

 

Again? Sorry folks. I spend so much energy getting the title right. Link now added.

 

THis is what we are missing more organized (shaming goverment and psys) campaign.

 

@Snowdrop - the date on the article is september 4th, 2017. Not that it matters much

Thanks for linking, don't think I read it at the time. Since I learned about ACT up and read up about what they actually were doing at the time, I've always wondered how the BPS-brigade would have reacted to some actual activists.

 

I must have quoted the today's date on viewing the article. <sigh>

They MAKE it complicated.

 

I thought the quoted part was interesting as I don't think everyone got the memo (about RCT's)
Certainly it must only apply to the US? For me this is something to bang on about. RCT are not a gold standard.

IMO this is another idea that must die. That and questionnaire's and the belief that they are giving some kind of definitive data rather than suggesting a place to start looking and only when the Q has been through much rigour and refinement (although that can go either way-finding what's there/finding what you want)