It’s simply not possible to describe the worst of this illness. I do think it would help, even a little, for people to see it in a video or a photo; to see it all.
But the last thing on his mind when the going gets tough is to capture my suffering on camera. When he’s trying to help me up to get me to the toilet, neither of us are thinking “Hang on, set the camera up, so people can see what it’s really like for us.”
No photo can ever portray how bad my M.E. can get. And I know from experience that even those who’ve had to witness it for themselves forget the brutality of it.
