Bath Fatigue Clinic - example of advice that harms child

[It's M.E. Linda]

Personally , i' d make the child the poster girl for millions missing in UK this year. But that may not be in mum'' s best long term interests.

I suspect that would really cause problems with Mum's legal rights.
But I understand your thinking. Missing Millions, indeed.

There seem to be a lot of legal questions to which one would like to know the answer, without seeking to undermine the confidentiality of any patients. Who is being appointed as Guardian ad litem in these cases? How is their independence guaranteed? To what extent are they taking into account the wishes of the child? What independent expert evidence are they seeking? To what extent are they willing to challenge witnesses for the authorities?Is there equality of funding for the parents in any cases (almost certainly not)? Are most of the cases brought within a narrow jurisdiction and heard by the same judge, or are they nationwide, and heard by a variety of judges?

I am sure there are many other issues which will occur.

Perhaps Tymes Trust, Dr Speight would know? See Dr Myhill's complaint to GMC too.

Dr Neigel Speight commented under @Spoonseeker 's blog:

We all (adults and children) need GP's with some old fashioned common sense.


Edit: Add Dr Myhill

 

[MEMarge]

From the last few examples it seems they are picking on the even more vulnerable, eg single Mums, non English speakers for their threats.
Some people have spoken privately with David Tuller and TYMES/DR Speight have helped c 200 cases.
BUT parents are terrified of the consequences of speaking out due to repercussions.
This seems to go on past childhood and the fear of your child being taken from the home. Older offspring can still have useful "services" withdrawn as a consequence and who knows what is included in your medical notes?

 

[Amw66]

From the last few examples it seems they are picking on the even more vulnerable, eg single Mums, non English speakers for their threats.
Some people have spoken privately with David Tuller and TYMES/DR Speight have helped c 200 cases.
BUT parents are terrified of the consequences of speaking out due to repercussions.
This seems to go on past childhood and the fear of your child being taken from the home. Older offspring can still have useful "services" withdrawn as a consequence and who knows what is included in your medical notes?

It seems it is easier to propose Munchausen by proxy for females, this enables the sate to intervene.
If anyone knows of MBP being mooted for fathers/ make relatives, feel free to correct me.

Having been back to PR to check Countrygirl' s posts it is apparent tbat i have picked the post up wrong - this is an ADDITIONAL child. The case highlighted pre Christmas awaits a decision. An information brochure, based on scientific research, with multiple contributers was collated on behalf of mum - we can only hope that it is read. Same area.

 

[MEMarge]

This is the UK.
Personally , i' d make the child the poster girl for millions missing in UK this year. But that may not be in mum'' s best long term interests.
People don' t know what they can' t see or hear, and that' s the problem.

We could always "do an EC" and put up a picture of a teenage girl, who is now significantly older and does not have ME.

Then we could say, actually this is not X, her parents are too terrified of the harrassment and further injuries she will sustain if her plight is made public.

 

[Amw66]

from the case I highlighted on PR pre Christmas - a depressing update posted by Countrygirl -http://forums.phoenixrising.me/index.php?threads/the-psychobabblers-strike-back-with-coffi-crawley-white-moss-morris-et-al.57276/page-2#post-950040

"For example, a mum has recently lost her legal rights over a child as the judge ruled that ME and POTS, despite all the evidence are psychiatric conditions.

The child has been made very ill by an enforced hospital admission for rigorous exercise therapy and now the allocated state-sanctioned person who has been awarded the legal rights over the child has arranged for the girl to be returned to the unit that made her very sick for yet more intensive physiotherapy as an inpatient, with mum denied access. The system generated by Crawley and her buddy White maintains that intensivie exercise is the cure for severe ME and the terrifed and powerless mum is now waiting for her very sick child to be snatched away again and returned to her previous hospital abusers for yet more exercise therapy. The thought of this makes me shudder!

The judge and the legal guardian take the view that the severe deterioration is merely a sign of the negative influence of the mother, not the consequence of the intensive exercise therapy.Now the poor severely sick child is waiting to be admitted for more vigorous exercise despite her present state being the outcome of the same treatment by the same doctor.

There is no legal avenue left as the court favours the evidence supplied by the BPS doctors .

Complaints about EC have been made to the GMC but they are dismissed. So far."

depressing reading

@Mike Godwin
perhaps this thread is worth a perusal to demonstrate the effects of poor research spun as significant

 

[Dolphin]

I thought this Twitter thread from today was worth sharing somewhere.

2 sample tweets: