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BACME list of ME/CFS Services in UK

Discussion in 'UK clinics and doctors' started by Sly Saint, Dec 10, 2024.

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  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    from their website
    Site Map - BACME



















































    the blue links go to dedicated pages with info on the BACME website.
    the green ones go to threads on this forum.
     
    Last edited: Dec 12, 2024
    Sly Saint, Dec 10, 2024
    #1
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  2. Hutan

    Hutan Moderator Staff Member

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    We are a bit constrained with moderation staff right now, but if someone can find the relevant threads and send me them in a conversation message, I'll add the links.
    Edit - adding some
     
    Last edited: Dec 11, 2024
    Hutan, Dec 10, 2024
    #2
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  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I've added a few.
    eta: will do some more as and when..
     
    Last edited: Dec 12, 2024
    Sly Saint, Dec 10, 2024
    #3
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  4. rvallee

    rvallee Senior Member (Voting Rights)

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    That's a lot of services that produce absolutely zero difference in outcome compared with health care systems that have no such thing. Such as here in Quebec, where we have no such services. It's just as bad here as it's in the UK. In fact, it's pretty much identical, in a 0=0 kind of way.

    Truly an impressive level of mediocrity. Because that's a lot of services. And it makes zero difference. Which no one involved in the services seem to mind, so you actually have two problems.
     
    rvallee, Dec 11, 2024
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  5. Hutan

    Hutan Moderator Staff Member

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    Yes. Also, the UK patient charities could be loudly and bluntly be saying, "look at the waste of money. These services are achieving nothing, in fact they are probably achieving net harm." But they don't, presumably believing that the services might magically become useful one day. In fact, some even cosy up to them e.g. the association with Gladwell, and do their work for them e.g. paying for the development of flawed tools that will be used to show how useful the clinics are.
     
    Last edited: Dec 11, 2024
    Hutan, Dec 11, 2024
    #5
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  6. MrMagoo

    MrMagoo Senior Member (Voting Rights)

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    It would be interesting to know what the “offer” of each service is. I know what it is for the Royal Free in Hampstead but I don’t think they’re listed.

    Basically - 12 week course held online, 2 hours session each week (!) 1 hour group discussions on pacing with a psych, 1 hour group physiotherapy with a physio.

    so we can say yes, there are clinics but they will see mild/moderate for 3 months then discharge back to GP.
     
    MrMagoo, Dec 11, 2024
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  7. MrMagoo

    MrMagoo Senior Member (Voting Rights)

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    MrMagoo, Dec 11, 2024
    #7
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  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Dec 16, 2024
    #8
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