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United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

Discussion in 'UK clinics and doctors' started by Andy, Nov 26, 2017.

  1. Andy

    Andy Committee Member

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    Location:
    Hampshire, UK
    Merged thread
    David Tuller seems to be on a tour of the UK :)
    http://www.iomtoday.co.im/article.cfm?id=37206
     
    Last edited by a moderator: May 26, 2022
    Indigophoton, MEMarge, MeSci and 15 others like this.
  2. Samuel

    Samuel Senior Member (Voting Rights)

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    538
    weeks?
     
    MEMarge, EzzieD, Scarecrow and 6 others like this.
  3. Esther12

    Esther12 Senior Member (Voting Rights)

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    That does read like a rather confused article. LOL at 'weeks'.
     
    MEMarge and Woolie like this.
  4. TiredSam

    TiredSam Moderator Staff Member

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    Nice. SMC obviously doesn't bother with the Isle of Man.
     
    MEMarge, EzzieD and Valentijn like this.
  5. John Mac

    John Mac Senior Member (Voting Rights)

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    Merged thread
    https://www.bbc.co.uk/news/world-europe-isle-of-man-48065779
     
    Last edited by a moderator: May 26, 2022
  6. April

    April Established Member (Voting Rights)

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    33
    No doubt they will consult the NICE guidelines and come up with the usual CBT/GET. Better off without the 'specialist services' that we have on the mainland.
     
  7. Hutan

    Hutan Moderator Staff Member

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    The Isle of Man would be a perfect place to have a registry of people with ME. With a population of about 85,000, it's big enough to have a good sample of patients, but small enough that any person with ME can be identified, invited to join, and periodically surveyed.

    Good luck to Craig Morris; I hope he has things well in hand as yes, when it comes to "specialist services" it's a matter of being careful what you wish for.
     
  8. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    That sounds like a great idea.
     
  9. John Mac

    John Mac Senior Member (Voting Rights)

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    That is a danger but as @Hutan points out with such a small population at least the individuals making the decision would be known and hopefully accountable for their decision, unlike the UK.
     
    Invisible Woman, Ash, Louie41 and 8 others like this.
  10. NelliePledge

    NelliePledge Moderator Staff Member

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    Hopefully they are just as likely to be influenced by what’s happening in NI with the work that’s going on there to change things as the GB approach. The petition was good and inevitably the BBC coverage seems to manage to twist it towards the BPS status quo
     
  11. MeSci

    MeSci Senior Member (Voting Rights)

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  12. TiredSam

    TiredSam Moderator Staff Member

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    I misread that as "BPS status ego".

    I'm misreading things more and more lately, with odd results.
     
    Invisible Woman, Ash, Louie41 and 6 others like this.
  13. NelliePledge

    NelliePledge Moderator Staff Member

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    Well it is a very apt misreading. Innnit :sneaky:
     
    Invisible Woman, Ash, Louie41 and 6 others like this.
  14. Wonko

    Wonko Senior Member (Voting Rights)

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    There is clearly something wrong with me.

    For some reason whenever I come across this thread the idea of the IoM being made into an internment camp for PwME goes through my head.

    Now I know this probably isn't rational, that the property values and availability of helicopters on the IoM are too high.

    But it still does, some part of this story is alarming to part of me and I don't know what.
     
  15. Trish

    Trish Moderator Staff Member

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    I've seen this several times recently. Where has it come from? It's nonsense.
     
    Invisible Woman, Ash, Louie41 and 5 others like this.
  16. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
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    Location:
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    well they did have a camp for “enemy aliens” using some of the hotels on the seafront in Douglas in the 2nd world war. I don’t want to get into politics so I will just say the likelihood of that idea really happening is probably pretty slim @Wonko but we live in strange times.

    ETA at least some of us would get to chat in person in between sewing mailbags
     
    Last edited: Apr 28, 2019
  17. rvallee

    rvallee Senior Member (Voting Rights)

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    Canada
    Lloyd? That's how he defines it anyway. Anyway, proponents always cherry-pick to align with their beliefs so the origin doesn't matter all that much.
     
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Merged thread

    https://www.youtube.com/watch?v=bXEeRDo12JQ




    Member for Rushen (Mr Speaker) to ask the Minister for Health and Social Care – If he will provide an update regarding the provision of a Chronic Fatigue Syndrome and Myalgic Encephalomyelitis service on the Island? Isle of Man TV channel - produced by Paul Moulton for PMC-TV

    eta: Youtube generated text.
    eta2 see also article by BBC
    https://www.bbc.co.uk/news/world-europe-isle-of-man-50059949?intlink_from_url=&
     
    Last edited by a moderator: May 26, 2022
    Louie41 and Invisible Woman like this.
  19. MeSci

    MeSci Senior Member (Voting Rights)

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    Not sure that a "neuropsychologist" is appropriate.
     
  20. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
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    Location:
    UK
    Merged thread
    full article
    https://meassociation.org.uk/2020/1...-for-specialist-me-cfs-service-on-the-island/
     
    Last edited by a moderator: May 26, 2022
    Hutan, Amw66, alktipping and 5 others like this.

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