Sly Saint
Senior Member (Voting Rights)
"The Lady's Handbook for Her Mysterious Illness" author on the only recourse for ailing women who are being ignored
Until recently, being catapulted into a health crisis was typically a solitary affair. Even if you had the privilege of great support and help, you still got sick on your own. You searched for a treatment plan on your own. You kept all the other plates in your life spinning on your own. Now, of course, we're all a facing catastrophic illness together, learning what it feels like when the ground gives way under our feet. Which is why we can learn a few things from those who've been there.
"The prologue is typical of women like me," author and musician Sarah Ramey writes in her new memoir. "A simple and innocuous medical event — often with a gyro or gastro tilt — that should have resolved simply, but didn't." For years after a seemingly minor infection and procedure for it, Ramey was living inside the identity of a chronically ill woman — one for whom doctors had no answers, except that perhaps her symptoms were psychological in their roots.
..........It's very clear that just in the past couple of years a community has arisen over these symptoms. Yet there is a lot of false information out there, a lot of misinformation, a lot of snake oil. There is hope for the medical community, but in the meantime, what would you say to women who are experiencing these mysterious illnesses?
https://www.salon.com/2020/04/07/ladys-handbook-for-her-mysterious-illness-sarah-ramey-book/..........If you have really severe chronic fatigue syndrome or really severe mystery illness or really severe Lyme, there are some centers like the Center for Complex Diseases, the Bateman Horne Center. Stanford has a myalgic encephalomyelitis, which is the other name for chronic fatigue syndrome, [initiative].