‘Help Holger now’ video about a Swedish man with very severe ME

mango said:
They are in particular looking for medical professionals like physicians etc, who have a genuine understanding of very severe ME, who would be willing to try and educate/talk to the ignorant psychiatrists about very severe ME.

Can anybody help? @Jonathan Edwards, do you maybe have any contacts that could be of help?
Click to expand...

I think it is best from not to get involved in management of individual patients. I have no real expertise and I know nothing about the case.

I think the problem we are faced with is that there are no medical professionals with a a genuine understanding of severe ME. There may be some with experience but none of us has understanding of what to do. Perhaps the most enlightened point of view is that we have no idea.

In that context I would be cautious about criticising any doctor trying to help, whoever they are.

There are too many unknowns.
 
Moderator note:

Several posts have been deleted.
Please do not discuss or speculate about the details of an individual's diagnosis or treatment. It is fine to express sympathy and provide information about possible sources of help.
 
Last edited:
#MEAction is hosting a petition for Holger
#HelpHolgerNow - Keep a severe pwME from forced institutionalization

Holger, a person with severe myalgic encephalomyelitis living in Sweden, is fighting to receive appropriate and informed medical care from doctors and caretakers who understand his disease. Doctors who do not understand his condition, or believe him, are now threatening to force him into institutionalized psychiatric care against his will.

These doctors have dismissed his symptoms of severe ME – his inability to eat, speak or sit up – as pervasive refusal syndrome, meaning that he is either consciously, or subconsciously withdrawing from the world because of some trauma, real or imagined.

ME is a multi-systemic disease, causing dysfunction of the immune, neurological, and energy metabolism systems. ME has been recognised by the World Health Organisation (WHO) as a neurological disease since 1969. ME is highly debilitating, leaving 75 percent unable to work and 25 percent home or bed bound. Approximately one out of 20 people with ME are severely disabled and totally dependent on others for their basic needs.

Holger’s family have launched an urgent appeal to prevent this forced institutionalization, and we need your help. Add your name to this petition now.
 
The poor guy.

Of course on top of everything - new housing that may not be as suitable, new carers who may not understand, new medical team he would be 180km away from his family. In other words completely isolated, unable to explain what he needs, unable to stand up for himself.

They must be crawling the walls with worry.
 
The ‘Help Holger Now’ Facebook page has just posted the following:

“They are thinking forced removing Holger according to LPT. They say he has a serious mental disorder. There are two doctors from Vaggeryd's health center who have decided this. They never met him before. Holger's regular doctor is connected now but they refuse to listen to him. Within an hour they say Holger is being picked up with police. If it happens, Holger may be dead this afternoon.

#helpholgernow”

I estimate this would have been posted 2.45pm Central European Time
 
Holger's brother writes on Facebook that Holger's father has been allowed inside the psychiatric emergency clinic (Länssjukhuset Ryhov, Jönköping) for a few hours. Holger has been calm but the room he has been put in is not dark.
 
You must log in or register to reply here.
Back
Top Bottom