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very severe me

  1. Nightsong
    Thread

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206 (preprint) @Jonathan...
    Thread by: Nightsong, Jun 27, 2024, 147 replies, in forum: ME/CFS research
  2. Yann04
    Thread

    Resources for caregiving on the Very Severe end of Very Severe ME

    Hi, I usually can only use my phone for a couple minutes every week or so but sleep deprivation and an unknown allergic reaction gave me lots of...
    Thread by: Yann04, Apr 4, 2024, 4 replies, in forum: General clinical care
  3. Sly Saint
    Thread

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    This thread is for social media and general media items about people in the United Kingdom with both ME/CFS and severe problems in achieving...
    Thread by: Sly Saint, Feb 23, 2023, 348 replies, in forum: General ME/CFS news
  4. mango
    Thread

    ‘Help Holger now’ video about a Swedish man with very severe ME

    Moderator note posts below have been moved from: https://www.s4me.info/threads/news-from-scandinavia.647/ "Help Holger now!" 13 minutes long...
    Thread by: mango, Jun 8, 2020, 87 replies, in forum: General ME/CFS news
  5. Tom Kindlon
    Thread

    Submissions are now sought for a special journal edition, "ME/CFS - The Severely & Very Severely Affected"

    Submissions are now sought for a special journal edition, "ME/CFS - The Severely & Very Severely Affected" Guest Editors: Dr. Kenneth Friedman...
    Thread by: Tom Kindlon, Feb 20, 2020, 3 replies, in forum: General ME/CFS news
  6. Eagles
    Thread

    ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst

    ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst...
    Thread by: Eagles, Aug 16, 2019, 3 replies, in forum: General ME/CFS news
  7. MyalgicE
    Thread

    Australian teenager tells story of threats and mistreatment

    A young woman with very severe ME contacted me to help tell her story. Over the past couple of months she’s told her harrowing story of...
    Thread by: MyalgicE, May 10, 2019, 30 replies, in forum: General ME/CFS news
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