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ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst

Discussion in 'General ME/CFS news' started by Eagles, Aug 16, 2019.

  1. Eagles

    Eagles Senior Member (Voting Rights)

    Messages:
    176
    ME Association: Very Severe ME: It’s Time for Something New! By Greg Crowhurst

    https://www.meassociation.org.uk/20...mething-new-by-greg-crowhurst-16-august-2019/

    This is the first of a series of blogs looking at pertinent issues regarding Very Severe ME and builds on Greg’s own experiences caring for his wife, Linda. It follows his recent contribution to Severe ME week.

    I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years. The personal cost to us both because of M.E. has been enormous.

    Communication is broken on every level. As soon as she has spoken, she forgets what she has said.

    If I speak or ask a question it can cause unimaginable confusion and head-pain, shaking spasms, and deterioration…
     
  2. Annamaria

    Annamaria Senior Member (Voting Rights)

    Messages:
    260
  3. Marky

    Marky Senior Member (Voting Rights)

    Messages:
    574
    Location:
    Norway
    That`s a terribly long time.. Two lives put on hold.. So much respect for them both.
     
    lycaena, Annamaria, Sarah94 and 8 others like this.
  4. Keela Too

    Keela Too Senior Member (Voting Rights)

    :cry: Thank you Greg.
    Sobering to read, but so important that these things are said.
    xx
     
    Annamaria, Eagles, Sarah94 and 10 others like this.

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