website

  1. Sly Saint

    UKFibromyalgia.com website

    I'm guessing that the link at the end is the source of their information(?). but if its for the UK why pick US info? not much thought seems to have gone into this. https://ukfibromyalgia.com/blog/me-amp-cfs
  2. Sly Saint

    NHS updates official advice on Chronic UTI for patients after pressure from campaigners

    NHS updates official advice on Chronic UTI for patients after pressure from campaigners (msn.com)
  3. Sly Saint

    UK: NHS website: Myalgic encephalomyelitis, chronic fatigue syndrome ME/CFS

    best NHS site is the NHS Scotland site https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/myalgic-encephalomyelitis-me-or-chronic-fatigue-syndrome-cfs...
  4. Sly Saint

    US: Consumer Health Digest: Chronic Fatigue Syndrome Exercise Therapy

    Exercise Therapy for Chronic Fatigue Syndrome You Must Know (consumerhealthdigest.com)
  5. Sly Saint

    USA: Osteopathic Family Medicine, LLC

    https://www.osteopathicfamilymedicine.com/ Patient education: Chronic fatigue syndrome https://www.osteopathicfamilymedicine.com/patient-education-topics/chronic-fatigue-syndrome
  6. Sly Saint

    USA: MEDvidi website

    Under 'chronic fatigue' https://medvidi.com/blog/symptoms-of-chronic-fatigue-syndrome
  7. Sly Saint

    NHS Health at Work website

    In dire need of updating links to 2006 Occupational Aspects of the Management of Chronic Fatigue Syndrome: a National Guideline 2008 Healthcare professionals leaflet 2008 Employers leaflet. https://www.nhshealthatwork.co.uk/chronic-fatigue.asp @adambeyoncelowe
  8. Adam pwme

    United Kingdom: Derbyshire Chronic Fatigue Syndrome (CFS/ME) Service

    My Local Clinic still haven't updated their website.
  9. Sly Saint

    United Kingdom: Norfolk and Norwich University hospitals (NHS)

    Chronic Fatigue Syndrome in Children JCG0051 v3.1 Joint Trust Guideline for: the Management of: CFS/ME in Children and Young People Author/s: Dr Aravind Shastri Author/s title: Service Director Approved by: CGAP Date approved: 03/06/2022 the following is hardly visible on the web page due to...
  10. Sly Saint

    Guidelines website aimed at healthcare professionals - summarises new NICE ME/CFS guideline

    This might be a good link to share, as it has an accurate summary of the new NICE guidelines, and is listed under Neurology. Apparently for use by UK healthcare professionals. Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management By NICE23 December...
  11. Sly Saint

    Encyclopedia Britannica website: entry on CFS

    in dire need of updating. Judging by the editing history, a lot of the misinfo comes from the Mayo clinic. most recently updated in Aug 19, 2021 https://www.britannica.com/science/chronic-fatigue-syndrome
  12. Sly Saint

    physio.co.uk website Chronic fatigue syndrome/ME

    no mention of PEM https://www.physio.co.uk/what-we-treat/chronic-pain-fatigue/chronic-fatigue-syndrome-me.php @PhysiosforME
  13. Sly Saint

    Physio-pedia

    physio-pedia pretty awful entry under chronic fatigue syndrome. the good news is it says that it is currently under review. https://www.physio-pedia.com/Chronic_Fatigue_Syndrome
  14. Sly Saint

    NHS England MUS page updated June 2021

    https://www.nhs.uk/conditions/medically-unexplained-symptoms/ should this page not now say " ME/CFS" and link to the new NICE guideline and specify that if diagnosed with ME/CFS (or ME/CFS is suspected) people should seek advice on ME/CFS 'treatment'.
  15. Sly Saint

    NHS Scotland website not yet updated Nov 2021

    This website is in need of updating. The first page isn't too bad but...... Chronic fatigue syndrome (CFS) GET and CBT stuff is still there and then there is this Living with chronic fatigue Even in its mildest form, chronic fatigue can have a significant emotional and financial impact on...
  16. Samuel

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    omf sent this out: vvv NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS A resource for clinicians and patients. The U.S. ME/CFS Clinician Coalition, a group of U.S. ME/CFS experts, has authored a handout on the basics of diagnosis and management of ME/CFS. This handout is being made...
  17. InitialConditions

    Harvard Health CFS website content

    https://www.health.harvard.edu/a_to_z/chronic-fatigue-syndrome-a-to-z This could really do with being challenged. Harvard has had some good material on ME/CFS over the past couple of years, especially with the launch of the Harvard ME/CFS Collaboration. I wonder if it's worth trying to get...
  18. W

    Website Tool : "Connected Papers" - Explore connected papers in a visual graph

    I thought this website tool might be useful for those folks wanting to see how papers are connected. There have been a few threads lately trying to chase back the early work of some investigators and how they may have affected the field. https://www.connectedpapers.com/ Here is an example for...
  19. ProudActivist

    NHS England web pages on ME/CFS

    I was looking at the MS page in the NHS website yesterday and noticed that it has a clear link to a guide for accessing care services at the bottom of the page. https://www.nhs.uk/conditions/multiple-sclerosis/ I thought I would check the CFS/ME page...
  20. Sly Saint

    USA - Mayo clinic

    This thread has been formed by merging several threads about the Mayo clinic and it's approach to treating ME/CFS Supposed treatments for ME CFS - plus overview by Mayo clinic https://www.drugs.com/condition/chronic-fatigue-syndrome-cfs.html Content supplied by Mayo clinic...
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