solve mecfs initiative

Carol Head is applying for a voting member position on CFSAC and posted a Twitter message that we can sign the letter through a form on their website. https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00031

RTI won the NIH funding for the Data Management Coordinating Center part of the Collaborative Research Centers funding.

Hello from the Solve ME/CFS Initiative. We want to share our latest news and research with you, but we also want to respect your space and not spam the forums. In order to do that, we are starting a monthly thread where will we add all of the latest news from SMCI. Throughout the month we plan...

ME/CFS Advocacy Day on Capitol Hill brings people with ME/CFS, their loved ones, advocates, scientists, clinicians and caregivers from across the country to meet other advocates, share their unique stories with members of congress, and call for action and research funding, together in one voice...

Hello from the Solve ME/CFS Initiative. We want to share our latest news and research with you, but we also want to respect your space and not spam the forums. In order to do that, we are starting a monthly thread where will we add all of the latest news from SMCI. Throughout the month we plan...

This one is a shocker. What a huge loss. i wonder whether he will remain in the field or not. https://solvecfs.org/dr-zaher-nahle-leaves-smci/

The Solve ME/CFS Initiative will be returning to Washington DC for the second annual ME/CFS Advocacy Day on Tuesday, May 15, 2018. Save the date! More details and a link to register will be available soon. ME/CFS Advocacy day is a full-day on Capitol Hill bringing people with ME/CFS and their...

https://solvecfs.secure.force.com/actions/kwac__takeaction

For those who aren't on the email list, the Solve ME/CFS Initiative group has updated their website. Here's the announcement from their mailing list: I only looked at it briefly but at first glance it looks better.

Read more here https://batemanhornecenter.org/dr-derya-unutmaz-explains-collaborative-research-center-crc-bhc/

Hello from the Solve ME/CFS Initiative. We want to share our latest news and research with you, but we also want to respect your space and not spam the forums. In order to do that, we are starting a monthly thread where will we add all of the latest news from SMCI. Throughout the month we plan...

Go direct to the newsletter, http://go.solvecfs.org/webmail/192652/56034262/84e1d7841020482702d2f139eb54c656adcc7b303ed3a93305e4ab13b6313018 You can subscribe to receive it via email here, http://solvecfs.org/get-involved/newsletters/

Source: Solve ME/CFS Initiative Date: February 15, 2018 Time: 18:00-19:00 UTC URL: https://register.gotowebinar.com/register/6998778927043568387 2018 Kickoff: 5 Biological Systems Impacted by ME/CFS ----------------------------------------------------- Dr. Zaher Nahle, Chief Scientific Officer...

This study has been ongoing a while - they want your 23andME etc. data - but it's a long-term one that needs tons of patients so it's worth mentioning again: http://www.nova.edu/nim/research/mecfs-genes.html Interesting short video explaining what's what...

Preview of the project. http://solvecfs.org/wp-content/uploads/2018/01/Chronicle_National_Patient_Registry.pdf ETA: Title, and minor formatting corrections.

http://solvecfs.org/2017-research-highlights-study-developments-on-our-radar/

Click to read, http://go.solvecfs.org/webmail/192652/53267832/5b9bbfcdab48d0d1ba6db90d1afacd9c5469133f4a3ad7914f41b9aa368f734e Their Facebook post https://www.facebook.com/SolveMECFSInitiative/posts/10155117254962108

Contents: Interview with Ian Lipkin November 2017 Research 1st – Dr. Nahle Letter An inside look at ME/CFS research funding with NINDS Director, Dr. Walter Koroshetz Dr. Nahle featured in two ME/CFS Articles Dr. Nahle Attends International ME/CFS Conference in Sweden 2016 Ramsay Team 2...