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Solve ME/CFS Initiative: Discovery Forum 2017: Presentation of Dr. Maureen Hanson

Discussion in 'General ME/CFS News' started by Andy, Apr 1, 2018.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

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  2. Alvin

    Alvin Senior Member (Voting Rights)

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    Very interesting
     
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  3. Forbin

    Forbin Senior Member (Voting Rights)

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    Dr. Hanson @ 3:33 [bolding mine]

    Perhaps it's time to declare that there is a biomarker.
     
  4. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    People have said this before, but CPET can make patients worse, which is why it isn't used more widely.
     
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  5. Londinium

    Londinium Senior Member (Voting Rights)

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    There does seem to be increasing evidence that would support two-day CPET as demonstrating a difference in ME/CFS patients to healthy controls. I'm not sure we're quite at the stage of saying it's a useful biomarker - we would need more data to replicate what has been discussed so far, plus wider testing of health conditions to demonstrate the second day drop-off as being truly unique to ME/CFS (though I believe some has already been done). And, as @adambeyoncelowe notes above, it's not a great biomarker if the test itself can make the patient (permanently?) worse: it's a bit like testing for a potential aneurysm by giving the patient drugs to raise their blood pressure to see if it bursts... 'Yep, we've confirmed the aneurysm. Sadly the patient died, but at least we've got a result!'. OTOH, it does at least provide objective evidence against the Tinkerbell view of ME/CFS.
     
  6. Skycloud

    Skycloud Senior Member (Voting Rights)

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    I'm really glad they got NIH funding, it all sounds like useful stuff and very interesting. I'm looking forward to publications.


    On a side note - I like that Dan Peterson is still sticking in there with us - not a quitter. He's going to need an "I told you they were sick!" t-shirt.
     
  7. Alvin

    Alvin Senior Member (Voting Rights)

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    This presentation is very similar to the one she made at the OMF symposium last year, in fact i bet its the same presentation with some updates

    I have to admit this made me laugh :emoji_smile:
     
  8. Andy

    Andy Committee Member (& Outreach when energy allows)

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  9. Sean

    Sean Senior Member (Voting Rights)

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    Spike Milligan's gravestone says (in Irish): 'I told you I was ill.'

    (Dúirt mé leat go raibh mé breoite.)
     
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  10. Skycloud

    Skycloud Senior Member (Voting Rights)

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    Just what I was thinking of :)
     
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  11. Sean

    Sean Senior Member (Voting Rights)

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    :D
     
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