1. Guest, 'News in Brief' for the week beginning 14th September 2020 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Solve ME/CFS Initiative: Discovery Forum 2017: Presentation of Dr. Ian Lipkin, Columbia University

Discussion in 'General ME/CFS News' started by Andy, Jan 11, 2018.

  1. Andy

    Andy Committee Member & Outreach

    Messages:
    10,462
    Likes Received:
    75,669
    Location:
    Hampshire, UK
     
    Rosie, Daisymay, Nellie and 8 others like this.
  2. Forbin

    Forbin Senior Member (Voting Rights)

    Messages:
    1,159
    Likes Received:
    8,405
     
    Ron, Invisible Woman, Dolphin and 7 others like this.
  3. Melanie

    Melanie Senior Member (Voting Rights)

    Messages:
    439
    Likes Received:
    2,360
    Wait, I could have sworn he had a heavy European accent I could barely understand. Is this someone else giving the presentation for Lipkin? Is this John Snow who you also have listed?
     
  4. Andy

    Andy Committee Member & Outreach

    Messages:
    10,462
    Likes Received:
    75,669
    Location:
    Hampshire, UK
    No, as a European I can confirm that Lipkin sounds American to me.
     
    Invisible Woman likes this.
  5. Melanie

    Melanie Senior Member (Voting Rights)

    Messages:
    439
    Likes Received:
    2,360
    I don't know who the heck was speaking in the past that I could not understand. I thought Lipkin had a heavy German or Czech accent. I almost didn't listen to this because I figured I would not be able to understand him.
     
  6. Solstice

    Solstice Senior Member (Voting Rights)

    Messages:
    293
    Likes Received:
    1,132
    Can anyone tell me the highlights? I ain't got the energy to watch the full clip, but pretty excited about the work they do.
     
  7. Trish

    Trish Moderator Staff Member

    Messages:
    25,775
    Likes Received:
    126,451
    Location:
    UK
    Just watched. A few highlights I recall:

    He talked about his own experiences over the last 3 decades with patients with ME/CFS and other conditions, including the work on demonstrating XMRV was not the cause of ME, and the good that came from that in the group built to work on it continuing to collaborate on future ME research.

    Other highlights for me - the difficulty of getting papers published when they are debunking a theory.

    The history of difficulty getting the NIH to fund ME research, for example his experience of applying 3 times for a particular project. The first time he was rejected because 'CFS is psychological', the second because 'CFS patients all have EBV', the third he got funding.

    And bringing up to date - pleased with the funding of the 3 centres, but lots of good projects 'left on the table' that should also have got funding.
     
    Last edited: Jan 13, 2018
    ahimsa, Alvin, inox and 9 others like this.
  8. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    3,689
    Likes Received:
    30,251
    Thanks for your notes Trish.

    That sounds interesting. Especially when some people still try to present XMRV/CFS as some sort of MMR/Autism parallel.
     
    Sean likes this.
  9. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    834
    Likes Received:
    6,901
    Location:
    Germany
    Charming. I would like to apologize on behalf of all Germans/Europeans that our English is not as good as that of native English speakers and that when we try to speak your language because you don't speak our language it's a nuisance for you to listen to us. Lipkin is one of the most famous ME researchers and American, so you are safe.
     
  10. Melanie

    Melanie Senior Member (Voting Rights)

    Messages:
    439
    Likes Received:
    2,360
    Taking offense is so easy. I am well aware many nations around the world cannot understand Americans when we speak their language and whoever this particular speaker was I could not understand him. So what. Being from the Philly area, we say it like it is.

    What I know about Lipkin, famous ME researcher or not is he is facing trial by Mady Hornig for sexual harassment, demeaning her and making her look bad in front of colleagues, and Autism funds being misappropriated into ME research. He also tried to keep her name off of research and held up some ME research unnecessarily.
     
    Last edited: Jan 14, 2018
  11. Diwi9

    Diwi9 Senior Member (Voting Rights)

    Messages:
    160
    Likes Received:
    1,430
    He also mentioned that the Hutchinson Foundation has some new findings. Sounds like there should be some sort of publication soon.
     
    Andy, Trish and Solstice like this.
  12. petrichor

    petrichor Senior Member (Voting Rights)

    Messages:
    112
    Likes Received:
    413
    I think that was a very good talk. He seems like a competent scientist, and the comments he made towards the end about attitudes towards earmarking funding in institutions and governments were interesting.
     
    Andy and Trish like this.

Share This Page