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SMCI Monthly Update Thread - Feb 2018

Discussion in 'General ME/CFS news' started by Emily Taylor, Feb 1, 2018.

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  1. Emily Taylor

    Emily Taylor Senior Member (Voting Rights)

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    Hello from the Solve ME/CFS Initiative. We want to share our latest news and research with you, but we also want to respect your space and not spam the forums. In order to do that, we are starting a monthly thread where will we add all of the latest news from SMCI. Throughout the month we plan to use this thread to post our latest news and research.

    We'd like to start by sharing last month's edition of our newsletter Research 1st.
     
    Emily Taylor, Feb 1, 2018
    #1
    Solstice, MEMarge, Jan and 29 others like this.
  2. Emily Taylor

    Emily Taylor Senior Member (Voting Rights)

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    Emily Taylor, Feb 6, 2018
    #2
    Solstice, MEMarge, Jan and 15 others like this.
  3. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    Great Emily, looking forward to updates!
     
    Sunshine3, Feb 6, 2018
    #3
    MEMarge, janegoldlcsw, Joh and 7 others like this.
  4. Sasha

    Sasha Senior Member (Voting Rights)

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    Welcome, @Emily Taylor! Solve do great work and I'm very happy to see you here to keep us in touch.
     
    Sasha, Feb 6, 2018
    #4
    MEMarge, Jan, Joh and 7 others like this.
  5. Esther12

    Esther12 Senior Member (Voting Rights)

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    Always good to see another jab at PACE! Thanks.
     
    Esther12, Feb 7, 2018
    #5
    MEMarge, janegoldlcsw, Invisible Woman and 3 others like this.
  6. MErmaid

    MErmaid Guest

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    MErmaid, Feb 8, 2018
    #6
    MEMarge and Joh like this.
  7. Emily Taylor

    Emily Taylor Senior Member (Voting Rights)

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    Emily Taylor, Feb 14, 2018
    #7
    Solstice, Jan, janegoldlcsw and 11 others like this.
  8. Trish

    Trish Moderator Staff Member

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    That's a very good article about Carol Head. I can see why they particularly use the feminist angle, being a women's magazine. The comparison of funding with GWI is a good one to make in that context, though I suspect the funding difference is more to do with military funding for GWI than directly to do with gender of sufferers.
     
    Trish, Feb 15, 2018
    #8
    MEMarge, Jan, janegoldlcsw and 4 others like this.
  9. Emily Taylor

    Emily Taylor Senior Member (Voting Rights)

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    Location:
    Los Angeles, CA
    The Solve ME/CFS Initiative (SMCI) National ME/CFS Patient Registry, developed in partnership with the Genetic Alliance and Platform for Engaging Everyone Responsibly (PEER), is preparing for launch in the first half of 2018. As part of the roll-out, we will be publishing a series of articles in R1st with information about the features and benefits of the new platform. The series will start with a look at the Registry Community Guides.

    READ MORE
     
    Emily Taylor, Feb 26, 2018
    #9
    Solstice, MEMarge, Jan and 5 others like this.
  10. Emily Taylor

    Emily Taylor Senior Member (Voting Rights)

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    Location:
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    SMCI supports worthy ME/CFS research projects across a range of disciplines. In 2017, we funded five research projects and their work is currently underway.

    The 2017 Ramsay study from Drs. Jonas Blomberg, Jonas Bergquist, Carl-Gerhard Gottfries, and Olof Zachrisson of Uppsala University and the Gottfries Clinic in Sweden is entitled “Biomarkers for initiation (infection) and metabolic derangement in ME/CFS.” READ MORE
     
    Emily Taylor, Mar 2, 2018
    #10
    ahimsa, Solstice, Little Bluestem and 5 others like this.

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