sleep

One of the most debilitating aspects of my ME is that the disease causes me major sleep inversion. On most evenings, after significant enough exertion builds up from the previous day(s), I primarily get a very strong brain wired-but-tired feeling and my gut starts becoming irritated. I also...

I couldn't agree more with what is said in this article. During my hospital stay earlier this year, once my procedures were done to widen my bile duct and remove my gallstone, I would say my condition deteriorated due to sleep deprivation...

At the ANZMES (Association of NZ ME Societies) annual general meeting yesterday, Dr Ros Vallings gave a research update. Dr Vallings is NZ's only physician focused on ME. She talked positively about the presentation of Dr Markku Partinen at this year's Invest in ME C13 conference. I'll cover...

Paywalled at http://psycnet.apa.org/doiLanding?doi=10.1037%2Fhea0000621

Sleep deprivation of some kind seems a very common symptom for PwME, and it can have significant consequences all of its own, depending on severity. Sleep deprivation must be a consequence of many illnesses. My wife never really gets a healthy refreshing night's sleep, no matter how many hours...

Andrew Lloyd is a co-author. Open access at https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2763-8

Presumably relevant to some PWME given the sleep issues. The article, https://m.medicalxpress.com/news/2018-05-insufficient-impairments.html The paper, http://www.pnas.org/content/early/2018/05/15/1706694115

Paywalled at https://www.smrv-journal.com/article/S1087-0792(17)30152-1/fulltext

Paywalled at https://onlinelibrary.wiley.com/doi/full/10.1111/jsr.12703

This study was funded 2012, started 2013 but I don't remember seeing a final paper published within th results, does anyone? Thank you. https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/sws-and-daytime-functioning-in-chronic-fatigue-syndrome-saffe/

These last few days I’ve taken to my bed, not feeling bad but just so very very tired and sleepy. I’m not normally sleepy, and although I’m often fatigued and without energy reserves I would not say I normally feel tired. I did have a busy week before this and it could theoretically just be...

Paywalled at https://onlinelibrary.wiley.com/doi/full/10.1111/jsr.12689

I find i need 10-11 hours to function, when i am caught up on PEM. On PEM days its 11-12. How about you?

Full access at https://academic.oup.com/sleep/advance-article/doi/10.1093/sleep/zsy035/4857241

http://www.sleep-journal.com/article/S1389-9457(18)30017-0/fulltext?cc=y= Simon M. Collin, Tom Norris, Paul Gringras, Peter S. Blair, Kate Tilling, Esther Crawley Abstract Objective /Background: Sleep abnormalities are characteristic of chronic fatigue syndrome (CFS, also known as ‘ME’), but...

Hello Everyone, Several years ago, my wife and I bought a Select Comfort mattress that was heavenly. Over the years, the pillow-top that made it so nice has flattened - making pressure points at various points on my body (I’m a side sleeper. Best way I’ve found to not fight gravity to breathe...

I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)

Remember this being discussed at the other place. Its due to be available in the US some time this year. " FDA Approves New Device for Insomnia The Cerêve Sleep System, a prescription device that helps reduce latency to stage 1 and stage 2 sleep by keeping the forehead cool has received US...

From Jun 2017 Full text at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5477754/