services

This post has been copied and responses about the Nuffield program moved from the Paul Garner thread.

from their website Site Map - BACME Primary Fatigue Service (for ME/CFS and Long COVID) South Yorkshire and North Derbyshire ME/CFS Service ME/CFS and Fibromyalgia Service, Royal London Hospital for Integrated Medicine Royal London Hospital for Integrated Medicine: Physiotherapy for...

Moved post Well. Re the 3 intra Norfolk ccgs. I have the misfortune to live right on the border of 2 of the 3 Norfolk services (my home in one and GP surgery the other) and it's a nightmare. On pretty much everything Practitioners from each look where I live, decide its too far for them to...

International Care programs for Pediatric Post-COVID Condition Long COVID and the way forward Brackel, Caroline L. H.; Noij, Lieke C. E.; Vijverberg, Susanne J. H.; Legghe, Camille L.; Maitland-van der Zee, Anke H.; van Goudoever, Johannes B.; Buonsenso, Danilo; Munblit, Daniel; Sigfrid, Louise...

The Scottish Health Department has posted an interim statement advising caution over the suitability of Graded Exercise Therapy (GET) in treating ME/CFS and has reiterated the earlier statement from NICE cautioning against use of GET in Post/Long-Covid. Following a review of the evidence behind...

Moved from the NICE guidelines thread Following that Twitter thread eventually gives this link, Long COVID clinics (Mid and South Essex Health https://coronavirus.msehealthandcarepartnership.co.uk/localservicesandpathways/long-covid-clinics/ Which allows you to download the "Chronic...

http://whri.org/calling-all-physicians-specialists-allied-health-clinical-operations-leads-and-other-clinicians/ eta: also here https://www.bcmj.org/blog/seeking-physicians-input-what-your-experience-myalgic-encephalomyelitis

MEAction performed a survey earlier this year, gathering data to submit to NICE for their review of the ME guideline. I think there’s already a link to the full report on the forum but just in case, it can be found here...

P15 Does the NHS offer equitable access to specialist paediatric clinics? A study of inequalities in outpatient referrals to eight paediatric subspecialties FK Neale1, EJ Armstrong1, J Cohen2, TY Segal2, DS Hargreaves3 https://bmjpaedsopen.bmj.com/content/3/Suppl_1/A9.3

https://adc.bmj.com/content/104/Suppl_2/A139.2

Characteristics of a patient population attending a specialist outpatient service for chronic fatigue syndrome For more from the conference see this thread: https://www.s4me.info/threads/me-cfs-contributions-at-royal-college-of-paediatrics-and-child-health-conference-may-2019.9555/

https://www.bacme.info/sites/bacme.info/files/BACME%20CFS%20ME%20National%20services%20survey%20March19.pdf

As increasingly pw ME/CFS are being referred through IAPT for treatment as MUS I thought I'd set up a separate thread from the ME/CFS Services in UK. " Medically Unexplained Symptoms: Primary Care Intervention University of Sheffield Subject Experts Professor Peter White is Professor of...

This thread has been formed by merging several threads This discussion has been split from this thread Edit November 2024, this thread has been renamed to reflect changes in areas served. UK campaign for better ME services in Suffolk and Norfolk Exactly DT, in 2009, we convincingly proved...

Don't know much about this. Picked up on it thro a tweet. "The Department of Health today announced that work is to commence on the review of neurological services covering all neurology specialities." https://www.health-ni.gov.uk/news/department-announces-regional-review-neurology-services...

" A charity has been forced to cut its services for hundreds of young people - many of whom are housebound. ME North East says it has been unable to find the cash it needs and is desperately seeking new funding so it can continue to offer support to help youngsters stay in education, fight...

As you may recall Suffolk NHS have begun to commission care from Dr Nacul (who leads the ME Biobank team at LSHTM) but commissioners from Norfolk and Waveney could not agree on a way forward. Norfolk patients are understandably unhappy about this. There is an article in today's Eastern Daily...

@Tom Kindlon posted a link to the following on fb (sorry but I've l lost without trace Tom's original fb post), but thought I'd capture this here, seeing as the Royal Liverpool have been deleting comments people made. Captured this too late for those deleted comments, but in case any more get...

http://www.healthwatchhackney.co.uk/news/mental-health-pulls-out-city-and-hackney-chronic-fatigue-service