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Mental health trust pulls out of chronic fatigue service - East London Foundation Trust

Discussion in 'General ME/CFS News' started by Sly Saint, Mar 5, 2018.

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  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    http://www.healthwatchhackney.co.uk...-out-city-and-hackney-chronic-fatigue-service
     
  2. Esther12

    Esther12 Senior Member (Voting Rights)

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    So getting rid of White's clinic is surely a good thing...

    but the CCG are doing all they can to make things even worse than they were.

    "The CCG is planning to commission a new Complex Chronic Conditions service locally that would include the existing pain clinic service at St Leonards Hospital."

    "‘Joining pain and chronic fatigue together makes clinical sense as the two share some similarities in terms of treatments. It also means that we will be able to retain local provision.’"
     
  3. MEMarge

    MEMarge Senior Member (Voting Rights)

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    One of the first MUS Clinics?!!!!!!!!
     
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  4. lunarswirls

    lunarswirls Established Member

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    http://www.cityandhackneyccg.nhs.uk/Downloads/About Us/Board Papers/Friday 26 January 2018 Governing Body Agenda and Papers.pdf
     
    Last edited: Mar 6, 2018
  5. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    This has happened/is happening across England already
     
  6. JamBob

    JamBob Established Member (Voting Rights)

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  7. Esther12

    Esther12 Senior Member (Voting Rights)

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    From the job description:

     
  8. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Locomotor Service? That's a new one to look out for!
     
    Invisible Woman likes this.
  9. Trish

    Trish Moderator Staff Member

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    As a Harry Potter junkie, my mind immediately gives me two options for this:
    - Locomotor mortis - the Leg locker curse which binds the legs of the victim together.
    - The Locomotor charm which enables the witch or wizard to raise a chosen object a few inches off the ground and move it to the required location.

    I hope they are teaching the charm, not the curse.:emoji_levitate:
     
  10. Alvin

    Alvin Senior Member (Voting Rights)

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    Never underestimate the appeal of alternative facts :emoji_face_palm:
     
  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    NHS West Essex
    Service Restriction Policies
    Documents
    "
    Chronic Fatigue Syndrome/Myalgic encephalomyelitis
    (CFS/ME) Inpatient Treatment Status:Not Routinely Funded

    Funding for inpatient care will not be funded.

    Patients should be diagnosed and managed in a community setting.

    Referral for a local specialist opinion may be required if there is doubt about the
    diagnosis, or the patient is not improving despite management in primary care.
    There is limited high quality evidence relating to the effectiveness of intervention in CFS.
    There is evidence of effectiveness from randomised controlled trials of cognitive
    behavioural therapy (CBT) and graded exercise therapy (GET). Guidance on the
    management of patients is provided in the latest clinical guideline from NICE1."

    reviewed May 2018
    https://westessexccg.nhs.uk/health-...ephalomyelitis-cfsme-inpatient-treatment/file

     
  12. Wonko

    Wonko Senior Member (Voting Rights)

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    Yes, there is evidence of CBT/GETs effectiveness - it shows it isn't effective.

    Anecdotal evidence also suggests that not only is it not effective it is defective, and causes harm, and possibly future lawsuits.
     
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  13. ladycatlover

    ladycatlover Moderator Staff Member

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    :rolleyes: :( :banghead: :sick: :emoji_face_palm: :rolleyes: :rolleyes: :rolleyes:
     
  14. rvallee

    rvallee Senior Member (Voting Rights)

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    They totally got MBAs involved in this, right? This is basically the medical equivalent of a corporate word salad.

    I can't tell their mumbo jumbo apart from sarcastic nonsense:

    This clinic will objectively redefine one-to-one paradigms, efficiently myocardinate fully tested architectures that interactively mesh end-to-end functionalities and continually coordinate performance based clouds to promote progressively mesh error-free leadership, energistically formulate B2C paradigms that fungibly maximize user-centric methodologies.
     
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  15. Spoonseeker

    Spoonseeker Established Member

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    Feeling stuck?

    This current job advertisement - https://www.nhsjobs.com/job/UK/Lond...al_Therapies/Psychological_Therapies-v1550923 is for a clinical psychologist/nurse specialist/clinical social worker with the City and Hackney Primary Care Psychotherapy Consultation Service or 'PCPCS'. It's worth reading down to see what they say about patients with medically unexplained symptoms, especially the infrequent service users with their 'feeling of stuckness' etc!

    So is this the new Complex Chronic Conditions service that they indicated would be coming down the track for ME/CFS patients in that area following the closure of the chronic fatigue service? Or part of it perhaps?

    This 2014 report about the City and Hackney PCPCS is worth reading too-

    https://www.centreformentalhealth.org.uk/publications/managing-patients-with-complex-needs
     
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  16. Esther12

    Esther12 Senior Member (Voting Rights)

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    https://www.nhsjobs.com/job/UK/Lond...al_Therapies/Psychological_Therapies-v1550923

    This looks like a service for discouraging people to go to the doctors. Maybe there's some value for that if some people end up using a lot of resources and getting nothing much out of it? Wish they'd be clearer about what it is they're 'treating' though.
     
  17. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    I know this is from a while ago now but I completely missed this thread previously.

    What to say about the above quote? Word salad indeed. This is award winning word salad. A whole new level of WTF.

    ETA: mistook rvallees recreation for real thing.
     
    Last edited: Feb 13, 2019
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  18. Trish

    Trish Moderator Staff Member

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    Blimey, did they really say all that? It reads like someone's having a bit of fun - making, as you say, word salad, as a challenge to their colleagues to see if anyone dares tell them they are talking bollocks.
     
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  19. Wonko

    Wonko Senior Member (Voting Rights)

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    It makes perfect sense to me.

    Translated into English it means - Wibble.
     
  20. rvallee

    rvallee Senior Member (Voting Rights)

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    Haha no I used a tool to generate corporate babble :) I just used the same sentence structure as the real quote.

    But it's only stretching the real quotes by a bit.
     
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