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Mental health trust pulls out of chronic fatigue service - East London Foundation Trust

Discussion in 'General ME/CFS News' started by Sly Saint, Mar 5, 2018.

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  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    http://www.healthwatchhackney.co.uk...-out-city-and-hackney-chronic-fatigue-service
     
  2. Esther12

    Esther12 Senior Member (Voting Rights)

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    So getting rid of White's clinic is surely a good thing...

    but the CCG are doing all they can to make things even worse than they were.

    "The CCG is planning to commission a new Complex Chronic Conditions service locally that would include the existing pain clinic service at St Leonards Hospital."

    "‘Joining pain and chronic fatigue together makes clinical sense as the two share some similarities in terms of treatments. It also means that we will be able to retain local provision.’"
     
  3. MEMarge

    MEMarge Senior Member (Voting Rights)

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    One of the first MUS Clinics?!!!!!!!!
     
    rvallee, Milo, Indigophoton and 7 others like this.
  4. lunarswirls

    lunarswirls Established Member

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    http://www.cityandhackneyccg.nhs.uk/Downloads/About Us/Board Papers/Friday 26 January 2018 Governing Body Agenda and Papers.pdf
     
    Last edited: Mar 6, 2018
  5. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    This has happened/is happening across England already
     
  6. JamBob

    JamBob Established Member

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  7. Esther12

    Esther12 Senior Member (Voting Rights)

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    From the job description:

     
  8. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    It all sounds so complicated for a model so patently imaginary!
     
  9. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Locomotor Service? That's a new one to look out for!
     
    Invisible Woman likes this.
  10. Trish

    Trish Moderator Staff Member

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    As a Harry Potter junkie, my mind immediately gives me two options for this:
    - Locomotor mortis - the Leg locker curse which binds the legs of the victim together.
    - The Locomotor charm which enables the witch or wizard to raise a chosen object a few inches off the ground and move it to the required location.

    I hope they are teaching the charm, not the curse.:emoji_levitate:
     
  11. Alvin

    Alvin Senior Member (Voting Rights)

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    Never underestimate the appeal of alternative facts :emoji_face_palm:
     
  12. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    NHS West Essex
    Service Restriction Policies
    Documents
    "
    Chronic Fatigue Syndrome/Myalgic encephalomyelitis
    (CFS/ME) Inpatient Treatment Status:Not Routinely Funded

    Funding for inpatient care will not be funded.

    Patients should be diagnosed and managed in a community setting.

    Referral for a local specialist opinion may be required if there is doubt about the
    diagnosis, or the patient is not improving despite management in primary care.
    There is limited high quality evidence relating to the effectiveness of intervention in CFS.
    There is evidence of effectiveness from randomised controlled trials of cognitive
    behavioural therapy (CBT) and graded exercise therapy (GET). Guidance on the
    management of patients is provided in the latest clinical guideline from NICE1."

    reviewed May 2018
    https://westessexccg.nhs.uk/health-...ephalomyelitis-cfsme-inpatient-treatment/file

     
  13. Wonko

    Wonko Senior Member (Voting Rights)

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    Yes, there is evidence of CBT/GETs effectiveness - it shows it isn't effective.

    Anecdotal evidence also suggests that not only is it not effective it is defective, and causes harm, and possibly future lawsuits.
     
    andypants, rvallee, Webdog and 5 others like this.
  14. ladycatlover

    ladycatlover Senior Member (Voting Rights)

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    :rolleyes: :( :banghead: :sick: :emoji_face_palm: :rolleyes: :rolleyes: :rolleyes:
     
  15. rvallee

    rvallee Established Member (Voting Rights)

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    They totally got MBAs involved in this, right? This is basically the medical equivalent of a corporate word salad.

    I can't tell their mumbo jumbo apart from sarcastic nonsense:

    This clinic will objectively redefine one-to-one paradigms, efficiently myocardinate fully tested architectures that interactively mesh end-to-end functionalities and continually coordinate performance based clouds to promote progressively mesh error-free leadership, energistically formulate B2C paradigms that fungibly maximize user-centric methodologies.
     

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