recovery

Key points Modern medicine routinely fails to make sense of ME/CFS and long covid. This incoherence, along with wider stigma, leaves sufferers frustrated and confused. A systems view of illness encourages us to consider how states of imbalance arise across bodily systems. Viewing symptoms as...

Highlights Long COVID reduces work productivity. The longer long COVID lasts, the greater the amount of economic loss. This study assessed long COVID in Japanese society. Patient-reported outcomes were considered to understand the impact of long COVID. Results showed that symptom duration...

Discussion split from United Kingdom: ME Association news One question I have that is prompted by the Riley editorial but is not about the Riley editorial. I've had a couple of people tell me that, after many years never exceeding what they believed was their level of activity for triggering...

Assessing severity of illness and outcomes of treatment in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME): a systematic review of patient-reported outcome measures (PROMs) K L Haywood 1, S M Collin, E Crawley Abstract Chronic Fatigue Syndrome or Myalgic...

Abstract Objectives: We aimed to identify trajectories of the evolution of post-COVID-19 condition, up to 2 years after symptom onset. Methods: The ComPaRe long COVID e-cohort is a prospective cohort of patients with symptoms lasting at least 2 months after SARS-CoV2 infection. We used...

Abstract While the acute manifestations of infectious diseases are well known, in some individuals, symptoms can either persist or appear after the acute period. Post-viral fatigue syndromes are recognized with other viral infections and are described after COVID-19. We have a growing number of...

Abstract 65 million people worldwide are estimated to suffer from long-term symptoms after their SARS-CoV-2 infection (Long COVID). However, there is still little information about the early recovery among those who initially developed Long COVID, i.e. had symptoms 4–12 weeks after infection but...

Long COVID patients continue to experience significant symptoms at 12 months and factors associated with improvement: a prospective cohort study in France PERSICOR Salmon; Slama; Linard; Dumesges; Lebaut; Hakim; Oustric; Seyrat; Thoreux; Marshall Objectives This study examines long COVID...

The information about this study was posted on this Reddit Thread where apparently MacMaster University was trying to recruit ME/CFS patients. Here's how the McMasterCFS account represented itself and the study: "Our team is made up of Dr. Meredith Vanstone who is a Scientist who studies...

[I wasn't sure which forum to post this in] EMERGE Australia Recovery Position Statement https://www.emerge.org.au/recovery-position-statement/ Start of pdf: Statement The general consensus is that full recovery from ME/CFS is not common. However, the research into recovery is plagued by...

Determinants of the Onset and Prognosis of the Post-COVID-19 Condition: A 2-Year Prospective Cohort Study Mateu, Lourdes; Tebe, Cristian; Loste, Cora; Santos, José Ramón; Lladós, Gemma; López, Cristina; España-Cueto, Sergio; Toledo, Ruth; Font, Marta; Chamorro, Anna; Muñoz-López, Francisco...

The Role of Subjective Expectations for Exhaustion and Recovery: The Sample Case of Work and Leisure Victoria Schüttengruber and Alexandra M. Freund Abstract We propose a new model of exhaustion and recovery that posits that people evaluate an activity as exhausting or recovering on the basis...

moved thread Ok, but most of these studies are based on confirmed PCR tests which if I understand correctly require virus particles, not necessarily antibodies. On Twitter someone pointed me to this Danish preprint which found that 16% of patients reported fatigue and 13% concentration...

https://www.thelancet.com/journals/lanres/article/PIIS2213-2600(22)00127-8/fulltext The PHOSP-COVID Collaborative Group Clinical characteristics with inflammation profiling of long COVID and association with 1-year recovery following hospitalisation in the UK: a prospective observational study...

Hiya I’m asking on behalf of a friend who has asked me for resources. He’s worried about *his* friend, who’s been fatigued post-covid for 2 and a half weeks. He is very worried that she is taking things too fast and not letting herself rest. I’m trying to find some information explaining that...

I thought this was particuarly interesting that he says he was given 'the wrong advice' and told it was ok to train when he was still sick, and which meant he was sick for much longer. There is also a clear distinction between a) the original virus, and b) his depression. He also makes the...

As you can guess, I have been thinking a lot about illnesses lately. Going back to my twenties, I went down with chicken pox, which was really nasty, and a few years later a pretty bad flu. In each case I woke up one morning knowing the infection had gone, but feeling utterly drained and grotty...

"Phil Murray had M.E. / Chronic Fatigue Syndrome for 8 years in his 30's. He's now living an active life in his 50's, running & rock climbing. Chat starts: 0:24 Interview starts: 0:48. He shares powerful & practical recovery insights and his passion for biomedical research. TIMESTAMPS...

bioRxiv preprint: link, PDF Summary SARS-CoV-2 has infected over 160 million and caused more than 3 million deaths to date. Most individuals (>80%) have mild symptoms and recover in the outpatient setting, but detailed studies of immune responses have focused primarily on moderate to severe...

P1 “She used to be Tigger and then she was Eeyore”: A qualitative study with children and young people with CFS/ME, exploring predictors of recovery and future treatment needs Philippa Clery, MBBS BSc, Jennifer Starbuck, BSc DClinPsy, Amanda Laffan, BSc DClinPsy, Esther Crawley, MBBCh PhD...