petition

  1. Art Vandelay

    Petition: 2025 Denmark: Protection of woman with very severe ME/CFS, Line

    Copied post Another person with severe ME/CFS is being threatened with forced psychiatric hospitalisation in Denmark. There is a petition here.
  2. Sean

    Petition to the ABC about Norman Swan's comments on ME/CFS and Long Covid

    Somebody has started a petition asking the ABC (Australian Broadcasting Corporation, our version of the BBC) to address Norman Swan's comments on ME/CFS and Long Covid. The ABC is Swan's long term employer, and his primary platform (mainly as the weekly Health Report). Stop the ABC from...
  3. Hutan

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    The Science for ME forum started a petition on 4 September: Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review on Change.org The link is here: https://chng.it/zTZ7vX9Czd It is part of the forum's campaign to have the 2019 Cochrane Exercise Therapy for CFS review withdrawn, and...
  4. C

    Suzy Weiss Manifesto on “Spoonie” Culture

    https://www.commonsense.news/p/hurts-so-good This is merely an intellectually and morally bankrupt regurgitation of long-standing canards against us. However, predictably, it’s being heralded by the usual suspects across the Internet. My question is whether a piece like this actually converts...
  5. Peter T

    Petition: UK Funding for ME & Long Covid research into treatment

    The MEA shared this UK Parliamentary petition on their Facebook page recently, it may have been shared elsewhere, so sorry if this is a duplicate Urgent funding for research into Long Covid and ME/CFS treatments and cures “Around a quarter of a million people are suffering with ME/CFS in the...
  6. Sly Saint

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    This thread is for social media and general media items about people in the United Kingdom with both ME/CFS and severe problems in achieving adequate nutrition. Please avoid speculating about the health or other personal aspects of people mentioned. There is general discussion about severe...
  7. J

    NIH Recover Initiative—petition against bogus treatments

    There is a petition—looks like all nationalities can sign. Treatments include CBT, exercise.
  8. RedFox

    Long Covid drug BC-007 research news

    Change.org petition to fund and expedite BC-007 research BC007 NOW- Chance of a cure for millions of suffering people From the English description call on the German government to financially support the approval studies of the company Berlin Cures GmbH for the drug BC 007 and to remove...
  9. SNT Gatchaman

    New Zealand: 2022 Petition for the NZ government to recognise ME/CFS as a disability - deadline 29 August 2022 (people living outside NZ can sign)

    Copied post Petition for NZ govt to recognise ME as a disability. https://www.parliament.nz/en/pb/petitions/document/PET_125649/petition-of-associated-myalgic-encephalomyelitis-society
  10. Noir

    Australia: Petition: Call for Change for ME patients Australia

    "We are looking to submit this Australian version of the Call-For-Change petition to the current Australian Disability Royal Commission and Australian Parliament to investigate the violence, neglect, abuse and exploitation currently occurring in the ME and CFS community due to outdated...
  11. Noir

    2022 Petition: Denmark must follow international evidence-based guidelines for ME (anyone can sign)

    The Danish Health Authorities rejects the new NICE guidelines and keep clinging to CBT and GET. Please sign and share this petition to help put pressure on the Danish Health Authorities so they will start following current biomedical science. I've linked both an English translation and the...
  12. Lucibee

    United Kingdom: Petition: Set up a national harms reporting scheme for non-pharmacological treatments

    Seems someone got in there first... :wink: https://petition.parliament.uk/petitions/601237
  13. Andy

    Austria: Petition: ME / CFS: Recognition, Medical Care and Protection of the Affected, and Research Funding, closes 22 Nov 2021

    I'm relying on Google translation here, if any errors are spotted please let me know. Quote: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome - ICD-10 G93.3 ME / CFS is a severe multi-system disease that currently affects between 26,000 and 80,000 people in Austria [1]. Depending on its...
  14. John Mac

    United Kingdom: Petition Change.org: for a new mechanism by which M.E/C.F.S patients can report harms.

    https://www.change.org/p/department-of-health-and-social-care-we-demand-the-creation-of-a-new-mechanism-by-which-m-e-c-f-s-patients-can-report-harms-ab215021-5d66-4f72-9ba2-06a633f298f3?source_location=topic_page
  15. Suffolkres

    United Kingdom: Petition, Create a Task Force to Oversee Drug Procurement for ALL Post Viral Conditions - deadline 20 November 2021

    Moved post Patients of post viral being taken seriously? Following petition started by patient from Norfolk and Suffolk Service ME and CFS area. Please consider supporting and promoting please. https://petition.parliament.uk/petitions/585780
  16. Andy

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    [Can be signed by anybody] Quote: Our Pleas to the German Bundestag We ask the German Bundestag to commit itself to the provision of healthcare appropriate to the disease severity of ME/CFS, in particular by amending § 116b SGB V as well as through awareness campaigns. Further, we ask the...
  17. Andy

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    "We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. People with ME are depending on the finalised guideline to transform the care they receive: ensuring accurate diagnosis, appropriate symptom management, and...
  18. Andy

    Canada: Petition: ME/CFS research funding, closes Sept 10, 2021

    "We, the undersigned, Citizens of Canada, call upon the Government of Canada to: 1. Set Aside $50 Million Dollars for ME/CFS biomedical research; 2. Commission the Chief Statistician of Canada, Anil Arora, to study the economic impact of ME/CFS according to the Canadian Consensus Criteria; and...
  19. Andy

    UK: Petition: Specify ME/CFS on the list of neurological conditions under group 6 for UK Covid19 vaccine

    https://www.change.org/p/jvci-specify-me-cfs-on-the-list-of-neurological-conditions-under-group-6-for-uk-covid19-vaccine-and-end-the-postcode-lottery-of-who-gets-vaccinated
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