Somebody has started a petition asking the ABC (Australian Broadcasting Corporation, our version of the BBC) to address Norman Swan's comments on ME/CFS and Long Covid.
The ABC is Swan's long term employer, and his primary platform (mainly as the weekly Health Report).
Stop the ABC from...
The Science for ME forum started a petition on 4 September:
Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review
on Change.org
The link is here: https://chng.it/zTZ7vX9Czd
It is part of the forum's campaign to have the 2019 Cochrane Exercise Therapy for CFS review withdrawn, and...
https://www.commonsense.news/p/hurts-so-good
This is merely an intellectually and morally bankrupt regurgitation of long-standing canards against us. However, predictably, it’s being heralded by the usual suspects across the Internet.
My question is whether a piece like this actually converts...
The MEA shared this UK Parliamentary petition on their Facebook page recently, it may have been shared elsewhere, so sorry if this is a duplicate
Urgent funding for research into Long Covid and ME/CFS treatments and cures
“Around a quarter of a million people are suffering with ME/CFS in the...
This thread is for social media and general media items about people in the United Kingdom with both ME/CFS and severe problems in achieving adequate nutrition. Please avoid speculating about the health or other personal aspects of people mentioned.
There is general discussion about severe...
Change.org petition to fund and expedite BC-007 research
BC007 NOW- Chance of a cure for millions of suffering people
From the English description
call on the German government to financially support the approval studies of the company Berlin Cures GmbH for the drug BC 007 and to remove...
Copied post
Petition for NZ govt to recognise ME as a disability.
https://www.parliament.nz/en/pb/petitions/document/PET_125649/petition-of-associated-myalgic-encephalomyelitis-society
"We are looking to submit this Australian version of the Call-For-Change petition to the current Australian Disability Royal Commission and Australian Parliament to investigate the violence, neglect, abuse and exploitation currently occurring in the ME and CFS community due to outdated...
The Danish Health Authorities rejects the new NICE guidelines and keep clinging to CBT and GET.
Please sign and share this petition to help put pressure on the Danish Health Authorities so they will start following current biomedical science.
I've linked both an English translation and the...
I'm relying on Google translation here, if any errors are spotted please let me know.
Quote:
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome - ICD-10 G93.3
ME / CFS is a severe multi-system disease that currently affects between 26,000 and 80,000 people in Austria [1]. Depending on its...
Moved post
Patients of post viral being taken seriously?
Following petition started by patient from Norfolk and Suffolk Service ME and CFS area.
Please consider supporting and promoting please.
https://petition.parliament.uk/petitions/585780
[Can be signed by anybody]
Quote:
Our Pleas to the German Bundestag
We ask the German Bundestag to commit itself to the provision of healthcare appropriate to the disease severity of ME/CFS, in particular by amending § 116b SGB V as well as through awareness campaigns.
Further, we ask the...
"We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form.
People with ME are depending on the finalised guideline to transform the care they receive: ensuring accurate diagnosis, appropriate symptom management, and...
"We, the undersigned, Citizens of Canada, call upon the Government of Canada to:
1. Set Aside $50 Million Dollars for ME/CFS biomedical research;
2. Commission the Chief Statistician of Canada, Anil Arora, to study the economic impact of ME/CFS according to the Canadian Consensus Criteria; and...
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